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Gluten Free-But Proccessed With Wheat?!


Live Love Twillight

Gluten Free! JUST KIDDING!  

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Live Love Twillight Rookie

I don't understand why I will buy a "Gluten Free" product, then look on the back and see it is processed on machinerary that manufactures wheat products-seriously if you are going to bother making something gluten free, why not do it WELL?? :huh:


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psawyer Proficient

I believe that you are in the United States.

In the US, there is currently no legally defined meaning for gluten-free. It means whatever the company wants it to mean. At the end of the day, it means what the plaintiff's lawyer can convince a jury it should mean. :angry:

Canada has a clear rule that no ingredient derived from wheat, rye, barley or oats can be intentionally included in a "gluten-free" product.

In both countries, there is nothing about possible cross-contamination in the existing or proposed rules.

Declaration of shared facilities or shared equipment is totally voluntary. If you see a cautionary statement, consider it. But do not assume anything if there is not such a statement.

psawyer Proficient

An added thought:

Most manufacturers adhere to what is called "good manufacturing practices." These include segregation of ingredients and cleaning of equipment.

Consider this: If you allow any foods in your home that contain wheat (or another gluten source), then your home is a "shared facility." If you use the same plates and cutlery, or put them in the same dishwasher, then you have "shared equipment."

If you ever eat at a restaurant, even one with a gluten-free menu, the facility is shared and it is very likely that the same dishwasher is used.

For the first years after my diagnosis, my wife continued to eat foods with gluten with a shared pool of plates and cutlery and a shared dishwasher. Five years in, I was retested and no sign of celiac disease was found in my intestines.

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    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
    • Scott Adams
      Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are diarrhea-centric, your reaction is a valid and documented, though less common, manifestation. It is completely understandable to feel isolated, especially after moving to an area with less familiarity with this specific presentation, but your vigilance in protecting your remaining colon is not just justified, it is critically important. Your history of autoimmune disease (Hashimoto's) further supports the likelihood of your body mounting a significant inflammatory response to gluten. Many in this community share similar frustrations with a skeptical medical community and the social challenges of maintaining a strict diet, so please know you have found a place where your condition is believed and understood. Staying gluten-free to prevent further damage is the safest path for your health, and we are here to support you in that crusade.
    • Rogol72
      I've never had an issue this side of the pond. If I'm out I drink Bulmers Cider. Sometimes draft and sometimes bottled. The draft cider lines are for Cider only. 
    • Rejoicephd
      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior?  the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free.    what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being  glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks!
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