Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Susceptible To Illness?


Loey

Recommended Posts

Loey Rising Star

My understanding of Celiac is that the damage to the gut wall means that proteins from other foods and other ? can pass into the body and be seen as invading pathogens. Usually foods are broken down and absorbed before they pass through the gut wall, and so do not appear as invaders by the immune system. This adds stress to all the systems, alows opportunistic things like candida to take hold, and also means that the body does not get enough nutrients required for a healthy immune system. The organs get stressed, like the liver whose role is to break down the toxins. The net result is that there is a tendency to get a systemic breakdown, our immune systems are less effective, so we are more susceptible to illness, and gluten appears to be a fundamental culprit behind this. Other food intolerances like lactose, soy etc often appear to be made better by fixing gluten issues. I also suffer from allergies to dust mite and cold water urticaria (hives), and it appears these are linked to the damage caused by gluten. Unravelling the cause and effect chain is not easy but it seems like a very sure bet if you can succesfully get gluten out of your diet, over time (6 months to 5 years), overall health should improve. As you get older the longer it takes to recover. It is critical to be disciplined with gluten and other foods for at least 6 months - 1 year, gluten avoidance needs to be lifelong, other foods might be tolerated after time. I have been working through this for around 3 years, and made numerous mistakes and assumptions by being over confident, ignorant or ill disciplined, yet I have have had moments of excellent health that give me hope I will get on top of this. Forums like this where we exchange experiences are invaluable.

Thank you for your informative and thoughtful reply. I wasn't as strict as I should have been over the holidays (remained totally gluten-free but didn't adhere to IBS restrictions) and I'm still paying for it. I'm changing doctors and have heard excellent things about my new one. My appointment is on the 20th and I'm counting the day. I did finally get over the bug I had but think I was CC'd at the New Year's party I attended. in the future I'll bring a ziplock bag of food. it was the first time we met everyone in our neighborhood (we just moved to a new city and state in June) so I was concerned about looking batty. When it comes to health I don't think it should matter and I learned my lesson.

Wishing all of you a healthy and happy New Year,

Loey

P.S. my old GI in NJ thought that my Celiac had gone undiagnosed for decades.

  • 7 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
On 12/28/2010 at 12:58 PM, Gemini said:

 

 

Low white cell counts are entirely normal for people with autoimmune conditions, especially multiple autoimmune problems. I have had life long low white cell counts, which did not improve with the gluten-free diet. Even though all my nutritional deficiencies are now gone and it's been 6 years gluten-free for me, I still have low white cell counts yet I am never sick. I don't catch colds, I have never had the flu and have been around sick people for the past month and haven't become ill. All of their illnesses are highly communicable also. I attribute this to an awesome diet, lots of exercise and the fact I do not share food or drinks with anyone, due to risk of CC for gluten.

 

It sounds like you are still in the healing process and it does take time for things to improve. It took me 3 years, total, to get back to normal. I didn't get sick that much before diagnosis, which is bizarre considering I was suffering from advanced malnutrition. However, now I seem to do very well, even with exposure to germs and bacteria. You'll get there....be patient!

OK...old posts but I thought I would update.  I have been gluten-free for 13 years and had my blood work done recently.  I was gob smacked to see that, for the first time in my adult life, my white cell count is in the normal range!  I asked the doc if they mixed up my blood with someone else's.  :lol:  The scale starts with normal being 3.8 and that is what mine was.  OK, I just barely passed but I always had counts in the 2's, up to 3.0 for a high.  So, I think you can raise them up, I just didn't expect to see it take this long but I am almost 59 so probably the age thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,138
    • Most Online (within 30 mins)
      7,748

    Monaouz
    Newest Member
    Monaouz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.