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How Much Gluten Should I Be Eating Before Testing?


koolsharkz

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koolsharkz Newbie

Hello! After years of stomach problems, I decided to try and solve them by changing my diet. I lessened my gluten intake for a while, avoiding those foods because I felt lousy after eating them. About three or four weeks ago, I decided to go gluten-free (more or less... I didn't use exclusively certified gluten-free products, so I must have gotten some). I felt a lot better, but the problems weren't completely solved. Another super neat thing that happened was I felt significantly less depressed than I have in a long time... years, even! Now I'm finally seeking testing for gluten intolerance (so that I can prove to my college that the food they provide is damaging). I started eating gluteny products about four days ago, and feel a little bit worse but it's not awful yet.

My question is, to have an increased chance of an accurate blood test result (which I understand is sort of unlikely anyway), how much gluten do I need to be eating? I've been eating about one serving a day of wheat crackers. Which is not much. How much gluten should I be eating, and is it likely that I need to continue eating it for 3 months? My diet has been low on gluten (but not devoid of it) for a few months.

Another question I suppose... If I were gluten intolerant in some way, should I expect to feel dramatically worse after reintroducing gluten? Because I don't, at least not most of the time. It's just a slightly lousier feeling. Less energy, more gas, more discomfort, you know... all the fun things!! Sometimes I think that going gluten-free was just a placebo for me... I expected to get better, and so I did. And now that it's back, I expected to feel a little worse, and I do. I know you all know how it is, sick of guessing and waiting and feeling lousy, and just wanting a solid answer... that's where I'm at.

Thank you all so much for your help, reading all of these posts from people who are just as confused as I am is incredibly helpful for keeping hope alive :)

-Emily


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ravenwoodglass Mentor

To have the best chance of an accurate test you need to be eating at least 4 to 6 slices of bread a day for about 3 months. You may still have a false negative. Once testing is done then go strictly gluten free for a couple of months. Since gluten intolerance and celiac are autoimmune reactions you really need to totally eliminate it to stop the antibodies.

MsCurious Enthusiast

From Mayo Clinic: Open Original Shared Link

"Gluten-challenge testing requires adequate gluten intake for long enough to develop gut lesions. Four slices of whole wheat bread daily for 4 weeks usually suffices. However, it will make patients ill and they can become quite symptomatic. There are some patients who are delayed responders and if a patient has had no symptoms develop by 4 weeks, I will usually perform serology. If it becomes positive at that point, we

koolsharkz Newbie

Thank you both for your help!

love2travel Mentor

My question is, to have an increased chance of an accurate blood test result (which I understand is sort of unlikely anyway), how much gluten do I need to be eating? I've been eating about one serving a day of wheat crackers. Which is not much. How much gluten should I be eating, and is it likely that I need to continue eating it for 3 months? My diet has been low on gluten (but not devoid of it) for a few months.

Another question I suppose... If I were gluten intolerant in some way, should I expect to feel dramatically worse after reintroducing gluten? Because I don't, at least not most of the time. It's just a slightly lousier feeling. Less energy, more gas, more discomfort, you know... all the fun things!! Sometimes I think that going gluten-free was just a placebo for me... I expected to get better, and so I did. And now that it's back, I expected to feel a little worse, and I do. I know you all know how it is, sick of guessing and waiting and feeling lousy, and just wanting a solid answer... that's where I'm at.

Thank you all so much for your help, reading all of these posts from people who are just as confused as I am is incredibly helpful for keeping hope alive :)

-Emily

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    • Scott Adams
      if you have already learned that Gluten is the cause of your symptoms, of course there is no need to add it back into your diet— your decision could save you a lot of needless suffering. One thing to consider is that if you do have celiac disease, your first- degree relatives may also need to get screened for it, because, like diabetes the disease is genetic, although many of its triggers seem to be environmental factors. You may want to consider getting a genetic test for celiac disease, so you can at least warn your relatives if it turns out that you do carry a celiac gene.
    • lookingforanswersone
      Thanks everyone. I've decided to do a gluten challenge (4 slices of bread a day for 3 months) and then do a full gluten panel of all the tests that can be done, just to rule it in or out for sure. I think otherwise psychologically it will keep bothering me 
    • Suze046
      Thanks Scott. Those articles are really interesting. I’m cutting out gluten for 6 weeks but honestly I’m not sure I even want to reintroduce it! I ate at a restaurant for the first time on Wednesday and then Thursday was really uncomfortable and had a few trips to the loo.. wonder if there was some cross contamination 🤷‍♀️ if that’s how my body reacts after not eating it for 3 weeks I’m not sure it’s worth reintroducing it and re testing for celiac! It might have been a coincidence I realise that I’m not going to feel better all of a sudden and my gut is probably still trying to heal. Thanks for your supportive message! 
    • RMJ
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    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
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