Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acupuncture Session Went Wrong After Glutening


Nadia2009

Recommended Posts

Nadia2009 Enthusiast

I went for an acupuncture session after I had fries at some restaurant. The fries had been cooked in the same pan than falafel and maybe had some wheat starch too. I never thought I would be that sensitive but I got glutened.

The worst part is that my expensive acupuncture session instead of helping me feeling better made me feel horrible. I was dizzy and had to sit down for at least 45 minutes. I felt as if I was drugged and the needles hurt. Nothing like the other session I had before. I also know that I had my head down and the acupunturist forgot to give me a pillow. It also makes me wonder how people and so called doctors can leave their patients for 40 without checking on them. I didnt want to make the wrong move so I stayed still but all the time but it didnt feel good.

Normally acupunture should make the chi and the blood circulating better. It seems like the opposite happened: my head was heavy and dizzy but I gained so much pain. It is so ironic I was actually feeling great when I went there for my acup. session.

But I wish I knew how much of those feelings the gluten contributed too? Usually it takes gluten about 2 days to start hurting me. I usally get the big D, fatigue, muscle weakness, confusion sleepiness and breathlessness (maybe not all at the same time). I am wondering if the needles helped the gluten go to all over my body and got me drunk with gluten :lol: and maybe it explains why I had so much pain and a quicker reaction to gluten.

This time, I have mostly neuro-muscular pain and fatigue. I felt a bit constipated after Friday. It helped me to have epsom salt in my baths and the pain is diminished but I still have some pain in my back shoulder and head all in my right side.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I went for an acupuncture session after I had fries at some restaurant. The fries had been cooked in the same pan than falafel and maybe had some wheat starch too. I never thought I would be that sensitive but I got glutened.

The worst part is that my expensive acupuncture session instead of helping me feeling better made me feel horrible. I was dizzy and had to sit down for at least 45 minutes. I felt as if I was drugged and the needles hurt. Nothing like the other session I had before. I also know that I had my head down and the acupunturist forgot to give me a pillow. It also makes me wonder how people and so called doctors can leave their patients for 40 without checking on them. I didnt want to make the wrong move so I stayed still but all the time but it didnt feel good.

But I wish I knew how much of those feelings the gluten contributed too? Usually it takes gluten about 2 days to start hurting me. I usally get the big D, fatigue, muscle weakness, confusion sleepiness and breathlessness (maybe not all at the same time).

This time, I have mostly neuro-muscular pain and fatigue. I felt a bit constipated after Friday. It helped me to have epsom salt in my baths and the pain is diminished but I still have some pain in my back shoulder and head all in my right side.

I don't think that your expense to an acupuncturist is worth your money, with regard to Celiac Disease. It cannot cure it, nor relieve the symptoms. :)

Nadia2009 Enthusiast

I don't think that your expense to an acupuncturist is worth your money, with regard to Celiac Disease. It cannot cure it, nor relieve the symptoms. :)

Lisa,

I went to see her for my back and to help me with the tiredness. But maybe I should stick to the chiro instead.

I hate not being able to eat anywhere without risk. I am going to cancel my participation to staff potlucks and dinners. I dont want to be glutened again and there is no fun in having an interview with each person before eating 2 bites of their food.

Lisa Mentor

Lisa,

I went to see her for my back and to help me with the tiredness. But maybe I should stick to the chiro instead.

I hate not being able to eat anywhere without risk. I am going to cancel my participation to staff potlucks and dinners. I dont want to be glutened again and there is no fun in having an interview with each person before eating 2 bites of their food.

I get it, it's not fun.I have lived it and so has about 40,000 other people here. I can't tell you the times that my husband has found me in a corner or ladies room in tears.

If you want to feel well, you have to choose well. I know of no one who would criticize you in protecting your health. It's all a process. It does not happen over night.

I think you need to learn what your parameters are and take steps from that. This is an illness that takes small steps at a time. It takes time to learn what is safe and what is not.

There is soooo much information here...take a deep breath, take a walk around and ask questions.....that's why we are here.

You are in a good place. :)

sandsurfgirl Collaborator

I don't think that your expense to an acupuncturist is worth your money, with regard to Celiac Disease. It cannot cure it, nor relieve the symptoms. :)

I go for acupuncture and it totally relieves the symptoms! I can go in there feeling awful and walk out feeling better. It will not cure you, but a good acupuncturist can strengthen your immune system and help heal the other damage that has been done to your body due to inflammation and malnourishment associated with celiac disease.

I'm not sure why your session made you feel so bad. What did the acupuncturist say? If you felt bad why didn't you call for them to come check on you? I'm wondering if it was a coincidence and your gluten just kicked in at that moment.

Nadia2009 Enthusiast

I get it, it's not fun.I have lived it and so has about 40,000 other people here. I can't tell you the times that my husband has found me in a corner or ladies room in tears.

If you want to feel well, you have to choose well. I know of no one who would criticize you in protecting your health. It's all a process. It does not happen over night.

I think you need to learn what your parameters are and take steps from that. This is an illness that takes small steps at a time. It takes time to learn what is safe and what is not.

There is soooo much information here...take a deep breath, take a walk around and ask questions.....that's why we are here.

You are in a good place. :)

Thank you. You're right I am sooooo happy for this message board and I can tell you this forum helped me more than my GP! Yes great info and great support that we all need.

Nadia2009 Enthusiast

I go for acupuncture and it totally relieves the symptoms! I can go in there feeling awful and walk out feeling better. It will not cure you, but a good acupuncturist can strengthen your immune system and help heal the other damage that has been done to your body due to inflammation and malnourishment associated with celiac disease.

I'm not sure why your session made you feel so bad. What did the acupuncturist say? If you felt bad why didn't you call for them to come check on you? I'm wondering if it was a coincidence and your gluten just kicked in at that moment.

Sandsurfgirl,

I wish I never had this bad experience because I am actually all for alternative health and I believe Chinese medecine has a lot to offer. I researched a bit and chose someone who has a license with background in chinese medecine and not just someone with some hours of training.

I am however very disappointed by this doctor mostly because she didnt show care and I dont see the point of having a long consultation and assessment since the info in there isn't used after. We get these consultations so that the patients are impressed that's all.

I think everyone wants to save time nowadays and they are treating people like car parts that need to be assembled. Even if the needles need to stay there for 30-40 minutes why don't they check on their patients? I wasn't at the spa salon and didn't have a mask I had needles!

Anyway, here is where you can help me: are the needdles used for the front part of the body different than the one for the back? My first session was for the front and it felt great and no bleeding. This time for the back, some of the needdles made me bleed and left mark on the skin.

Have you already been to the acupunturist after having food with gluten within 1-2 hours?

Should we go for acupuncture on an empty stomach?

It is a coincidence that I went to the acupunturist on the same day I was glutened but my symtomes didnt just kick in. Either it wasn't the reaction to gluten or acupuncture triggered a stronger and faster reaction. Usually my symptoms take at least 2 days and I never feel dizzy even with gluten. I dont know if gluten was responsible for everything as my head was a bit lower and I had no pillow.

I sent an email but received no answer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nadia2009 Enthusiast

I go for acupuncture and it totally relieves the symptoms! I can go in there feeling awful and walk out feeling better. It will not cure you, but a good acupuncturist can strengthen your immune system and help heal the other damage that has been done to your body due to inflammation and malnourishment associated with celiac disease.

This is exactly why I wanted to use acupuncture but now I am scared.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,636
    • Most Online (within 30 mins)
      7,748

    Elaine Rhoda
    Newest Member
    Elaine Rhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.