Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This All Be Gluten Related?

kiddo0215

Recommended Posts

kiddo0215 Newbie
kiddo0215
Posted

Hello! I have been on an elimination diet for about a month now, and I am suspicious that my children probably need to be gluten free as well. As you all know, the diet can be difficult...my plan was to find out for sure if I have a problem and then to "force" the diet on my children to see if it helps some of the "symtpoms" that I have noticed in them since I started researching.

I have a maternal aunt who is diagnosed Celiac. I could conject that my Mom was also and perhaps several of my aunts (all with stomach pains all the time and lactose intolerance). Several also have a range of autoimmune disorders (Lupus, Sjogrens, RA)

My questions today relate to my 14 year old daughter. She was diagnosed with Asthma at age 11, Osgood Schlatter at 12, and yesterday with ovarian cysts. She has depresssion and mood swings.

I haven't scheduled the ER follow up for the ovarian cysts yet- I wanted to research them a bit first. The Osgood Schlatter was supposed to go away within 6-12 months. It has not. In fact it is still bothersoem to her on almost daily basis. She also has headaches, neck and back pain.

I requested her doctor to do a gluten blood test last week and she said that because of the cost the patient would be required to do an elimination diet first. From what I read, that isn't necessarily the best idea.

It seems too simple for all of these symptoms to relate back to gluten, but I have to consider the possibility... does this all sound like it could stem from celiac or a gluten senitivity?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

There has been some recent research that shows a link between Asthma and celiac, there was an article about it the other day in the Health section of Yahoo News. From my own experience I know my asthma was caused by celiac because it resolved completely on the diet.

Celiac can cause inflammtion that can cause issues with the muscles and tendons so the pain that she is having could be related.

I don't know for sure about the ovarian cysts but my DD has suffered greatly from them since she went off the diet.

If you absolutely can't get the doctor to at least do a blood test then you would need to go with a dietary trial. Since the blood tests and biopsies can have false negatives anyway you would need to do the trial no matter what the test results.

kiddo0215 Newbie
kiddo0215
Posted
  • Author

Thank you for your response! I guess sometimes I just need someone to state the obvious... wonder how to break the news to her...

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you for your response! I guess sometimes I just need someone to state the obvious... wonder how to break the news to her...

I would call her doctor and tell her that since there is a family history of celiac you really want her tested. Also ask the doctor if they will give her a formal diagnosis if she responds to the diet as she may need one to keep her safe in school and in college. However there is a chance of a false negative and if you think she will resist the diet if the tests are negative you may want to just go with your original plan.

I would just tell her it may help the symptoms she is having and that if it doesn't help then you can stop after a couple of months. Also have her come here to the board, we even have a section for teens but she can feel free to post or read anywhere. It also may help to have her talk with the diagnosed celiac in the family so she can know that just because she is gluten free it doesn't mean that she can never have pizza, cakes or bread again, they will just need to be gluten free.

eatmeat4good Enthusiast
eatmeat4good
Posted

My son's asthma that he has had since childhood went away. He is 4 months gluten free. Had to use inhaler one time in all these months.

;)

She might be happy about going gluten free once she learns what it can help with.

I worried about how my son would take it too. Now he tells everyone how brilliant his mom is to have figured it out. I never would have imagined that response! :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.