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Finding A Private Dr


realmaverick

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realmaverick Apprentice

Hey guys, hope you're all well and excited for Christmas!

I'm now 3 months in to my gluten free diet. I'm still suffering with brain fog, terrible fatigue, sore eyes. These are the issues that bother me most, as they're 24/7 and have been for over 15 years and it's really driving me nuts.

My Dr sucks, he was reluctant to do any tests. I'm not sure what I was supposed to do, to ensure he understood how desperate I was, short of collapsing on his floor.

The only tests he wants to do was Iron and Thyroid. Though the Thyroid tests were merely TSH, which come out at 0.7. I've since learned that, there are various reasons why TSH can be low, and still have low Free T3 and T4. But he said the clinic won't test for the others, as my TSH is normal.

Well, I have this nagging feeling, that I have a thyroid issue. I have nearly every symptom and the way I feel, just isn't damn normal and I'm sick and tired of dealing with it. I want to be well and I'm not going to give in, because my Dr is a tit.

So, I want to find a reliable, private Dr, in the London area of the UK. But I have no idea where to start.

What I really want, is not to even talk to anybody, but have a full blood test, that covers everything and will tell me what I need to know and give me some direction.

Any advice, links, suggestions, would be awesome.

Thanks a lot guys :)


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laura4669 Apprentice

I can relate to docs who will not listen to you! I am sorry you are having so much trouble. I ended up ordering my own blood tests though an online company. They send you the lab order, then you go to the lab they have contracted with to have your blood drawn. I used MyMedLab.com. You have to pay out-of-pocket, but it was worth it to me just to figure out what was wrong. Not sure if you have the same things available in the UK, but maybe worth a shot to google and find out?

Another way to find good docs is to ask the pharmacist at a compounding pharmacy. Very often they work with naturopaths, or alternative doctors who are used to treating the whole body, and not just treating symptoms. I have found that these types of docs are more thorough then traditional MD's.

That said, you don't mention what types of doc you are currently seeing. Is he an internist? Endocrinologist? GI? Perhaps an endocrinologist would order a more comprehensive thyroid panel, and a GI doc would be able to do a complete screening for celiac.

You can also check the websites of alternative physician trade organizations in the UK. Very often they have patient resource links with information on local doctors.

Good luck to you!

txplowgirl Enthusiast

I'm sorry you feel so lousy. I'm in the US so I can't help you there. Just want to give you some encouragement to stick with it, I hope you get to feeling a lot better.

realmaverick Apprentice

Thanks guys :)

My current doc is just a GP (general practitioner). He's not mad any referrals and is extremely unlikely to, until I get to the bottom of this myself. Or at least have some good leads.

I was talking to a friend last night, who has lupus. She's convinced I do too. Largely because of the massive sensitivity to fluorescent lights I have. As soon as I'm under them, I begin to feel uncomfortable, my eyes get sore and eventually I feel weak and dizzy. My skin gets bothered too and just generally feel disorientated. In sunlight, which I enjoy, I just get wiped out pretty quickly but don't get sore eyes.

I've emailed a few local rheumatologists, who I'm hoping will be able to look in to my sickness a little deeper. I also found an article about auto immune disorders, which I found really helpful, you can check it out here: Open Original Shared Link. It explained a lot about what's actually going on inside, why we're sick etc.

I think between a rheumatologist and a full blood scan, I should be able to make some strides forward.

mushroom Proficient

Don't know how the process works in the UK, RealMaverick. I used the system in 1961 but that was way too long ago. Have been used to the U.S. system, and am just now getting readjusted to the New Zealand system. Modern life is so complex :P Here we have the option of the public system, or "going private", which I tend to do a lot of the time because waiting times can be so long for referrals to public. I am lucky to have a GP who thinks I know what I am talking about and is willing to make a referral for me to any of the specialists I want. You may not be so lucky on this count. I often don't accept them because I have full private insurance in the U.S. and go there every summer, so just prefer to wait for what will be covered by my insurance. But I remember years ago in New Zealand under our system that a GP wanted to remove a mole I was concerned about. I was sufficiently concerned about it that I wanted to have someone who really 'knew' what he was doing remove it, i.e., a surgeon. I was told I could not see a surgeon without a referral, which I was not going to get :rolleyes: So I called the surgeon of my choice, explained the situation, and was given an appointment the next week as a private patient. So there are ways around things, I guess if you are willing to foot the bill. If it is important enough to you, it is probably important enough to pay the money. I would make personal contact with the doctor you want to see.

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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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