Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd And Reflux


anerissara

Recommended Posts

anerissara Enthusiast

Just wondering how many people here also have reflux? It seems like it often goes along with celiac's. I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem. Does anyone else notice reflux increasing when they get glutened? And do you struggle with reflux as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

When my son was an infant the reflux was wicked. He was on "baby zantac". Neither of my other children had reflux.

jknnej Collaborator

I have it and Nexium has saved my life.

Guest AmandasMommy

amanda and i both have it. dr said when shes on the dietfor a while it will go away. i hope so. and ive had it most of my life, i wish the drs would have known about celiac disease when i was younger.

rmmadden Contributor

I believe the two are inter-related. It just seems to make common sense when you think about it.

I actually started a topic on this a while back which you san see by going to Open Original Shared Link

Best of Luck!

Cleveland Bob B)

Guest AmandasMommy

yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

terryjean Rookie

Yes I have celiac disease with reflux along with asthma, diabetes, interstisial cystis, IGA deficiency. I take Nexium 40mg twice daily...... & pepcid as needed.

Terry

Dumont, NJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

I also have reflux and had surgery for it before Celiac was diagnosed. I am now being tested for Lupus because of all the joint pain and the fatigue.

steve-o Apprentice

I had a big problem with reflux, but since going gluten free, it has totally disappeared.

Officially, I don't have celiac disease (negative biopsy & bloodwork only showed elevated IgA Anti-Gliadin), so I've "challenged" myself a couple times, just to see what happens. As soon as I re-introduce gluten into my diet, the reflux comes back.

jknnej Collaborator

Terry,

Does Pepcid help when your reflux is really bad? The past two days I have had terrible heartburn and I do take Nexium once a day. I"m wondering if I need to up my dosage. I didn't know you could take Pepcid as well. Does it help? I've got to figure something out!

terryjean Rookie

Hi! I already take (2) 40mg Nexium daily .................. and add the pepcis to that when needed................... Yes it does help~

(1) don't eat and lay down

(2) don't eat before bed

(3)easy on spices

You can chck with your doc........... but this is what I was told! I also added 150mg of zantac before I went to the pepcid as per my doctor!

Hope it helps!

Hugs, Terry

Lesliean Apprentice

My presenting symptom was reflux and after 2 years of Pepacid I diagnosed thru Enterolab and the reflux went away within weeks of being gluten and dairy free. Also a congestion in throat and nose and ears went away. Only then did I realize all the gastro problems had not been normal. As well as irregular periods, heart rate...

KAthyB Newbie

My 19 yr old celiac daughter was up to 40mg nexium 2x daily and xtra strength pepcid 2x daily and a 3rd nexium if needed after a ph probe on meds showed that the usual dose was not blocking enough of the acid. She decided on her own to take a "drug holiday"....24 hours off meds...she learned that these "holidays" are often helpful in one of her nursing lectures...(never skip insulin)....she resumed the following day starting at one Nexium one hour before her dinner and the reflux is very much improved. She did this on her own....I would not recommend trying this without a doctor's advice...but she feel so much better...she was looking inot surgeries but was told that they are risky....she agrees that reflux is probably worse if she gets some gluten...this usually only occurs when she eats out and is not assertive enough about the cross contamination issues.

Kathy

  • 1 month later...
griffithkat Newbie
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have been to the hospital twice for reflux nothing seem to help. I went to the health food store and they gave me activated charcoal...It's a miracle.. I never go anywhere without some. It knocks the pain out within 10 minutes

judy05 Apprentice
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have it so bad that I was diagnosed in 2003 with Barrett's Ring around the esophagus. I thought all I had was occ. heartburn. I urge all of you who have reflux to be "scoped" (endoscopy). This is nothing to fool around with, it can turn to cancer, especially in men. Just another thing we have to worry about. I take Prevacid every day and I have to be checked for the rest of my life.

judy05 Apprentice
yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

<{POST_SNAPBACK}>

Be sure you have the EGD if you haven't already!

Guest BellyTimber

Yes I get this sort of thing especially a cough that has lingered a couple of months.

Perhaps I need to get it checked alongside my migraines.

:rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    4. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    5. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,758
    • Most Online (within 30 mins)
      7,748

    danetta
    Newest Member
    danetta
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.