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Was Getting The Hang Of It...i Thought

jesimae

By jesimae
in Coping with Celiac Disease

Recommended Posts

jesimae Apprentice
jesimae
Posted

This morning my husband (who refuses to see the importance of me not eating any amount of gluten), begged me to go out for breakfast. I thought about what I could order before we got there. Eggs, some bacon, maybe an omelet, some fruit...

Well, while I was trying to order, we had one of those waitresses who changes your order for you to save money, and says "I did this, and you should do that." Which is fine; she meant well, but with 2 kids fighting next to me and my absent mind-well you get the idea.

I ordered an omelet and breakfast potatoes. I eat breakfast potatoes at home, but I bake them in the oven. Didn't even think about them being fried! After eating over half of them (they weren't greasy at all), I found a battered piece of a chicken strip!

I asked her if the potatoes were fried with the chicken, hoping maybe it just accidently got dropped onto my plate and wouldn't make as big of a difference. Well, of course, they were.

10 minutes later I was on the toilet with the trash can in front of me. Then I was fine all day, until this afternoon. I am dizzy, I have a headache, my stomach is killing me, and I'm itching all over! If this is what it's doing to the parts I can feel, what's it doing to my GI tract??!!! I've never had a skin reaction like this before. I've reacted to tape adhesive, but just where the tape touched my skin.

Please help!

What do I do now? Do I start over with broths, soups etc? I'm so mad at myself! :(

Thanks!

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Kelly777 Newbie
Kelly777
Posted

I have never understood these family members who just refuse to "get it." So you have to root in and "get it". I have even refused to go out with my family if they do not support me and my disease. I always ask them, "If I was a diabetic would you be continually trying to get me to eat sugar?" I also show them the stats about the underlying diseases this causes when you fail to adhere to a gluten free diet. If that doesn't work I just tell them to carry on without me because I REFUSE to be sick again and I ask them point blank if they somehow want me to be sick.

The other thing about healing is it was a set back and do what you need to do in order to start the healing process again. If broth does it that is good. I was being glutened by a hair product and didn't realize it and when that happened it would only take a couple of days for me to be on track again but I have a friend that it takes her much longer when that happens. Just take care of yourself.

eatmeat4good Enthusiast
eatmeat4good
Posted

I would never trust a breakfast place. The thing is, they use the same spatula to flip pancakes, scramble eggs, fry potatoes, etc. In a kitchen where they actually use flour it is in the air and settles on everything including your potatoes and eggs.

It just isn't safe for me to eat breakfast out. I even hesitate to drink the coffee unless it is in one of those enclosed makers.

Sorry you got sick. Yes, I would probably start with broth. Some people feel better eating but I feel better just drinking small amounts until it is over.

I feel for you.

WhenDee Rookie
WhenDee
Posted

Honey, I've been gluten free for six months - six months! - and the other day I ATE A CRACKER. I was making peanut butter crackers for the kids & just put one in my mouth. I realized what I had done just as I swallowed, then sat there in a total panic about whether I should try to make myself throw up.

So it's been five days now & my tummy is still a bit torn up, but finally returning to normal. I felt like SUCH an idiot. Some days I think I've spent more time trying to figure out where I got "poisoned" than actually feeling GOOD. It has made me more and more careful. Now I ask about every single thing I order out, and I'm a total freak about what goes on in my kitchen.

Except for when I shove a cracker in my own silly mouth, I guess.

It's a good reminder to cut yourself a little slack - going gluten-free is so simple in theory, but in reality it's a monumental life change.

WhenDee Rookie
WhenDee
Posted

I forgot - I don't have 10 approved posts yet so I can't edit to add...

When I get "poisoned" and my body can't get straightened out, I go back to eating rice and raw salad veggies only. Usually for at least 1-2 days. This is what I had when the doctor though my celiac's was a serious stomach bug, and it sorted me out really fast. But when I have gluten it causes my appetite to go away for a few days, too, so going to such a simple diet is really easy. If it's really bad I go to rice only for a full day, then add in the veggies the 2nd day.

