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mtcross

By mtcross
in Coping with Celiac Disease

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mtcross Rookie
mtcross
Posted

I just found out the other day that a recent um.. camera procedure indicated that I may be celiac, and am going in for the blood test tomorrow. But this possible diagnosis does make quite a bit of sense and answers a few questions.

With that in mind I really don't want to ask a bunch of questions that have been asked by every person with this diagnosis.. So is there a list of FAQs or something along that line that can help me start making good choices/decisions/purchases?

Thanks in adavance

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Fire Fairy Enthusiast
Fire Fairy
Posted

I just found out the other day that a recent um.. camera procedure indicated that I may be celiac, and am going in for the blood test tomorrow. But this possible diagnosis does make quite a bit of sense and answers a few questions.

With that in mind I really don't want to ask a bunch of questions that have been asked by every person with this diagnosis.. So is there a list of FAQs or something along that line that can help me start making good choices/decisions/purchases?

Thanks in adavance

Did you know you can search the forums? Also, look on the top of the page and there is a button that says Celiac Disease Info, click it. It's the 5th button. I'm new too so I'll let the people who have been on here longer give you more info.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Do searches for specific questions and then don't be afraid to ask questions you don't find answers to - do watch the dates on your search results. So much as been learned about Celiac. The internet doesn't forget though, so there is a lot of mis-information out there still.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

as the pp said you can do searches, but also please feel free to ask questions. Even though the same questions get asked again and again the regulars here are super friendly and helpful. They will answer your questions or point you towards a thread with a similar question if it has been asked recently. There are no dumb questions and who knows you might ask something that others haven't asked before. I've been reading here for almost a year and I still learn new things from people asking questions and the answers given by different posters.

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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

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      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

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