Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family History Of Anti-Immune Diseases

scottyg354

Recommended Posts

scottyg354 Enthusiast
scottyg354
Posted

So, I've been having digestive problems for the past few years (probably about 7).

Been scoped, x-rayed, ultrasounded, bloodwork etc. Scope I had in the beginning of my episodes, everything else after. Recently was diagnosed Hypothyroid. My question is, my family on both sides have a long history of autoimmune disease.

On my mom's side:

Mom: Hypothyroid

Grandmother: Hypothyroid, Osteoperosis,

Grandfather: Hypothyroid, Type 2 Diabetic Turned Type 1

Aunt: Lupus

On my dad's side:

Dad: Type 1 Diabetic

Grandmother: Type 1 Diabetic

Grandfather: Unsure, I know he died of a heart attack.

Uncle with undiagnosed skin trouble.

Heart trouble in the whole family, plus a few cousins with Anemia.

I was also jaundice when I was born. Don't know if that plays a role in anything. Haven't been jaundice since.

Being the history of autoimmune in both sides of my family, would it be uncommon that my undiagnose stomach issues could be from Celiac. I know I keep posting, I just keeping digging deeper and deeper and I keep coming up with things that lead me to celiac.

Any input.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It is quite possible you have other undiagnosed celiacs in your family. Your family members with Type 1 diabetes should have already been tested as the NIH advises all Type 1 folks to be screened. You mention an uncle with skin issues, what are they? If they are rashes it might be a good idea for him to get biopsies for DH. It is also not uncommon for celiac to be associated with the development of other autoimmune issues or for people to have more than one autoimmune issue going on.

cassP Contributor
cassP
Posted

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

scottyg354 Enthusiast
scottyg354
Posted
  • Author

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

Well the doc agrees that I should try the diet. If it works, then I'll ask for some testing.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

i think you're on the right track for sure- and like ravenwood said- i would not be surprised in the least- if u have other members in your family with undiagnosed celiac.

in addition to the DH... even if your uncle only had psoraisis or excema- these are commonly problems for those of us with gluten intolerance- ive had it all... as has my dad- whom im suspecting is also celiac, but he wont get tested.

heart problems and anemia are also issues with undiagnosed gluten intolerance...

you must get on top of this- and get a full celiac panel done- but make sure you're eating enough gluten prior to testing...

oh, and thyroid disease is ALSO extremely common with gluten intolerance... so get on it

I actually always had extremely dry and ithcy elbows and knuckles. Almost to the point where they would crack and bleed. I wonder if that played a part. I don't know. All I know is i've had so many odd symptoms for quite a while.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years. I will check out your blog . Thanks !
    2. FayeBr
      - FayeBr posted a topic in Coping with Celiac Disease
      0

      Major Glutening

      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wro...
    3. knitty kitty
      - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      5

      Gluten Allergy

      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6. Pyridoxine helps regulate the methylation process so it doesn't run amok. P-5-P is the active form. All eight essential B vitamins work in concert together. Just taking one or two can throw the rest out of balance. If you have malabsorption as occurs in Celiac...
    4. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

      @Rejoicephd, I took high dose Vitamin D to correct my severe deficiency quickly. It's safe to do this. I felt much better once my Vitamin D level was about eighty ng/mL. Vitamin D works as a hormone and helps calms the immune system between 80 - 100 ng/mL. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee...
    5. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

      Thanks @knitty kitty for keeping me thinking about the importance of vitamins. And I appreciate you sending those papers (gives me something for my science brain to work through! I’m a PhD in biology so I like reading these sorts of things). It’s been surprising to see how little is understood about the cause of fibromyalgia. My Vit D went low again on my ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,414
    • Most Online (within 30 mins)
      7,748
    NicoleSL
    Newest Member
    NicoleSL
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
    • FayeBr
      Major Glutening

      By FayeBr · Posted

      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wrong. I had gastritis which is awful and lots of other neuro and body symptoms that I get when Glutened. I always find it difficult to think straight too because of the brain fog and fatigue so this wasn’t helping me think logically. And then the lightbulb moment of the medication. I emailed the company in my gluten haze (by this time the symptoms were awful and reminded me of my pre gluten free days) and they responded saying although it states ‘this product does not contain gluten’ they could not guarantee it didn’t have gluten in it from manufacturing processes etc etc. I stopped it just over 2 weeks ago. I had been taking it for 6 weeks. So in the last few weeks I have started to improve from being bedridden with fatigue and aches/pains,  gastritis, abdominal pain and GI problems, brain fog, mental health symptoms, pins and needles, migraines and much more to just about functioning. I feel I have done so much damage to my body and it’s such a set back. But my question is has anyone else had a major episode like this and how long did it take to recover? I still have symptoms now and it’s been over 2 weeks. I’m afraid I have made my Ataxia worse and the panic attacks and anxiety are through the roof. I’d forgotten what that was like. But any thoughts or experiences would help. Thank you. 
    • knitty kitty
      Gluten Allergy

      By knitty kitty · Posted

      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6.  Pyridoxine helps regulate the methylation process so it doesn't run amok.  P-5-P is the active form. All eight essential B vitamins work in concert together.  Just taking one or two can throw the rest out of balance.  If you have malabsorption as occurs in Celiac, then all the B vitamins will be poorly absorbed.  Taking a B Complex in addition to extra thiamine (Benfotiamine) is safe.  The B vitamins and Vitamin C are water soluble.  Any excess is urinated out.  I took a B 50 Complex twice a day to increase absorption.   Try taking Magnesium Threonate (Neuro-Mag by Life Extension).  Magnesium Threonate can get into the brain easily.  The brain needs magnesium, too, but other forms don't cross the blood-brain barrier as well.   The first time I took Magnesium Threonate, it felt like my brain relaxed.  I highly recommend it.   How's your Vitamin D level?  
    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      @Rejoicephd, I took high dose Vitamin D to correct my severe  deficiency quickly.  It's safe to do this.  I felt much better once my Vitamin D level was about eighty ng/mL.   Vitamin D works as a hormone and helps calms the immune system between 80 - 100 ng/mL.    High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Yes, curious science brain here, too.  I studied Nutrition but switched to Microbiology because I was curious what the vitamins in food actually do in the body.  Lots more links in my blog here: Click on my name and look for activities menu.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thanks @knitty kitty for keeping me thinking about the importance of vitamins. And I appreciate you sending those papers (gives me something for my science brain to work through! I’m a PhD in biology so I like reading these sorts of things). It’s been surprising to see how little is understood about the cause of fibromyalgia. My Vit D went low again on my last blood test so I know I’m back to being deficient there (it did go up for a while but back down again). Whomp whomp. So I’ll be both reading about and taking vitamins. Thanks again for your input. Really appreciate it.
×
×
  • Create New...