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Recent Diagnosis/suspicion

patylu

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patylu Rookie
patylu
Posted

I recently have been told to try a gluten free diet. My labs (blood and samples from a scope) are both within the normal ranges (but on the high end) for Celiac but my doctor says that I present as someone with Celiac. I've been eating gluten free since Thursday (5 days). I feel a little better most of the time but sometimes after I eat I still feel a little nauseous. Is this normal? Do I just need to give my body more time to work this all out? My doctor told me to try gluten-free for a month with the hopes that because I'm borderline for Celiac that eating gluten-free will help my stomach issues. So far I'm not so sure it's helping that much.

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Marlie Apprentice
Marlie
Posted

There is the possibility you could be getting Gluten, as it is difficult to get everything 100% gluten free to begin. Five days is a short time. It takes much longer than that for your intestines to heal if you do have Celiac.

Lisa Mentor
Lisa
Posted

Yup, it does take a while to feel better for some. Some a few days, some a few years. :o .

I would also include dairy in your elimination diet. After a few weeks many people can re-introduce dairy without issue.

And I want to add that the gluten free learning curve is pretty steep. Depend on this site to guide you through these next few weeks. That's why we're here.

And welcome! :D

patylu Rookie
patylu
Posted
  • Author

Thanks for the advice. I figured I just needed to give it more time. Eating gluten free has a big learning curve for sure. I'm hoping to be a quick study! :) I've already replaced plastic containers and cooking utensils. I'm getting ready to order some stuff in bulk online to stock up. I'm just tired of feeling so bad all the time and would like to see some improvement, you know?

cassP Contributor
cassP
Posted

Thanks for the advice. I figured I just needed to give it more time. Eating gluten free has a big learning curve for sure. I'm hoping to be a quick study! :) I've already replaced plastic containers and cooking utensils. I'm getting ready to order some stuff in bulk online to stock up. I'm just tired of feeling so bad all the time and would like to see some improvement, you know?

it really takes a good 3 to 4 weeks to feel significantly better.... i mean- in that first month- you really cant trust your reactions to anything- you could almost react to ANYTHING..

also, try to eat a really healthy gluten free diet- at least for a few months- try to avoid dairy, and gluten free breads, cereals, and cookies & treats... and even grains/complex carbs... these all can be too much for a sick digestive system to handle

patylu Rookie
patylu
Posted
  • Author

I know everyone is saying to avoid dairy but what about yogurt? It has probiotics which are also good for digestion. Can I eat that? There really aren't many breakfast foods I like and yogurt happens to be one of them.

cassP Contributor
cassP
Posted

I know everyone is saying to avoid dairy but what about yogurt? It has probiotics which are also good for digestion. Can I eat that? There really aren't many breakfast foods I like and yogurt happens to be one of them.

it just depends on your body- if you have lactose issues &/or casein issues. for ME, personally- i only eat yogurt maybe 2x a week- and i eat a Goat Milk Yogurt- it doesnt seem to bother me at all. now, if i indulge in a mocha, or anything that contains milk- i may have a little "D" the next morning... or maybe even crampy issues soon after i consume it. and cheese gives me negative effects as well.

so, idk... maybe you could try some Goat Milk Yogurt ( i get mine at whole foods).

and also, u say you get nauseaus later after eating- maybe you have some gall bladder issues??? it's common with gluten intolerance. i did maybe 5 liver flushes over the last 6 years... they're a real pain, and i only had 1 real productive one... about 400 stones came out.. or actually like 200 stones- that looked like they had all been cut in 1/2.

liver flushes are a real process tho, dont feel like going in to all the directions. but i would suggest a great tincture for the gall bladder- i get it at

www.sensiblehealth.com

it's called: Gold Coin Grass... it goes into the gall bladder and softens & dissolves any gall stones or stagnant bile... it's great really, and helps with digestion/also works like a "digestive bitter". you take 1 tbsp. 30 min before bfast. only 3 weeks on, then break, and you dont take it during a period, or if on The Pill.

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patylu Rookie
patylu
Posted
  • Author

Thanks for all the advice everyone! This might be a little too much information but it also seems like my body is going through some sort of "flush" since I've started this diet. Well, really it's not still just the first few days. I was in the bathroom A LOT on Saturday but now it's back to normal. Anyone else had similar experiences?

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

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    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
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