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Gluten Intolerant. Now What?

dbhickma

By dbhickma
in Coping with Celiac Disease

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dbhickma Rookie
dbhickma
Posted

I've been diagnosed with IBS, spastic colon, acid reflux disease, and an over active gallbladder (chronic D) by a GI. I had an ultrasound of my stomach etc, but there was so much gas in there the tech had a hard time seeing. Never had a "retake." Blood test came back borderline. The last GI I saw asked me where I was from. I said Mexico. To which he replied, You don't look Mexican, if you're Mexican you definitely don't have Celiac. Really? I didn't know if I should slap the man on his head or drop kick him. NEVER WENT BACK.

I've been diagnosed with fatty liver even though I limit my oil consumption to a tablespoon a day and eat as low fat as I can. I work out at least 3 days a week. Every other part of me loses weight except my stomach, which makes me look like I'm pregnant. I don't drink, smoke or do drugs. Anemia, eczema, frequent kidney infections, hipoglicemia, extreme exhaustion (I have 3 kids,) and depression by a general Dr. I'm glad that I didn't end up having Autoimmune Hepatitis like they originally thought.

My OBGYN told me to up my water intake because of frequent bladder infections. At one point a Gyno thought I might have uterine cancer.

I've tried to stay gluten free for months, but keep getting cc. I am the only gluten free in my house and I have little kids so there is MAJOR potential for cc. Took a recent trip with the hubbie and had major CC somewhere along the way. MAJOR reaction. So bad my husband who thought I was a hypochondriac asked me to see a Dr. SO, my dilemma!

I'm SO dizzy and have major brain fog. My grammar skills and spelling have tanked through the years so I wonder if I'm some how brain damaged and to what extent. Do I see a neurologist?

My joints have hurt on a consistent basis my whole life and my knuckles swell on and off. Do I see a rheumatologist?

Is there ONE Dr. that can help me with all this or do I have to keep seeing different Drs for different things and pray they can collectively heal me?

Is there a GOOD Dr on Maui or Oahu for that matter!! I'm at a loss. Please help me out.

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JenniLu Newbie
JenniLu
Posted

I've been reading the book (free download) from this doctor and I'm thinking maybe getting tested this summer. He seems to be very thorough with his testing and looks at all of the symptoms together....but I'm no expert. I like the idea of "functional" medicine anyway. He is out of Minnesota, but he can consult and order the tests long distance.

Open Original Shared Link

JenniLu Newbie
JenniLu
Posted

I just wrote a post on the autoimmune book. Here is the website for the Upper Room in Minneapolis, where Dr. Conner, the functional doctor has his office and there is more information there: Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

What you really need to do is to get strictly gluten free. I know it's hard but that is your answer. You may need to make the house gluten free to do that but your health is more important than the kids having cheerios. It won't hurt the rest of the family to be gluten free in the home and will help you end your pain.

dbhickma Rookie
dbhickma
Posted
  • Author

I talked to my hubbie about it and I told him he could get his gluten fix when he's at work. He eat's out all the time because of his job so he shouldn't have a hard time with being gluten free at home. My kids are just going to have to eat what I make for them. I'm cleaning my house out this weekend. Thanks you guys!

eatmeat4good Enthusiast
eatmeat4good
Posted

Good for you sweetie! And the kids won't even mind after a while.

I hope you feel better soon.

nmthommy Rookie
nmthommy
Posted

go to enteroLab www.enterolab.com

they do stool tests which are far better than blood tests.

My blood work for gluten came back fine but my stool test came back highly sensitive and I found out that I inherited it from both my parents and am passing it on to my boys. : (

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