Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leap Mrt Test Results


Jenny Leigh

Recommended Posts

Jenny Leigh Rookie

I thought I would start a new topic, as my original thread is getting very long winded and this topic possibly deserves it.

Here is my original thread if you would like to view my story, undiagnosed symptoms, and many doctor failures:

I will make one more post on that thread leaving a link to this one in case someone needs it to follow along.

Before I go over this I would like to point out that I have been STRICTLY gluten free for 4 weeks (including body products). Yesterday and today I binged on gluten and have not had a single negative impact so far... leading me to think gluten free may not be my path.

LEAP MRT test:

It is by Signet Diagnostics, and is a blood test measuring food sensitivities (not allergies, and not intolerances... so Celiac and gluten intolerance it wouldn't pick up) to 150 different foods. Food sensitivities give a delayed negative impact. Basically, I'd eat shrimp today and get D tomorrow... The test is new, and I'm sure not devoid of controversy. Going to work with a dietitian based on these results for an elimination and rotation diet. Apparently food sensitivities can change based on how much you consume 1 food.

Test Results:

Reactive to the following:

- Sodium Metabisulfite

- Sodium Sulfite

- FD&C Green #3

- Mint

- Peach

- Tilapia

Moderately Reactive to the following... worst in italics:

- Fructose, Lecithin, Ibuprophen, Salicylic Acid, Cottage Cheese, Cow's Milk, Cane Sugar, Banana, Mushroom, Green Pepper, Buckwheat, Millet, Barley, Rice, Shrimp, Egg, Lamb, Turkey, Cola Nut, Baker's Yeast, Lentil, Peanut, Cashew, Pecan, Pistachio, Almond, Lima Bean

My thoughts on the results:

First off, I have felt better since going gluten free, but the lack of any negative impact from my gluten binge has me thrown.

Okay, the milk and shrimp thing I understand. I've had reactions to those specifically. The sulfites I get, because I've become intolerant of wine :( . Now, gluten free has *forced* me off of all processed foods, so almost removing sulfites from my diet aside from the raisins... maybe that is why I feel better?

MINT??? Are you serious???? I would have *never* even guessed that. Considering toothpaste and mouthwash I consume mint every day. Peaches and tilapia I very rarely consume and can't think of a specific reaction to them, but that was before I was paying attention to food.

I begin the recommended elimination diet on 1/5/11. If there is enough interest in this topic, I will update you as to the results of my diet. I *must* gain at least 25 pounds for me to consider myself back to normal. So there is my new years resolution...

Let me know what you think of this, and if you want any updates. I'm going to talk to the dietitian about going back on gluten free and see what she thinks, but I'm beginning to think I don't actually have a gluten intolerance... I remain unconvinced of everything though... :/ See my profile page for results of every blood test I have had done in the past year to figure this out if you have any questions about previous tests.

Happy new year and may this year be better than the last!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I don't know anything about those blood tests so I won't address those. What you are doing by binging on gluten is a challenge. Keep it up daily for a week. It can take up to a week for a reaction to appear. Also keep in mind that symptoms that are not tummy related may appear before the upset stomach, fatigue, depression or anxiety, muscle and joint pain etc. may appear first. It took 3 days back on gluten before I reacted and my doctor said that was normal and was why he told me to only add one item at a time for a full week on my elimination diet.

Skylark Collaborator

LEAP is definitely not devoid of controversy. As far as I know, LEAP will not pick up celiac disease. They are not looking at the right cells.

I can eat a little wheat sometimes with no obvious consequences; other times I react to ridiculously low amounts of CC. It's not predictable but I feel dramatically better on a very strict gluten-free diet. I would not take a lack of reaction to one day of eating wheat as evidence either way for celiac. You need to go back to a full gluten diet for a few weeks and see if the symptoms that went away return if you are not convinced gluten is an issue. Remember that gluten has more subtle effects on people than only celiac. Some people are sensitive to wheat germ agglutinin and others are sensitive to opiod-like peptides present in gluten and casein.

If I were you, I would look at the RPAH failsafe diet for food chemical sensitivity rather than unproven tests like LEAP.

Open Original Shared Link

Jenny Leigh Rookie

I don't know anything about those blood tests so I won't address those. What you are doing by binging on gluten is a challenge. Keep it up daily for a week. It can take up to a week for a reaction to appear. Also keep in mind that symptoms that are not tummy related may appear before the upset stomach, fatigue, depression or anxiety, muscle and joint pain etc. may appear first. It took 3 days back on gluten before I reacted and my doctor said that was normal and was why he told me to only add one item at a time for a full week on my elimination diet.

I've started to feel a bit down today... tired, mild headache, grumpy, jumpy vision. It isn't a strong enough reaction yet for me to think it is truly gluten (yet). I'll continue with the gluten challenge until Tuesday night, when my diet with the dietitian begins. I'll speak to her about it.

LEAP is definitely not devoid of controversy. As far as I know, LEAP will not pick up celiac disease. They are not looking at the right cells.

I can eat a little wheat sometimes with no obvious consequences; other times I react to ridiculously low amounts of CC. It's not predictable but I feel dramatically better on a very strict gluten-free diet. I would not take a lack of reaction to one day of eating wheat as evidence either way for celiac. You need to go back to a full gluten diet for a few weeks and see if the symptoms that went away return if you are not convinced gluten is an issue. Remember that gluten has more subtle effects on people than only celiac. Some people are sensitive to wheat germ agglutinin and others are sensitive to opiod-like peptides present in gluten and casein.

If I were you, I would look at the RPAH failsafe diet for food chemical sensitivity rather than unproven tests like LEAP.

Open Original Shared Link

Yes, the MRT will most certainly NOT diagnosis anyone with gluten intolerance or Celiac... so it is absolutely not a substitute for a test through a gluten free diet and then a gluten challenge. I took this test to see if there was anything else going on, so I could better tailor an elimination/rotation diet from it. Considering I *have* felt better since being gluten free, I will probably dive back into gluten free once I am done with this gluten challenge and working with the dietitian.

I had also been casein free for about 3 weeks and started eating yogurt again this weekend as well. Still waiting on a significant response from both of these proteins.

Thank you for the link! I'll definitely check it out because I have noticed I've become annoyed by scented and cleaning products recently.

Since I've already paid for the MRT testing and gotten some results, I'm going to run with it for now. I know that it will not catch everything... so if my initial few weeks of elimination based on it are not cutting it, then I will go more strict with the RPAH elimination. Wish I had found that RPAH diet earlier...

Thank you both for your responses! Sure hope this all works out!

ravenwoodglass Mentor

You mention that you are also adding in yogurt at the same time as you are doing the gluten challenge. That is not a real good idea as it may make it hard to tell which you are reacting to. It is best to challenge with one item at a time to avoid confusion. Also be aware that not all dietians are knowledgeable about gluten and celiac disease. Yours may be but be prepared in case he or she isn't.

jorge0464 Rookie

Hi girl,

If I were you, I will send an stool sample to Enterolab to be tested. It is rare Enterolab will give you a false negative. Another thing you should look at is an intestinal fungal overgrowth. (candida) It is thought candida can trigger Celiac disease or gluten intolerance. An intestinal fungal overgrowth can cause a fall of health problems.

Jorge.

Skylark Collaborator

Enterolab is as poorly validated as LEAP.

Good luck with the elimination and RPAH diet. I really hope you figure out what is causing your troubles!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    2. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    3. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    4. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    5. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.