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Gluten Free And Fibromyalgia


TevyIndgio

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TevyIndgio Newbie

I started on a gluten free diet three weeks ago. I have been faithful to the diet, and not eaten anything with gluten in it. Before the diet, I consumed mass amounts of wheat and bread. For the past 3 weeks, my stomach have felt wonderful, no more upsets, cured of indigestion, and I feel great after I eat. However, I have been experiencing muscle pains ranging from mild, to extreme pain. I believe it to be fibromyalgia or perhaps extreme fatigue. I was wondering if anyone else has experienced these symptoms. I've heard that people can go through withdraw from gluten when going on this diet and I thought this could be one of the reasons.


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Luddie Newbie

I started on a gluten free diet three weeks ago. I have been faithful to the diet, and not eaten anything with gluten in it. Before the diet, I consumed mass amounts of wheat and bread. For the past 3 weeks, my stomach have felt wonderful, no more upsets, cured of indigestion, and I feel great after I eat. However, I have been experiencing muscle pains ranging from mild, to extreme pain. I believe it to be fibromyalgia or perhaps extreme fatigue. I was wondering if anyone else has experienced these symptoms. I've heard that people can go through withdraw from gluten when going on this diet and I thought this could be one of the reasons.

You might want your doc to check your calcium/magnesium levels. Also Vitamin D. I've been going through pain now for about 8 months and still trying to figure out what the bleep is going on! Slowly, oh so slowly, I seem to be "back on track" but it's really wearing to hurt every morning! Good luck!

BethM55 Enthusiast

I, too, have fibromyalgia. I've been gluten free for 2 years, and it's kinda hard to remember the early days. But I do remember increased muscle and joint pain initially, and some depression, too. Hang in there, it will get better.

I'm not cured, but my new rheumatologist told me I'm a 'success story', because I am able to work part time and maintain a fairly normal life. When I get glutened, I feel it in joint and muscle pain, back pain, fatigue... all the fibro symptoms crash back in, with some GI symptoms added in for fun. For awhile I was doubting that gluten was the culprit, but after an inadvertent but obvious gluten contact, it was pretty obvious to me.

I had hoped for a miracle cure, but for whatever reason, the fibro is still there. But it's better, and I'm grateful.

Another big help was discovering that my vitamin D levels were very low, which is common in fibro folk. Taking prescription levels of Vitamin D for several months helped immensely. I take over the counter D supplements now, and my levels have stayed within normal levels.

GFreeMO Proficient

I have celiac, fibro and CFS. What I have been told is that since Celiac is an autoimmune disease and our bodies are fighting this off constantly, it can lead to CFS and or fibro. I have been gluten free for almost 2 years and have not noticed and difference in my fibro or CFS. I have however noticed a HUGE difference in my bowel and stomach issues and dh on my knees is gone. It comes back if I get glutened by CC though.

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    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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