Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs And/or Crones Disease

brukala

Recommended Posts

brukala Newbie
brukala
Posted

I was diagnosed in August of 2010 after a month long illness spent in bed. I returned to my life in Guatemala and contracted H. Pylori bacteria. The bacteria caused inflammation from my esophagus all the way through to my bowels. I have since treated it and am back in the states for more tests. I went in for another endoscopy and my GI is not convinced I have Celiacs. My B12 levels are extremely low and I still have lots of white blood cells in my stool. I am now postponing my trip back for a colonoscopy because he now thinks I might have Crones disease. Has anyone ever gone through this? I feel like he wants to disprove my blood test even though he said he has never seen anyone with a test as high as mine (5.75). I have been living a gluten free diet since my diagnosis (learning the hard ways sometimes). I know that gluten makes me terribly sick with headaches, bloating, nervousness and D. Is Crones common amongst those with Celiacs or are the symptoms related?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I was diagnosed in August of 2010 after a month long illness spent in bed. I returned to my life in Guatemala and contracted H. Pylori bacteria. The bacteria caused inflammation from my esophagus all the way through to my bowels. I have since treated it and am back in the states for more tests. I went in for another endoscopy and my GI is not convinced I have Celiacs. My B12 levels are extremely low and I still have lots of white blood cells in my stool. I am now postponing my trip back for a colonoscopy because he now thinks I might have Crones disease. Has anyone ever gone through this? I feel like he wants to disprove my blood test even though he said he has never seen anyone with a test as high as mine (5.75). I have been living a gluten free diet since my diagnosis (learning the hard ways sometimes). I know that gluten makes me terribly sick with headaches, bloating, nervousness and D. Is Crones common amongst those with Celiacs or are the symptoms related?

Crohn's is an autoimmune disease same as Celiac. And with autoimmune diseases often when there is one there is many - so yes, absolutely possible to have both.

Have a look at this article that is on this site. It talks about how there is a high prevalence of Celiac in Crohn's disease sufferers.

https://www.celiac.com/articles/915/1/Celiac-Disease-Prevalence-High-in-Patients-with-Crohns-Disease/Page1.html

Good luck - but it sounds like you have a really good Dr who is trying to cross the t's and dot the i's

mushroom Proficient
mushroom
Posted

I was diagnosed in August of 2010 after a month long illness spent in bed. I returned to my life in Guatemala and contracted H. Pylori bacteria. The bacteria caused inflammation from my esophagus all the way through to my bowels. I have since treated it and am back in the states for more tests. I went in for another endoscopy and my GI is not convinced I have Celiacs. My B12 levels are extremely low and I still have lots of white blood cells in my stool. I am now postponing my trip back for a colonoscopy because he now thinks I might have Crones disease. Has anyone ever gone through this? I feel like he wants to disprove my blood test even though he said he has never seen anyone with a test as high as mine (5.75). I have been living a gluten free diet since my diagnosis (learning the hard ways sometimes). I know that gluten makes me terribly sick with headaches, bloating, nervousness and D. Is Crones common amongst those with Celiacs or are the symptoms related?

Welcome to the board!

I am so sorry to hear you are continuing to have problems. Can you tell us how you were diagnosed - blood test only, biopsy only, or both? And was this with the same GI you are seeing now? What symptoms does he now think indicate Crohn's disease? It is not unknown to have both celiac and Crohn's but I would wonder why he is considering this. Anyway, a colonoscopy is a good way to rule it out. :) H. pylori can certainly play havoc with the GI system, and low B12 has a definite association with celiac disease. How long had you been gluten free before the second endoscopy? Because if any length of time had passed on a gluten-free diet, healing should have taken place in the gut and it may well be that you would be negative on the second test - which is a good thing :D I do not understand your test number of 5.75. What test was this, and what was the reference scale the lab used for it?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,143
    • Most Online (within 30 mins)
      7,748
    Tracy Williams
    Newest Member
    Tracy Williams
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.