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Sicker Thank A Dog Today... Trying To Hang In There For Full Celiac Disease Panel, But Could It Be Other Intolerances?

MsCurious

By MsCurious
in Coping with Celiac Disease

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MsCurious Enthusiast
MsCurious
Posted

Been feeling lousy lately as usual but today, sicker than a dog. I've had a headache for 5 going on 6 days with no break, and been extremely tired. Low grade sore throat which I have more often than not and trying to figure out what triggered such a terrible day today. Tummy ache, huge bloating (looks like 6 months pregnant! BLAH!).... cramping, nausea "Big D"4-5 times... gas... just generally feeling horrible! One of those days that you hope you never ever have again. I have been trying to keep a food diary, and I'm so confused what could be the trigger.

I did have wheat pasta Saturday night, and have been so bloated and tired and miserable since then, but the "D" didnt' start until this morning... could it have been that? I have always tended to stay away from things that seem to make me feel yucky..sort of subconciously, and have been not eating much gluten, but trying to keep some in my diet until the FULL celiac panel is run, but don't want to! I wish so bad I could just go gluten-free and see if that's it, but have any of you ever found that its OTHER intolerances that make you feel the same way? Yeast? Fructose? or do those make you feel different? Still confused, still miserable, still wishing I could go gluten-free, but hopefully can get in to see the GI soon. They were supposed to call, after Doc referral but with holiday, no word yet. Hopefully, tomorrow. Any tips or stories of similar would help! Thanks!

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Marz Enthusiast
Marz
Posted

could it have been that?

Yes, yes it could've been the pasta. Symptoms are sometimes delayed by 2 or 3 days while your immune system is building up a response.

... have been not eating much gluten, but trying to keep some in my diet until the FULL celiac panel is run, but don't want to!

How long have you been "gluten light" and when is your panel being done? I'm afraid to say that even eating gluten light, the blood tests/biopsy could come back negative :( Do get them done, but doctors recommend 3 wheat meals a day for several weeks to ensure sufficient antibodies are being produced (That's if you've been totally gluten free).

Don't worry too much though - even if tests are all negative, you can still be gluten intolerant, and get significant relief from symptoms on a gluten-free diet. You just don't have the official celiac diagnosis, but in the long run it's a slip of paper, what's it going to change?

I wish so bad I could just go gluten-free and see if that's it, but have any of you ever found that its OTHER intolerances that make you feel the same way?

I couldn't wait to go gluten-free either really, it was a huge relief after the tests were done. Honestly, when I was eating gluten I also thought I had a ton of intolerances. But I was feeling so super crap that I couldn't really tell. Once you're gluten free, the food diary will make a lot more sense and then you can see if any other foods are bugging you.

For me, egg, chicken, olives, goat cheese/milk, strawberries and nightshade plants were causing problems initially. After being gluten-free for a few months, I can eat small amounts of any without a problem (woohoo!). So don't despair, just hang in there and eat as much gluten as you can stand until tests are done.

MsCurious Enthusiast
MsCurious
Posted
  • Author

Yes, yes it could've been the pasta. Symptoms are sometimes delayed by 2 or 3 days while your immune system is building up a response.

How long have you been "gluten light" and when is your panel being done? I'm afraid to say that even eating gluten light, the blood tests/biopsy could come back negative :( Do get them done, but doctors recommend 3 wheat meals a day for several weeks to ensure sufficient antibodies are being produced (That's if you've been totally gluten free).

Don't worry too much though - even if tests are all negative, you can still be gluten intolerant, and get significant relief from symptoms on a gluten-free diet. You just don't have the official celiac diagnosis, but in the long run it's a slip of paper, what's it going to change?

I couldn't wait to go gluten-free either really, it was a huge relief after the tests were done. Honestly, when I was eating gluten I also thought I had a ton of intolerances. But I was feeling so super crap that I couldn't really tell. Once you're gluten free, the food diary will make a lot more sense and then you can see if any other foods are bugging you.

For me, egg, chicken, olives, goat cheese/milk, strawberries and nightshade plants were causing problems initially. After being gluten-free for a few months, I can eat small amounts of any without a problem (woohoo!). So don't despair, just hang in there and eat as much gluten as you can stand until tests are done.

Hi Marz,

Thanks so much for sharing your info... that gives me hope! I'm still hangin! :D

I just realized... I need to learn how to just quote parts of posts! :o:blink::P Where are the lessons for that? :D

jenngolightly Contributor
jenngolightly
Posted

Hi Marz,

Thanks so much for sharing your info... that gives me hope! I'm still hangin! :D

I just realized... I need to learn how to just quote parts of posts! :o:blink::P Where are the lessons for that? :D

Just delete the parts of the text that you don't want to include in the quote. Leave the beginning and end "quote" tags with the brackets around them so the quotes show up in green. :)

MsCurious Enthusiast
MsCurious
Posted
  • Author

Thanks Jenn! :)

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