Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Peoples' Homes


ecf

Recommended Posts

ecf Rookie

In light of what we know about flour staying in the air for 24 hours, I'm wondering what your policies are for visiting other peoples' homes after they have been baking.

My close friends know not to bake if I am coming over that day or the next. But sometimes I'm invited to dinner parties or potlucks at acquaintances' houses - my rule of thumb with this is to ask the host the day of the party if they plan on baking something, or already have. If yes, I do not go. But I'm wondering if this is overly cautious, and if one or two cups of flour used for a cake hours before really will be potent enough affect me if I'm in their home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

I would think you would be fine as long as you stayed out of the kitchen... I mean, how sensitive to gluten are you?

anabananakins Explorer

I guess it depends on whether you'll be eating something that was prepared in the kitchen around the same time as the baking.

If was going to someone's house for, say, drinks, and the snacks were coming out of their packaging, I wouldn't worry. But I wouldn't want there to have been flour used if I was going to be preparing food. I stayed with a friend and even though I was super careful with places, utensils etc, I got sick and I think it was when she was making waffles for her and her husband while I was doing a jacket potato for me. So I asked my mum not to bake any bread for a few days before I visited her (to stay for 2 weeks), and I had no problems at all at her place.

YoloGx Rookie

Wow--I am not the only sensitive person around here. I have gotten glutened from walking through a pizzaria past the room where they made pizzas to use their bathroom. I also have gotten badly glutened from walking through a kitchen after gluten pies were just made.

More recently, I got glutened walking in a room that had sheet-rock dust from old construction being torn down the day before--and then my bf turned on the vacuume cleaner just briefly. I left the room quickly but it was already too late.

My bf is gluten sensitive but it didn't bother him much whereas it took me several days to get over this airborne glutening. He now wears a snug paper mask meant for dealing with sheetrock dust and it seems to be adequate for him for deterring the mild head/eye/nose area aches he was getting from working on his house. Whereas for me to go on a work site I seem to need to use a heavy duty mask with nozzles and filters instead and then remove my clothing (to wash)and take a shower after.

I hadn't heard about this 24 hour thing. It makes sense--as in it seems wise. Do you recall where you learned/heard about it??

Bea

brendygirl Community Regular

It's hard to be social and excited to visit people's homes when the gluten issue is just always there. You feel like you can't relax.

I'm always amazed when gluten free people say it's "no big deal" and that cooking gluten free isn't that hard, and they want non-gluten-free people to prepare meals for them and invite them over. For example, one retired lady in my support group was mad the people in her weekly card-playing/dinner group wouldn't cook for her.

I personally don't eat in anyone's home unless I bring the food I'm eating...and I don't eat it in the kitchen. I usually eat beforehand and just bring a snack along-usually something other people salivate at, like shrimp n salsa or a cupcake, just to show that gluten free isn't misery, so they don't have to feel sympathy for me.

However, I will supervise my mother or my best friend if they want to cook or bake for me. My best friend took it upon herself to not allow bread or flour in her house for a month before my visit last time.

I'm lucky to have a gluten free potluck group in my area, where we all eat together once a month!

Good recipes and ideas, too--I discovered that gluten free lasagna is tasty enough to be worth the effort of all the boiling and baking (not to mention the cost) and now I make it at home at least once a month!

ecf Rookie

Just to clarify, I meant going just to socialize, not to eat any food at the party. Like you, brendygirl, I always eat beforehand and just enjoy the company.

It's taking in any flour that's hanging in the air through nose and mouth, which will eventually make it's way into the digestive system, that I'm worried about. Staying out of the kitchen does seem like a good way to be safe. But this is such a scientifically ambiguous area: do airborne flour particles eventually make their through the whole house? How concentrated does it have to be in the air to cause problems? Hard to say. The 24 hour thing is the closest I've found to an actual answer. yolo, I've seen that fact repeated in publications over the years, here's one example from the Gluten Intolerance Group (page 2, number 2): Open Original Shared Link And I agree with you, it seems pretty logical. It would be nice to have some more definitive facts about how flour behaves in the air though, wouldn't it?

YoloGx Rookie

Just to clarify, I meant going just to socialize, not to eat any food at the party. Like you, brendygirl, I always eat beforehand and just enjoy the company.

It's taking in any flour that's hanging in the air through nose and mouth, which will eventually make it's way into the digestive system, that I'm worried about. Staying out of the kitchen does seem like a good way to be safe. But this is such a scientifically ambiguous area: do airborne flour particles eventually make their through the whole house? How concentrated does it have to be in the air to cause problems? Hard to say. The 24 hour thing is the closest I've found to an actual answer. yolo, I've seen that fact repeated in publications over the years, here's one example from the Gluten Intolerance Group (page 2, number 2): Open Original Shared Link And I agree with you, it seems pretty logical. It would be nice to have some more definitive facts about how flour behaves in the air though, wouldn't it?

I agree it would be nice to have something more definitive about the transit time for gluten in the air, but nevertheless, experience tells a lot that is valuable--so thanks for the tip!

I tried to see the url you suggested by the way and it didn't work--seems to be offline.

Thanks by the way to you both. Brendygirl for pointing out how it should be done (including the support group) and ecf for the particulars on flour dust.

As far as a support group goes, I'd have to be really vigilant for a potluck to work for me too since it appears I am intensely salicylic acid sensitive. Nevertheless I am thinking of starting a support group around here in San Jose. Though I was not thinking of making a potluck a big part of it for the above reason. I was thinking of having it focus more on swapping info on celiac and related conditions. But maybe that's small thinking??

Bea


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

In light of what we know about flour staying in the air for 24 hours, I'm wondering what your policies are for visiting other peoples' homes after they have been baking.

My close friends know not to bake if I am coming over that day or the next. But sometimes I'm invited to dinner parties or potlucks at acquaintances' houses - my rule of thumb with this is to ask the host the day of the party if they plan on baking something, or already have. If yes, I do not go. But I'm wondering if this is overly cautious, and if one or two cups of flour used for a cake hours before really will be potent enough affect me if I'm in their home.

I think it really depends on how sensitive you are. I have never had a problem, but I don't eat at other people's houses, though, either, unless I've been part of the cooking process. I do not let any gluten items into my kitchen for fear of crumbs. But there again -- I'm sensitive to what I've consumed, but not to tiny particles (at least, not that I've noticed!) So it will be based on if it makes you sick. For me, no. But for Bea, it is a serious issue, and needs to be treated as such. Go with what you know you react to. You'll learn quickly what you can handle. Good question, though, with some excellent, thought-provoking discussion, especially for someone like me that forgets that others are more sensitive that I am! So thank you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.