Everything Hurts?

[musicmom2]

I'm 22 years old. After suffering for 3 years with stomach pains and sooo many of the other side effects of being gluten intolerant. I was finally diagnosed with being gluten intolerant. Was overjoyed to finally have an answer for all I had been suffering with and excited to start a gluten free diet plan that would make me feel better. Problem is... I feel worse. I've been faithfully on the diet for 3 months, done all the replacing of my cutting boards, toasters, shampoos, detergents etc. Very careful about cross contamination etc. and I'm still hurting. lower left side pain, stomach aches before and after eating now I'm experiencing more pain in my heart region, feel like I have to catch my breath sometimes, leg and arms ache (not always though) and daily nauseousness that use to be occasional. I've noticed that If I eat Ice cream it will immediately make my chest and stomach hurt but I was diagnosed with not being allergic to Casein or Soy. Can people who have been diagnosed NOT being allergic to Casein and Soy still have a reaction to them because of gluten intolerance? I notice that tomatoes and beans are hard for me too. I'm not sure WHAT all I should be eliminating? Is there some very minimalistic gluten free diet that I can go on where I can slowly add other food back in to see if I have a reaction? Not sure what to put in my mouth at this point

Any one else been in my shoes?

Thank you all so much for your input!

[gifree]

Sorry to hear that you're not feeling well. I'm in the same boat, after 6-months on the gluten-free diet. Maybe try the FOODMAP diet. I'm not on it, but apparently it helps those who have additional allergies.

I hope you feel better soon.

[mushroom]

If you are celiac and reacting to ice cream you are most likely lactose intolerant, which is different from casein intolerant. Lactose is the sugar part of the milk, casein is the protein in milk. The lactose fraction of the milk is digested by lactase, an enzyme made on the tips of the villi in the small intestine, and it is these villi that are damaged by the gluten. So when your villi heal you will most probably be able to eat lactose again. In the meantime you should definitely avoid milk, cream, ice cream, frozen yogurt. Regular cultured yogurt may be tolerated, also hard cheeses. You will have to test your ability to consume any dairy products, as it will depend on your sensitivity.

[cassP]

i second mushroom on the lactose intolerance... plus- allergies are different from intolerances... you may not be allergic to casein or soy- but your digestive system may be intolerant of them..

and yes- most of us are in the same boat as u- meaning we have to eliminate other foods in addition to gluten.

i, myself, have to avoid high fructose foods. i also try to limit my dairy. i also have referenced the FODmap diet- i follow it to an extent (still working out my limits on: garlic, onions, and sweet potatoes)

and lastly, i also feel better mostly grain free.

good luck figuring out your needs.... definitely take a look at the FODmap because u mentioned beans... and maybe u will have to look at eliminating nightshades (since u mentioned tomatoes)... you MAY find that you could possibly eat certain beans if they're soaked & rinsed enough or depending on how their cooked... for example: i can eat a little hummus just fine- but whole chickpeas are like ROCKS in my intestines..

[cahill]

I'm 22 years old. After suffering for 3 years with stomach pains and sooo many of the other side effects of being gluten intolerant. I was finally diagnosed with being gluten intolerant. Was overjoyed to finally have an answer for all I had been suffering with and excited to start a gluten free diet plan that would make me feel better. Problem is... I feel worse. I've been faithfully on the diet for 3 months, done all the replacing of my cutting boards, toasters, shampoos, detergents etc. Very careful about cross contamination etc. and I'm still hurting. lower left side pain, stomach aches before and after eating now I'm experiencing more pain in my heart region, feel like I have to catch my breath sometimes, leg and arms ache (not always though) and daily nauseousness that use to be occasional. I've noticed that If I eat Ice cream it will immediately make my chest and stomach hurt but I was diagnosed with not being allergic to Casein or Soy. Can people who have been diagnosed NOT being allergic to Casein and Soy still have a reaction to them because of gluten intolerance? I notice that tomatoes and beans are hard for me too. I'm not sure WHAT all I should be eliminating? Is there some very minimalistic gluten free diet that I can go on where I can slowly add other food back in to see if I have a reaction? Not sure what to put in my mouth at this point

Any one else been in my shoes?

Thank you all so much for your input!

Have you considered you may be having gall bladder issues??,,,worth checking out.