Help With Test Results

[ladymiss]

Hi all, I want to thank everyone for sharing their stories and information. I've learned so much in the last few weeks and I've been impressed by the support to be found here.

I have my test results in hand, after receiving the phone call that said 'you're negative for celiac'. I now wonder if the tests performed were even enough to say that conclusively (as far as possible...). It seems the full celiac panel wasn't pursued.

So for you old pros, can you please give me your thoughts on these results:

Tissue Transglutaminase Ab, IgA Result: <1.2, Range <4.0

Edomysial Abs, S (IgA) Result: Negative, Range: Negative

Also a few weeks ago, I received ELISA test results that show all things Dairy, Wheat/Gluten as High to Very High in IgG.

I have been gluten free for two weeks, after the blood test, and feel a lot better. All of this testing came about due to two months of chronic fatigue, joint pain, brain fog, low-below normal CBC tests and sudden food sensitivities/allergies. Lost 10lbs in 3 weeks-most likely due to be being afraid to eat. I've been severely lactose intolerant for a good 4-6 years, and milder a few years before that. And bouts of D and C for years- that have worsened in the last few. Highly susceptible to 'food poisoning'/stomach flu, if that's what it really was....

Along with thoughts on test results-do you think I should pursue more testing for an answer? Surely, I can just go gluten free and leave it at that...but like many here those tricky questions arise about justifying the dramatic changes to family/kitchen/choices.

Thanks!

[sb2178]

Clearly, you can definitely go gluten-free without consulting anyone. Beyond the whole complicating your social life aspect... If you feel better, that should be the primary outcome.

You have three options for additional supporting data:

1) Return to gluten and ask for a biopsy

2) Return to gluten and see if symptoms re-appear (works better if you are 3 weeks+ gluten-free). Use pure forms of it-- like plain pasta or bulgar rather than pizza and cookies-- for the best control of the possible trouble-maker.

3) Get genetic testing done. It merely means that is more likely that you could have or develop early/latent/non-celiac gluten sensitivity than the Average Joe, but it a piece of paper to throw at people, NOT that you have any disorder. Knowing that you are more likely to be celiac bound (given symptoms and resolution on diet) may make it easier to stick to it though.

G'luck.

[cassP]

they didnt test your Antigliadin antibodies.

ALSO- they only tested your Iga antibodies.. and if you are Iga deficient- then all you Iga tests would be innacurate.

Celiac and Gluten Intolerance can be very difficult to diagnose sometimes.. you may also have to consider that in the end, you may only have your body's signals to go off of.. and if you feel better gluten free- then you need to go with it for sure.

good luck