Best of luck -

W

heatherjane Contributor
heatherjane
Posted

This morning my husband (who refuses to see the importance of me not eating any amount of gluten), begged me to go out for breakfast. I thought about what I could order before we got there. Eggs, some bacon, maybe an omelet, some fruit...

Well, while I was trying to order, we had one of those waitresses who changes your order for you to save money, and says "I did this, and you should do that." Which is fine; she meant well, but with 2 kids fighting next to me and my absent mind-well you get the idea.

I ordered an omelet and breakfast potatoes. I eat breakfast potatoes at home, but I bake them in the oven. Didn't even think about them being fried! After eating over half of them (they weren't greasy at all), I found a battered piece of a chicken strip!

I asked her if the potatoes were fried with the chicken, hoping maybe it just accidently got dropped onto my plate and wouldn't make as big of a difference. Well, of course, they were.

10 minutes later I was on the toilet with the trash can in front of me. Then I was fine all day, until this afternoon. I am dizzy, I have a headache, my stomach is killing me, and I'm itching all over! If this is what it's doing to the parts I can feel, what's it doing to my GI tract??!!! I've never had a skin reaction like this before. I've reacted to tape adhesive, but just where the tape touched my skin.

Please help!

What do I do now? Do I start over with broths, soups etc? I'm so mad at myself! :(

Thanks!

Try not to beat yourself up about it...you're going to be ok! You'll have this disease all your life, and mistakes are bound to happen. The good thing is that they help you learn what not to do again. :) Hang in there!

cyberprof Enthusiast
cyberprof
Posted

Jessica, I hope you're feeling better now.

I hope this doesn't sound harsh, but I hope hubby saw/knew that you were on the toilet with a trash can! And I hope he had to take care of the kids while you were indisposed. I know, as a mom, that I'm somewhat of a martyr (I take care of people even if I'm sick) but your hubby should clearly see the effects of gluten in you and have to suffer the consequences along with you.

I do occasionally go to breakfast places but order only eggs over easy, bacon and perhaps fruit. But I'm 4+ years post-diagnosis, and didn't do this for 2+ years.

For now, I'd try mint tea - it's really helpful when I get glutened. I'd also agree with rice but no raw veggies as they're harder to digest. Rice and cooked veggies like zucchini and potatoes would be good.

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jesimae Apprentice
jesimae
Posted
  • Author

I'm feeling better, other than a headache that refuses to go away. My husband's ignorant suggestion after we left the restaurant was, "So go take a benadryl." Ugh! I have explained and re-explained til I'm blue in the face! He's been here the entire time while I wasted away 40 lbs, saw me sick, took me to the ER, AND paid the bills! Why can't he see how serious this is? Sometimes I think he's just trying to be mean.

I have been eating cream of buckwheat and baked potatoes. No pepper. Drinking lots of water. I have GOT to get on a vitamin. I know my body can't be getting what it needs.

Doctor said it would take years to heal the damage done to my GI tract from esophagus to stomach to small bowel as far as he could see. Think I've been Celiac since childhood, but didn't make the connection. Anyway, I want to do all I can to heal, and it's very discouraging to mess up. I know you guys know exactly what I mean...

Thanks for your support:)

cyberprof Enthusiast
cyberprof
Posted

I'm feeling better, other than a headache that refuses to go away. My husband's ignorant suggestion after we left the restaurant was, "So go take a benadryl." Ugh! I have explained and re-explained til I'm blue in the face! He's been here the entire time while I wasted away 40 lbs, saw me sick, took me to the ER, AND paid the bills! Why can't he see how serious this is? Sometimes I think he's just trying to be mean.

I have been eating cream of buckwheat and baked potatoes. No pepper. Drinking lots of water. I have GOT to get on a vitamin. I know my body can't be getting what it needs.

