Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kelp Vs. Spirulina

Lalama

By Lalama
in Related Issues & Disorders

Recommended Posts

Lalama Apprentice
Lalama
Posted

I was wondering if any of you would suggest Spirulina for hypothyroid as a pose to iodine? My thyroid hormone is only slightly off and the doctor prescribed kelp. I am trying to stay away from too much iodine however due to d.h. I realize the Spirulina contains some idoine but not as much. I have also heard that iodine in the long run may not be good for hypothyroid (which I read about in the book Why Am I Still Having Thryoid Symptoms). Any advice in general on treating Hypothyroidism naturally would greatly be appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

I was wondering if any of you would suggest Spirulina for hypothyroid as a pose to iodine? My thyroid hormone is only slightly off and the doctor prescribed kelp. I am trying to stay away from too much iodine however due to d.h. I realize the Spirulina contains some idoine but not as much. I have also heard that iodine in the long run may not be good for hypothyroid (which I read about in the book Why Am I Still Having Thryoid Symptoms). Any advice in general on treating Hypothyroidism naturally would greatly be appreciated!

its only my guess that Spirulina would not do much at all to help... isnt Spirulina good for vitamin A &/or vitamin K? but i dont know about iodine. kelp is great for iodine.

so how off were your numbers???

now let me just share my AMATEUR opinion. from what ive learned from doctors i respect, and a recent visit i had with an alternative doctor-> the thyroid needs the iodine to function. this alternative doctor gave me a tincture bottle with Liquid Iodine. i take 3 1/2 droppers a day. (on top of my Armour). im also eating 3 Brazil Nuts a day for the Selenium. (selenium helps calm down any thyroid antibodies, and helps u convert your T4 to T3.

back to the iodine. there MUST be a difference in the sources & quality of iodine- because ive taken fucus bladderwrack (kelp) and now this iodine liquid- and none of my DH spots have activated. NOW- when i was on Synthroid & Cytomel- i did have a few instances where the DH on my forarms erupted into a FIREY HOT pain for about a day. so, idk what to tell u... the thyroid DOES need the iodine.

also, are you gluten free?? gluten can trigger and aggravate those antibodies (both for hypo & hyper). also Fluoride leaches iodine out of the body making it hard for the thyroid to work.. and also cyanide & ciggarette smoke can be anti-thyroid.

did that help? sorry i blabbed so long

Lalama Apprentice
Lalama
Posted
  • Author

Thanks for your response! I am gluten free and casein free. My blood work for thyroid came back in the normal range-but I had all the symptoms of hypo and 5 people in my family have it). I went to a naturopatic doctor and he tested my thyroid using a meriden stress analysis and found my thryoid to be slightly weak and told me it was primary hypothyroid. Many of my family members with underactive were treated with synthroid and iodine-which helped in the beginning but then as time went out things got worse. A friend of mine suggested I read this book that said for those with Hashimotos-that iodine use should be avoided. So after reading the book and seeing my family members getting worse I was thinking of going a different route and treating it naturually-but not so sure yet. It talks a bit about it on this site... Open Original Shared Link

cassP Contributor
cassP
Posted

Thanks for your response! I am gluten free and casein free. My blood work for thyroid came back in the normal range-but I had all the symptoms of hypo and 5 people in my family have it). I went to a naturopatic doctor and he tested my thyroid using a meriden stress analysis and found my thryoid to be slightly weak and told me it was primary hypothyroid. Many of my family members with underactive were treated with synthroid and iodine-which helped in the beginning but then as time went out things got worse. A friend of mine suggested I read this book that said for those with Hashimotos-that iodine use should be avoided. So after reading the book and seeing my family members getting worse I was thinking of going a different route and treating it naturually-but not so sure yet. It talks a bit about it on this site... Open Original Shared Link

ill check that link after i eat... but the doctors that i respect totally say the iodine helps. my suspicion lies with the Synthroid.. so many people have gotten worse on Synthroid-> whether they also have Grave's like me? or they have a RT3 problem, or if Synthroid really is as bad as all the health people are saying.. idk..

