Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Levothyroxin


coffeetime

Recommended Posts

coffeetime Explorer

About a week and a half ago my doctor put me back on thyroid medication after looking at all my numbers and not just the "normal" TSH. As I had used thyroid meds for many years in the past I'm excited about having some energy again and hopefully my weight will either stabilize or drop instead of this constant creeping up. My question is has anyone had any problems with this med, the manufacture is Lannett, the pharmacy assures me there is no gluten in this product but I have had migraines almost every day for a week and a half and that is the only new product in my life and migraines are my only "symptom" of being glutened. Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

All Lannett products are gluten free.

-----Original Message-----

Sent: Tuesday, March 02, 2010 9:35 PM

To: CustomerService

Subject: Website - Info Request

Comments: My mail order pharmacy just recently outsourced to your

company for a prescription I take. I take levothyroxine 112 mcg. I

need to know if this product is produced with gluten containing

ingredients. I have celiac disease and do not want to consume any medication with gluten inadvertantly. Thanks.

coffeetime Explorer

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

burdee Enthusiast

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

coffeetime Explorer

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

I was given generic levothyroxine by Lannett. I checked their website and their inactive ingredients, along with lots of color additves are Inactive Ingredients

Colloidal silicon dioxide, lactose, magnesium stearate, microcrystalline cellulose, corn starch, acacia and sodium starch glycolate. I don't have issues with lactose but I don't know what acacia is. I don't have any hyperthyroid symptoms and my T3 number was normal it was the T4 that was low

Tigercat17 Enthusiast

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

coffeetime Explorer

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

Thanks for the info, I am going to speak to the pharmacy again tomorrow to see if they will perhaps try this brand. Hope it helps :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.