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Possible Celiac Or Gluten Intolerance?

justjen

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justjen Rookie
justjen
Posted

Hi I'm new here! My name is Jen and I have had horrible GI issues for as long as I can remember.

For two years I have barely had a day where my tummy has felt "ok" I saw a GI in 09 and they diagnosed me with a Hiatal Hernia of the esophagus and IBS.

They flat out refused to test for celiac even tho the ONLY symptom I do not have according to the Dr's is weight loss. But..I do know celiac's and most of them developed it in adult hood and did not have the rapid weight loss.

So I lived with it and I'm seeing a new GI next week and I hope this one listens to me.

I've gotten to where I can't hardly eat and everytime I do, I bloat and cramp and all sorts of nasty side effects. I also developed anxiety attacks and insomnia over this because I don't have one moment where I feel normal. But I don't want to try going gluten free untill I talk to my dr incase they want to do testing. Sigh....

I guess I'm tired of feeling like "poo" and need to talk to people who understand

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Skylark Collaborator
Skylark
Posted

I hope your new GI listens! I sure understand feeling like "poo". Sometimes doctors seem so stubborn.

If all else fails you could try getting a Biocard home test kit. Open Original Shared Link They are Canadian but there is a number to call for US inquiries. It is a TTG IgA blood test you can do at home.

justjen Rookie
justjen
Posted
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thanks for the link!!! :)

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      how much gluten do I need to eat before blood tests?

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