Doctor said it would take years to heal the damage done to my GI tract from esophagus to stomach to small bowel as far as he could see. Think I've been Celiac since childhood, but didn't make the connection. Anyway, I want to do all I can to heal, and it's very discouraging to mess up. I know you guys know exactly what I mean...

Thanks for your support:)

Jessica, I hope he starts to see how serious it is and with all your symptoms, I

Goldmoon Newbie
Goldmoon
Posted

This morning my husband (who refuses to see the importance of me not eating any amount of gluten), begged me to go out for breakfast. I thought about what I could order before we got there. Eggs, some bacon, maybe an omelet, some fruit...

Well, while I was trying to order, we had one of those waitresses who changes your order for you to save money, and says "I did this, and you should do that." Which is fine; she meant well, but with 2 kids fighting next to me and my absent mind-well you get the idea.

I ordered an omelet and breakfast potatoes. I eat breakfast potatoes at home, but I bake them in the oven. Didn't even think about them being fried! After eating over half of them (they weren't greasy at all), I found a battered piece of a chicken strip!

I asked her if the potatoes were fried with the chicken, hoping maybe it just accidently got dropped onto my plate and wouldn't make as big of a difference. Well, of course, they were.

10 minutes later I was on the toilet with the trash can in front of me. Then I was fine all day, until this afternoon. I am dizzy, I have a headache, my stomach is killing me, and I'm itching all over! If this is what it's doing to the parts I can feel, what's it doing to my GI tract??!!! I've never had a skin reaction like this before. I've reacted to tape adhesive, but just where the tape touched my skin.

Please help!

What do I do now? Do I start over with broths, soups etc? I'm so mad at myself! :(

Thanks!

I get that way when something has MSG in it, will send me to hospital at certain restaurants. I make sure I go where ppl know me & know to clean the grill really good. I live with 2 ppl like that & a son who thinks it's all in my head.

They don't talk me into going out but they will send grandkids with gluten stuff. I am always yuck cus of all the gluten in the air. I keep tell them I'm cheap take me to the groc store & I can buy my food.

I have a little more of a problem besides gluten, I'm also allergic to corn, soy, yeast & baking powder so I am very careful what goes into this mouth of mine.

Luck I have a wonderful boyfriend when we travel, he eats out of the groc store with me. He is a dream.

take care

jesimae Apprentice
jesimae
Posted
  • Author

Jessica, I hope he starts to see how serious it is and with all your symptoms, I

ravenwoodglass Mentor
ravenwoodglass
Posted

I talked to him about these things, and he says he gets it, but he's gonna have to get used to it. He says he understands but that doesn't mean he has to like it. He promised me he would do a better job at supporting me. I think there is a level of resentment that he works and I stay home, and all of his hard earned money has been given to medical bills (20 thousand dollars worth) over the last year. I plan on going back to work as soon as I've gotten the hang of the gluten free lifestyle. I told him that as long as I'm careful I can work and contribute to our family's financial needs as well.

Our daughter has had GI issues since birth. Colic, reflux, projectile vomiting. Then later constipation, diarrhea, cramps, vomiting (how many kids just throw up one time, one day, without a virus or something?). She's 10 and since she found out what's wrong with me, she asks every day when I'm going to have her tested. She doesn't even care that they have to draw her blood!

She also appears to have an allergy to shellfish. Not sure, but that's one we're not gonna play with! The problem is that she's missed too many days of school because she throws up once or has diarrhea and they send her home! Gonna make her an appointment to do that over Spring Break. Can an allergist also test her for Celiac? Would be nice to kill 2 birds with one stone.

Instead of waiting for spring break can you call your daughters ped and ask if you can pick up a lab slip for her to be screened. Since you have already been diagnosed and the ped should be able to see her history of GI issues in her chart there shouldn't be an issue with her getting the blood test done. If your daughter is asking when she can be tested she is in pain and it would be good to get the tests done asap. Do keep in mind her tests could be a false negative so let her try the diet after testing is completed no matter what the results.

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