but ill look at that link in a bit. i think dr. oz said the same thing about avoiding iodine- but i also dont agree with everything he says...

and- I SPOKE TOO SOON-> today my R forearm has been erupting with DH :(

cassP Contributor
cassP
Posted

ok, read some of it.. im not so sure im sold on it- yet i am concerned. his reasoning that the iodine activates the TPO enzyme and therefore aggravates the antibodies... it sounds plausible and scary.. but isnt it possible that it activates the enzyme to work- and then if they thyroid is working, then the antibodies would calm down, no?

to me it's like- u know: L-Glutamine & Butyrate help the small intestine cells to work better.. but this doesnt mean that they overstimulate our ttg or antigliadin... it just helps our actual cells work.

idk?

also- his one story about the patient who had her Hashimoto's antibodies at 128 or something... and the doc wanted her to take Synthroid- but she refused, and then opted to take Kelp... then her antibodies shot up another 100 points... i would assume this is because she did not take the T4 supplement- and so her TPO antibodies went up because her thyroid was continuing to struggle to fight to make the hormone... and the more inflamed the thyroid gets- the more the antibodies flare up. that would be my take on it.

there's also other things involved that aggravate those antibodies- eating gluten/wheat or soy... smoking.. fluoride..

?? idk,.... i hope he's not right, because i am taking the iodine at the moment. the DH is really annoying.. as long as im not covered in purple/red spots like on internet pics- im just going to accept it for now... my Hashi & Grave's antibodies were way way higher than my ttg... so its a priority for me.

Lalama Apprentice
Lalama
Posted
  • Author

also- his one story about the patient who had her Hashimoto's antibodies at 128 or something... and the doc wanted her to take Synthroid- but she refused, and then opted to take Kelp... then her antibodies shot up another 100 points... i would assume this is because she did not take the T4 supplement- and so her TPO antibodies went up because her thyroid was continuing to struggle to fight to make the hormone... and the more inflamed the thyroid gets- the more the antibodies flare up. that would be my take on it.

That's a good point-it is really difficult to figure what the root cause of that would be. It's hard when everyone is saying something different...so I decided to take the Kelp but at a lower dose then the doctor told me to take and i'll see how it goes. I have had a little bit of a dh break out...but I'll take it day by day for now. And of course will be sticking to dairy, gluten and soy free diet.

cassP Contributor
cassP
Posted

also- his one story about the patient who had her Hashimoto's antibodies at 128 or something... and the doc wanted her to take Synthroid- but she refused, and then opted to take Kelp... then her antibodies shot up another 100 points... i would assume this is because she did not take the T4 supplement- and so her TPO antibodies went up because her thyroid was continuing to struggle to fight to make the hormone... and the more inflamed the thyroid gets- the more the antibodies flare up. that would be my take on it.

That's a good point-it is really difficult to figure what the root cause of that would be. It's hard when everyone is saying something different...so I decided to take the Kelp but at a lower dose then the doctor told me to take and i'll see how it goes. I have had a little bit of a dh break out...but I'll take it day by day for now. And of course will be sticking to dairy, gluten and soy free diet.

have you had your antibodies tested???? what were all your thyroid numbers like??? have you been officially diagnosed? or does your doc just think you have a "sluggish" thyroid???

there are all kinds of things to take for the thyroid besides just something with iodine. like i said- im eating 3 brazil nuts a day for the selenium. selenium lowers the antibodies & helps your body convert T4 to T3. avoiding gluten & soy helps the thyroid too.

there are more things to take- but i am avoiding them for now- because they can drastically affect your TSH number- and im still working with my Endo for the right med dosage. those supplements are:

L-Tyrosine

L-Carnitine

Guggul

my bff who has all the symptoms, but her TSH is "normal" so the doc wont help her or test her TPO antibodies... she bought a natural dessicated thyroid supplement at Whole Foods and has been taking that- but i am sure that will affect her numbers too.

