Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Susceptible To Illness?


Loey

Recommended Posts

Loey Rising Star

My understanding of Celiac is that the damage to the gut wall means that proteins from other foods and other ? can pass into the body and be seen as invading pathogens. Usually foods are broken down and absorbed before they pass through the gut wall, and so do not appear as invaders by the immune system. This adds stress to all the systems, alows opportunistic things like candida to take hold, and also means that the body does not get enough nutrients required for a healthy immune system. The organs get stressed, like the liver whose role is to break down the toxins. The net result is that there is a tendency to get a systemic breakdown, our immune systems are less effective, so we are more susceptible to illness, and gluten appears to be a fundamental culprit behind this. Other food intolerances like lactose, soy etc often appear to be made better by fixing gluten issues. I also suffer from allergies to dust mite and cold water urticaria (hives), and it appears these are linked to the damage caused by gluten. Unravelling the cause and effect chain is not easy but it seems like a very sure bet if you can succesfully get gluten out of your diet, over time (6 months to 5 years), overall health should improve. As you get older the longer it takes to recover. It is critical to be disciplined with gluten and other foods for at least 6 months - 1 year, gluten avoidance needs to be lifelong, other foods might be tolerated after time. I have been working through this for around 3 years, and made numerous mistakes and assumptions by being over confident, ignorant or ill disciplined, yet I have have had moments of excellent health that give me hope I will get on top of this. Forums like this where we exchange experiences are invaluable.

Thank you for your informative and thoughtful reply. I wasn't as strict as I should have been over the holidays (remained totally gluten-free but didn't adhere to IBS restrictions) and I'm still paying for it. I'm changing doctors and have heard excellent things about my new one. My appointment is on the 20th and I'm counting the day. I did finally get over the bug I had but think I was CC'd at the New Year's party I attended. in the future I'll bring a ziplock bag of food. it was the first time we met everyone in our neighborhood (we just moved to a new city and state in June) so I was concerned about looking batty. When it comes to health I don't think it should matter and I learned my lesson.

Wishing all of you a healthy and happy New Year,

Loey

P.S. my old GI in NJ thought that my Celiac had gone undiagnosed for decades.

  • 7 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
On 12/28/2010 at 12:58 PM, Gemini said:

 

 

Low white cell counts are entirely normal for people with autoimmune conditions, especially multiple autoimmune problems. I have had life long low white cell counts, which did not improve with the gluten-free diet. Even though all my nutritional deficiencies are now gone and it's been 6 years gluten-free for me, I still have low white cell counts yet I am never sick. I don't catch colds, I have never had the flu and have been around sick people for the past month and haven't become ill. All of their illnesses are highly communicable also. I attribute this to an awesome diet, lots of exercise and the fact I do not share food or drinks with anyone, due to risk of CC for gluten.

 

It sounds like you are still in the healing process and it does take time for things to improve. It took me 3 years, total, to get back to normal. I didn't get sick that much before diagnosis, which is bizarre considering I was suffering from advanced malnutrition. However, now I seem to do very well, even with exposure to germs and bacteria. You'll get there....be patient!

OK...old posts but I thought I would update.  I have been gluten-free for 13 years and had my blood work done recently.  I was gob smacked to see that, for the first time in my adult life, my white cell count is in the normal range!  I asked the doc if they mixed up my blood with someone else's.  :lol:  The scale starts with normal being 3.8 and that is what mine was.  OK, I just barely passed but I always had counts in the 2's, up to 3.0 for a high.  So, I think you can raise them up, I just didn't expect to see it take this long but I am almost 59 so probably the age thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlorietaKaro's topic in Super Sensitive People
      4

      Am I nuts?

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      4

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      4

      Am I nuts?

    4. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    5. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.