Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Really Know?


pacificfords

Recommended Posts

pacificfords Newbie

My question is about "gluten free" products on the market. Are they trustworthy? I am newly diagnosed, learning a great deal everyday, but wondering how much I can trust the accuracy of a product labeled gluten free. Things like Bob's Red Mill seem to be something that I can trust... and Amy's meals, but I wonder from those that have experience... can I really trust them? Are gluten free oats really okay? And packages foods labeled gluten free?

I would really love some advice. It is important that I am strict gluten free because this disease has affected my kidneys. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Many companies now have gluten-free plants or buildings to process only gluten-free . Others use the same lines to do wheat & gluten-free products but generally they are cleaned before & or after each use. Some gluten-free people will only buy from places that only do gluten-free, others who are not quite as sensitive will buy products from lines that produce wheat & gluten-free. It is a personal choice depending on how sensitive you are or will be. The rule of thumb is no more that 20ppm....to beconsidered safe....

Also some can't eat certain brands of products even if it is gluten-free.because of one or more of the other ingredients IE:some react to corn, tapioca, soy so if that is in say a Bob'sRed Mill product they would not use that product.

It is a learning curve for each person...I personally use Pamela's, some Amy's but I react to Bob's Red Mill so I don't use that ... others use Bob's with no problems at all....

Take your time & try a new item every few days that way you will beableto pinpointwhatmay or may not cause yourbody problems...

Oats gluten-free is again another choice. I never reacted to oats gluten-free or not but others cannot tolerate any oats gluten-free or not. If you are newt o the gluten-free diet you may want to hold off on oats for a year or so to give your system time enough to heal before adding oats..For some fiber & lots of protein causes problems when starting out on the gluten-free lifestyle.

I strongly believe in digestive enzymes & probiotics on the gluten-free lifestyle.

Take your time to learn all you can &you will do fine & have better restored health...

cassP Contributor

people say they have issues with Amy's because of cc... but i dont think i have... while i was itching one time from Blue Diamond Pecan Thins...

the thing is- some of these places could have cc... BUT- i think a big problem is just overdoing the gluten free substitutes- because many of these products are tested at <20ppm... and if you're really sensitive and you're eating too much- the cumulative amount of gluten may be too much for you.

the other issue- is that a lot of us Celiacs and gluten intolerants cannot handle too many grains or starches... ie: potato starch, corn starch , corn flour, tapioca, garbanzo bean flour, etc, etc, etc... it's just too much..

right now im eating certified gluten free oatmeal (premade in packets- this one is maple raisin)- but i picked most of the raisins out cause of my fructose issues. and i havent had any problems with it

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,750
    • Most Online (within 30 mins)
      7,748

    Celiac Daughter
    Newest Member
    Celiac Daughter
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.