good luck :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lalama Apprentice
Lalama
Posted
  • Author

have you had your antibodies tested???? what were all your thyroid numbers like??? have you been officially diagnosed? or does your doc just think you have a "sluggish" thyroid???

there are all kinds of things to take for the thyroid besides just something with iodine. like i said- im eating 3 brazil nuts a day for the selenium. selenium lowers the antibodies & helps your body convert T4 to T3. avoiding gluten & soy helps the thyroid too.

there are more things to take- but i am avoiding them for now- because they can drastically affect your TSH number- and im still working with my Endo for the right med dosage. those supplements are:

L-Tyrosine

L-Carnitine

Guggul

my bff who has all the symptoms, but her TSH is "normal" so the doc wont help her or test her TPO antibodies... she bought a natural dessicated thyroid supplement at Whole Foods and has been taking that- but i am sure that will affect her numbers too.

good luck :)

To be honest, I'm not sure what my numbers were? My primary care doctor told me they were normally and my naturopath doctor told me it was a bit sluggish. I am going to look into a selenium supplement and ask my doctor about that. I had symptoms like hair thinning, cold hands and finger nails breaking and I use to have fatique ecspecially in the morning-but that has gotten a ton better since gluten free.

I appreciate your advice though-I don't want to mess around with my body when things are only a little off. There are so many other ways to treat...just need to do a little research. Time will tell=)

cassP Contributor
cassP
Posted

To be honest, I'm not sure what my numbers were? My primary care doctor told me they were normally and my naturopath doctor told me it was a bit sluggish. I am going to look into a selenium supplement and ask my doctor about that. I had symptoms like hair thinning, cold hands and finger nails breaking and I use to have fatique ecspecially in the morning-but that has gotten a ton better since gluten free.

I appreciate your advice though-I don't want to mess around with my body when things are only a little off. There are so many other ways to treat...just need to do a little research. Time will tell=)

just be careful with the selenium- you can overdose on it!

cassP Contributor
cassP
Posted

okay- its sunday night, and ive been on the net.. cause im suffering big tonight-

still confused as ever... but ive been reading tonight that excess iodine suppplementation is a big no no for Grave's and sends them into overdrive (and ive got Grave's :( ) ive been major HYPERTHYROID past 2 days :(

but Iodine supplementation can reverse Fibrocystic Breast (which i have really bad)... in fact it is extremely common for Hypothyroid women to also have Fibro Breast- because both are associated with Iodine deficiency.

great... now what am i supposed to do???? i need some magic witch doctor to kill off all my Grave's antibodies- so i can just concentrate on the Hashi... i seriously feel physically bipolar- and cant breathe most of the time :(

Lalama Apprentice
Lalama
Posted
  • Author

I'm sorry to hear that-that's frustrating. I feel like I need to be my own doctor everytime I go to the doctor. That's interesting about the connection with thyroid and fibroids because I had a fibroid removed from one of my breasts about 3 years ago-before knowing my thyroid was off. I noticed that since cutting out refined sugars and dairy (in addition to gluten)to stablize my blood sugar that this issue has improved somewhat.

Also, this is kind of interesting-I have a friend that swears by unrefined Coconut oil. I have been doing some research on Extra Virgin Coconut Oil and how it can help balance the thyroid out. I occasionally use it for cooking-but was thinking to experiment with adding a little bit to my diet each day to see if this helps to give my thryoid the extra boost it needs. I'm not going to go crazy-but in healthy amounts and it has a lot of other benefits as well, check it out.

My doctor also told me to do cardio at least 3 times a week and to keep my heart rate up for at least 20 mins...normally I just walk a mile a couple times a week. I guess intense workouts are really good for hypothyroid. So I just started that-I guess it's a matter of, a little bit of this and a little bit of that ;)

OlyHiker Newbie
OlyHiker
Posted

I

cassP Contributor
cassP
Posted

I

Lalama Apprentice
Lalama
Posted
  • Author

what in the WORLD???? really???? this is the FIRST time i have ever heard anything remotely negative about spirulina... im so confused

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.