Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation/diarrhea


BamBam

Recommended Posts

BamBam Community Regular

Do you think after a certain amount of time being gluten free, that a body can become more regular? I get tired of being "un-regular" for so long. Just wondering.

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

I think for most improvement comes after being gluten-free for a while. Although some notice immediate improvement. It took me a while to notice... How long have you been gluten-free for?

jenvan Collaborator

Just looked at your signature :) So you've been strictly gluten-free since August of last year?

  • 2 weeks later...
BamBam Community Regular

Hi Jenvan

I have been, I would say a good 95% gluten free. I've had a few slip ups with a couple of things. When I have absolutely no gluten, I feel absolutely wonderful, mind, body and soul, but a little bit sneaks in and it just wreaks havoc with my mind, body and soul. I am getting better and better at it all the time.

Can you suggest some shampoos and conditioners that are gluten free. I have access to a Wal-Mart and an Albertsons Grocery Store.

Thanks

BamBam

KaitiUSA Enthusiast

Yep, that little bit can just cause your body to go all out of wack.

As far as shampoos/hairspray/conditioners/bar soaps-I use Dove. Dove has a policy like Kraft does and will not hide anything on labels. I know some people on here use some different brands though.

Softsoap has liquid soap that is gluten free

Also, make sure makeups are gluten free(especially lipstick) The whole Bare Escentuals line is gluten free

jenvan Collaborator

I switched to Bare Escentuals lipsticks/gloss after diagnosis--they are great! Benefit says their lipsticks are gluten-free too. Pantene is gluten-free, and suave is mostly gluten-free--look at their label, they will list gluten ingredients if present. I used to use estee lotions, but switched to neutrogena. They have a lot of gluten-free products. Go here to see their gluten-free list: Open Original Shared Link Clearsil's total control and original blue line are both gluten-free. I use their face washes. Products can be hard. It took me a long time to weed through my lipstick and lotions. And I love makeup and products, so I had to part with a lot of stuff--think I threw away like 15 tubes of lipstick !! Good luck--your work will pay off!

Carriefaith Enthusiast

If everything is gluten-free and uncontaminated you may notice an improvement. I didn't start to notice hudge GI improvements until 10-11 months into the diet. But this only only after I had re-evaluted my diet and found that I was eating gluten-free Humpty Dumpty corn chips produced on the same line as gluten chips. Once I quit the chips I got better. I have also reacted to suncreen, so make sure you check that as well, Banana boat is fine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BamBam Community Regular

Carriefaith and GenVan and KaitiUSA

What symptoms do you get if you accidently eat gluten? I know it is different for all of us.

BamBam

Carriefaith Enthusiast

I have only had gluten through contamination or accidents since going gluten-free. When I get contaminated I'll have GI trouble (gas, bloating, D), fatigue, lack of energy, brain fog, dizziness, mild-severe upper abdominal pain, and just recently dh (Dermatitis Herpetiformis).

KaitiUSA Enthusiast

When I get glutened I get nausea, anxiety, fatigue, brain fog(completely out of it/lack of concentration)and constipation

Carriefaith Enthusiast
brain fog(completely out of it/lack of concentration)
:lol: I know it's not funny, but I get the exact same thing... so I can so relate, I just had to laugh. I don't even trust myself to drive!
jenvan Collaborator

I echo Carrie and Kaiti--major fatigue, loopiness, headache, just feel really out of it, constipation or diarrhea sometimes too...

BamBam Community Regular

KaitiUSA - I am paying more attention to my shampoos and things, and they all have wheat. I was using a Tresemme conditioner - wheat, one of the Suave sets of shampoo and conditioner - both have wheat and my St. Ive's lotion has a wheat oil in it. I really didn't think these things made a difference. So I went to the store and bought some other items that have no wheat. I always get water and stuff in my mouth when I am showering. I never would have thought there was wheat in these things. I also called AVON and they are sending me a ingredient list for their foundations, lotions, lipsticks and hair care products.

KaitiUSA - GenVan - Carriefaith

Now for the symptoms gals. I was on a camping trip. I ate some marshmellows that had modified food starch in them. I do not remember the brand name. I also ate in a Chinese restaurant, I ate Fried Rice and Pork. Shen said there was no wheat involved in the cooking of the fried rice and pork. But I totally forgot about soy sauce, and so am not sure what I ate. ANYWAY, yesterday, horrible abdominal pain, several trips to the bathroom, bloated and burping, and I am tired, fatigued, feel like crap and just do not have a good spirit about things. So I could basically guess that I have been glutened? How long will this last do you think. I have lots of traveling to do this week, and I would like to get my energy back before I go.

It is so hard when I get glutened. I work in a customer service type job and many times I am by myself and it is hard to run to the bathroom every 20 or 30 minutes until I get it out of my system.

Hopefully I am on a better track right not, I threw away all those wheat filled shampoos conditioners and lotions and have some better stuff. Besides the words wheat, barley, rye and oats, are there some other words that I need to watch for?

Thanks for all your help you gals, I really appreciate it. Here I thought I had most everything figured out, and actually I think I am back to first or second base!

BamBam

BamBam

Carriefaith Enthusiast

Yes, it does sound like you have been glutened and it was probably the soy sauce in the chinese food. It takes me about 2 weeks to feel better after a contamination.

Here is a list of things to look out for: https://www.celiac.com/st_prod.html?p_prodi...-50105590050.a4

jenvan Collaborator

BamBam-

Go here to read a list I posted of gluten-containing ingredients in makeups/products. It makes it easier to spot things. Open Original Shared Link

As for your symptoms, it certainly sounds like you may have been glutened. I think its more likely by the chinese than the marshmallows, but you never know. Remember the brand name on the marshmallows? As for chinese--I've never heard of fried rice made w/o soy sauce, so its probably a safe bet that meal wasn't gluten-free!

I can relate on thinking you have it all figured out, and then realizing you don't! I have been gluten-free for a little while before I realized my MAC lip conditioner had two kinds of wheat ingredients in it! Good luck girl!

jknnej Collaborator

Hi Bambam,

Another thing you can try that helped me is if you don't already, take daily fiber. I take Citrucel clear mix and it helps keep me free of diarrhea/constipation.

Of course if you're being glutened, that's a different story. But if you're not ingesting gluten and still not regular, try the fiber (if you don't already.) Hope this helps!

jennifer

Guest kmmolina

Hi, I am just now reading all these posting...I didn't realize that I needed to be careful with hand soaps, etc. What about laundry soap? Softener? Just when I think I am understanding the scope of this thing...I see something else I didn't even think of. CarrieFaith...you said something about dizziness. Is this a sympton of celiac disease? I have spurts of dizziness all the time. Sometime it feels like I'm going to faint. I was afraid it was my heart or something...Kathleen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.