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Bloodwork After Diagnosis?

Mizzo

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Mizzo Enthusiast
Mizzo
Posted

My DD was diagnosed in April both blood and endoscopy confirmed. We had a nutritionist mtg and have followed up cholesterol and healthy lifestyle (DD has very high BMI) visits with Pedi since last mtg with Gastr doc.in May.

Are we supposed to do follow up blood work for Celiac because I haven't heard from that doc since diagnosis. Am I supposed to be hounding our Pedi or Gi about it?

What does everyone else do after first diagnosis?

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GFinDC Veteran
GFinDC
Posted

Some people get follow-up blood work to verify their diet is successful. This is probably more useful for people who don't have GI or other symptoms that the can clearly match up to gluten ingestion.

I get very clear symptoms from gluten so there is not much point in following up with blood tests for me. I already know if I have been getting glutened and don't need a test to tell me that. But there are people who get no symptoms and for them a test would be useful.

Lunabell Apprentice
Lunabell
Posted

My daughter's GI said that she would do follow up blood work in a year. She said that she doesn't expect the numbers to be normal by then, but that they should be much better. Then we will do it again in 2 years and that she expects it to be normal. Like GFinDC said, she is doing it to be sure that the diet is working.

I assume that she will give me the orders and that I can get the blood drawn at our ped. That is what we do with my oldest's trileptal levels when her neuro orders them.

sassiskull Rookie
sassiskull
Posted

My DD gets routine blood work drawn per her GI. She was diagnosed last March. It is to test her levels to help us with her diet and make sure her levels are decreasing. My daughter only has 2 classic symptons, only constipation and irritablitly (although she is 3 so sometimes she is just acting 3 ) I hate to put her through the extra pokes (we are due this week) but in some ways I am thankful since it is helping us since she doesnt complain of stomache aches. I wonder if she gets them or not. She sometimes says her belly hurts but its actually that it is dinner time and she is probably hungry. I have talked to adult Celiacs in our area and I hate to say the care is terrible, with pediatrics these kids get follow up bloodwork, annual meetings with nutritionists, adults get a diagnosis and a brochure :( I feel the care should be the same.

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      Contact them.
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