Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Soy, Dairy, (Other) Cause The Same Symtoms?


zebaldwin

Recommended Posts

zebaldwin Explorer

I'm in the process of going on the diet myself to see if it is what is causing my problems. I have heard that a lot of people that have problems with gluten also have problems with soy and dairy. Is this true even if the symptoms are more neurological? Also, can soy, dairy, etc cause brain fog/migraines/weakness/fatigue etc as well?

I'm asking because I would be able to open up my food options a lot right now if I could eat cheese and soy. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



October3 Explorer

Well, I can tell you my experience. My symptoms to dairy (I'm pretty sure, as I'm doing a dairy trial now and these are what have come back) are joint pain, anxiety, and fatigue (like almost falling asleep in the early afternoon), along with GI symptoms. My daughter's dairy symptoms are GI and congestion/ ear infections. Her soy symptoms are mostly behavioral now - insomnia, almost manic-like craziness (she's 3 and just runs and jumps and gets really intense and can't sleep).

From my conversations with other food intolerant people I think there can be a really wide spectrum of symptoms with any food, not just gluten.

Good luck figuring it out.

Edited to add: another possibility I'm considering for my symptoms is candida which I had worked to get rid of a few years ago and have recently been very bad about my diet (too many sodas and other sugary stuff). The things you list are pretty classic candida symptoms so thought I would throw that out just to add another layer of confusion for you. :D Probably the best thing to do is eliminate everything you can think of on the front end, get to baseline, then start adding things back in. You could do it the other way around but it might take longer to feel better.

zebaldwin Explorer

thanks october...

I'm willing to do anything...I just feel like the possibilities are endless!

Plus, neurological symptoms supposedly take longer to "go away" so I might be doing this for a while not even knowing if food (of any kind) is the cause :/

blahhh

Thanks!!

October3 Explorer

Yup, I can recall feeling that sense that I would never figure it out. One thing I will say though is that with soy or pretty much any other food (besides dairy and gluten) you should notice improvements within a week. It may take a little longer to get the rest of the way out of your system, and some things aren't directly symptoms of the food but rather secondary due to nutritional deficits (like my anxiety, for example, I think is due to magnesium depletion which is caused by my food intolerances). But anyway you should notice an improvement within a week if that food is an issue for you. Dairy can take 2-3 weeks to clear your system, and gluten can take longer. So with most foods it isn't necessary to stay on an elimination long term if you aren't seeing a difference.

zebaldwin Explorer

How did you end up finding what foods you had problems with and what deficiencies followed?

Yup, I can recall feeling that sense that I would never figure it out. One thing I will say though is that with soy or pretty much any other food (besides dairy and gluten) you should notice improvements within a week. It may take a little longer to get the rest of the way out of your system, and some things aren't directly symptoms of the food but rather secondary due to nutritional deficits (like my anxiety, for example, I think is due to magnesium depletion which is caused by my food intolerances). But anyway you should notice an improvement within a week if that food is an issue for you. Dairy can take 2-3 weeks to clear your system, and gluten can take longer. So with most foods it isn't necessary to stay on an elimination long term if you aren't seeing a difference.

October3 Explorer

How did you end up finding what foods you had problems with and what deficiencies followed?

With the help of a lot of really smart ladies on various allergy forums. And it helped that I was nursing my daughter who reacted very violently to things in my milk so it was easier (though still a process) to figure out her intolerances and once I eliminated those I discovered that I felt better. As it turns out (I didn't know this before) babies often react to the foods their parents are sensitive to. Not very helpful if you don't have a nursling, but that's how it happened for me. Then once I realized I had issues with foods I had both of us tested with ELISA testing and that turned up a few more things I didn't know. There was a lot of interest among the moms I was internet chatting with about how detox pathways can help with healing food intolerances and they made suggestions to me about things to try supplementing based on my symptoms. Its all still pretty much over my head - I just don't have to time or attention span to figure all that out, but I have picked up a few things and find that by trying to support our detox pathways my daughter and I really do feel better and I can definitely tell when things are getting clogged up in either of us now.

Lisa Mentor

Believe it or not, digestive issues are not the most common symptoms of Celiac. Before you get too far into the gluten free diet, I would encourage you to get a full Celiac Blood Panel.

If you choose not to be tested, you can begin the diet. But only full compliance will determine if you have Celiac or a gluten intolerance, by a slow recovery of your symptoms.

If, in fact, you do have Celiac Disease, your healing time will be determined by the amount of damage in your small intestines.

You also have the option of going "clean"..... as in meats, fish, rice and potatoes, fresh veggies and fruit, for a month or so. By adding one suspect at a time, you may determine what is causing your issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

How did you end up finding what foods you had problems with?

About 7 months after eliminating gluten I realized I was still reacting to something. I would eliminate the suspect food for awhile and then eat it to judge my reaction. I found I was reacting to soy,corn,nightshades.Then in January I stated an elimination diet to find any remaining intolerances or allergys..

cahill Collaborator

I have heard that a lot of people that have problems with gluten also have problems with soy and dairy. Is this true even if the symptoms are more neurological? Also, can soy, dairy, etc cause brain fog/migraines/weakness/fatigue etc as well?

Yes, about 85% of my symptons are neurological.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.