Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here Need Help


mylilcappi

Recommended Posts

mylilcappi Newbie

hi,

i have just been dx barring an biopsy.

i am wondering about so many things, but right now i am wondering about vitamin e. i want to take fish oil, and i have been using Carlson's fish oil liquid. But it has vitamin e in it. Aren't we supposed to stay away from vitamin e? tocepherols?

Thanks very much,

mamie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Actually E is one of the vitamins Celiacs are often deficient in.

The only reason to avoid E would be if you are intolerant of Soy.

There is non-soy derived vitamin E but many Vitamin E's are Soy cause it is cheap I think.

I think what you may be referring to is if E is derived from wheat germ.

In the US, it would have to be labeled as containing wheat if that were the case.

mylilcappi Newbie

Actually E is one of the vitamins Celiacs are often deficient in.

The only reason to avoid E would be if you are intolerant of Soy.

There is non-soy derived vitamin E but many Vitamin E's are Soy cause it is cheap I think.

I think what you may be referring to is if E is derived from wheat germ.

In the US, it would have to be labeled as containing wheat if that were the case.

thank you.

So you are basically saying that in the U. S. if Vitamin E were on the label, then it would have to be labeled as coming for "wheat". like for instance, i just drank some oj that has a little vitamin e in it. But it just states vitamin e. So it should have said derived from wheat?

i'm still learning, and so confused about many things..

Mamie

shopgirl Contributor

No, in the U.S., if it is derived from wheat, then it must clearly be labeled. If it isn't labeled as deriving from wheat, then it doesn't contain wheat. If it just says topcopherols or Vitamin E, it's fine.

In the U.S., wheat must be labeled on the package.

mylilcappi Newbie

Thank you.

Mamie

ravenwoodglass Mentor

thank you.

So you are basically saying that in the U. S. if Vitamin E were on the label, then it would have to be labeled as coming for "wheat". like for instance, i just drank some oj that has a little vitamin e in it. But it just states vitamin e. So it should have said derived from wheat?

i'm still learning, and so confused about many things..

Mamie

In the case of orange juice I do think it would have to say derived from wheat. In vitamins and supplements however the labeling laws are different. In the case of supplements it is best to call the maker and ask.

FarmCat Newbie

I'd like to clear up a misconception I commonly see on these boards. The US laws that require food manufacturers to clearly label allergens DO NOT APPLY to vitamins or to medications. If your vitamins or meds say 'starch', it could be wheat starch. I Googled this and found the following sources:

Open Original Shared Link

Since the Food Allergy Labeling Consumer Protection Act (FALCPA) does not apply to medications, drug companies are not required to put allergy warnings on their labels. The lack of an allergy warning doesn't guarantee a lack of allergens in a medication.

Open Original Shared Link

The Food Allergen Labeling Consumer Protection Act (FALCPA) was passed by the Food and Drug Administration (FDA) in 2006 to require manufacturers to identify the use of the top eight allergens. These allergens are eggs, dairy, soy, tree nuts, peanuts, fish, shellfish, and wheat. Unfortunately, vitamins fall under the category of


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,287
    • Most Online (within 30 mins)
      7,748

    Desert Ratt
    Newest Member
    Desert Ratt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.