Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could These Problems Be Related To Gluten?


mommysboys2

Recommended Posts

mommysboys2 Rookie

Hi! I've been having so many problems over the last 16 months, and I hoping someone on here can give me some feedback, advice, hope, etc.

It has been like a snowball effect with my symptoms, and I'm just wondering if any or all of these could possibly be caused by a gluten sensitivity or celiac disease. I will list all the crazy symptoms that I've been having over the last 16 months that I never had before.

1- brain movement (I started having this right after my second cesarean. It literally feels like my brain takes a little leap inside my head).

2- A lot of stomach issues. Swooshing/kicking sensations in my stomach (I'm not pregnant, but that is what it feels like sometimes), sensitive to greasy/fatty foods, nausea, heartburn, stomach burn. Tums is a norm in my cabinet.

3-A lot of infections, that I never used to suffer with. UTI infections, yeast infections, and my kidneys have mild hydronephrosis (which is enlargment due to an obstruction), but they can't figure out why I have the hydronehprosis.

4-Hypertension...I'm 33 and have now been on blood pressure meds for 2 months.

5- This is the absolute worst symptom of all...Terrible Anxiety/PMS and also some OCD accompaning the anxiety. I never know when my anxiety is going to make an entrance again and ruin my life for a couple weeks. Also, I never in my whole 32 years of life, had PMS. The most I ever got was some cramping on the first day. Now, everything is different about it, and it's almost like I have that PMDD. I've been on zoloft, it might help a bit, but I still have a couple weeks out of each month that just paralyze me with fear and insomnia, etc.

I've been tested for thyroid and diabetes. I'm fine there. I'm just wondering if all of this could be related and could it be due to a gluten intolerance. So, I started the gluten free diet 2 weeks ago, and I was having severe anxiety when I started. Just a couple days into it...I felt so much better. I felt at ease, and no ocd, and just my normal self that I remember from months ago. I also noticed that I went from having loose BM to normal BM (sorry to be gross). I felt like it was way to soon to already feel better, especially with the anxiety, but I thought maybe I had found my answer finally. Anyway, I had to have surgery this past Friday (a cystoscopy, which is a scope that goes into my bladder, ureter tubes, and kidneys to see if there was an obstruction). I had the worst night of my life that day. I was deathly ill from the anesthesia...non stop vomitting and severe pain in my bladder and kidneys. I had to go to the er. Then, just 2 days after that I started my monthly cycle. I am now having all that terrible anxiety, doubt, ocd, negativity, irritability, etc. again.

Is it too soon to be expecting a gluten free diet to have resolved my problems? Does anyone out there think that I should keep up the diet...that it still may be the answer to all these issues, especially the anxiety?

I'm sorry this is so long, but I'm just needing a little hope please.

Thank you!

Alicia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

One of the most important things you need to know is that if you are going to get any testing done for celiac you should get back on gluten until that testing is done.

While it can take a long time for relief from symptoms some of us do have quick resolution of our issues. It is possible that you are someone who would get quick relief.

After you have testing done, if you are choosing to have it, then do go on a dietary trial strictly. If you are still taking meds do make sure to check with the maker to be sure they are gluten free and keep your doctor in the loop because if you have celiac your dosages for meds may need to be adjusted when you have healed.

EdwardL Newbie

One of the most important things you need to know is that if you are going to get any testing done for celiac you should get back on gluten until that testing is done.

While it can take a long time for relief from symptoms some of us do have quick resolution of our issues. It is possible that you are someone who would get quick relief.

After you have testing done, if you are choosing to have it, then do go on a dietary trial strictly. If you are still taking meds do make sure to check with the maker to be sure they are gluten free and keep your doctor in the loop because if you have celiac your dosages for meds may need to be adjusted when you have healed.

I'm not sure if my last post made it through. I must of hit a wrong button and caused it to exit. Anyway, isn't there a recommended sequence of tests to go through to find out which and how many food sensitivities are causing problems? Just going gluten free may not solve anything if there are cross sensitivities like casein, which can cause similar problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.