Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could These Problems Be Related To Gluten?


mommysboys2

Recommended Posts

mommysboys2 Rookie

Hi! I've been having so many problems over the last 16 months, and I hoping someone on here can give me some feedback, advice, hope, etc.

It has been like a snowball effect with my symptoms, and I'm just wondering if any or all of these could possibly be caused by a gluten sensitivity or celiac disease. I will list all the crazy symptoms that I've been having over the last 16 months that I never had before.

1- brain movement (I started having this right after my second cesarean. It literally feels like my brain takes a little leap inside my head).

2- A lot of stomach issues. Swooshing/kicking sensations in my stomach (I'm not pregnant, but that is what it feels like sometimes), sensitive to greasy/fatty foods, nausea, heartburn, stomach burn. Tums is a norm in my cabinet.

3-A lot of infections, that I never used to suffer with. UTI infections, yeast infections, and my kidneys have mild hydronephrosis (which is enlargment due to an obstruction), but they can't figure out why I have the hydronehprosis.

4-Hypertension...I'm 33 and have now been on blood pressure meds for 2 months.

5- This is the absolute worst symptom of all...Terrible Anxiety/PMS and also some OCD accompaning the anxiety. I never know when my anxiety is going to make an entrance again and ruin my life for a couple weeks. Also, I never in my whole 32 years of life, had PMS. The most I ever got was some cramping on the first day. Now, everything is different about it, and it's almost like I have that PMDD. I've been on zoloft, it might help a bit, but I still have a couple weeks out of each month that just paralyze me with fear and insomnia, etc.

I've been tested for thyroid and diabetes. I'm fine there. I'm just wondering if all of this could be related and could it be due to a gluten intolerance. So, I started the gluten free diet 2 weeks ago, and I was having severe anxiety when I started. Just a couple days into it...I felt so much better. I felt at ease, and no ocd, and just my normal self that I remember from months ago. I also noticed that I went from having loose BM to normal BM (sorry to be gross). I felt like it was way to soon to already feel better, especially with the anxiety, but I thought maybe I had found my answer finally. Anyway, I had to have surgery this past Friday (a cystoscopy, which is a scope that goes into my bladder, ureter tubes, and kidneys to see if there was an obstruction). I had the worst night of my life that day. I was deathly ill from the anesthesia...non stop vomitting and severe pain in my bladder and kidneys. I had to go to the er. Then, just 2 days after that I started my monthly cycle. I am now having all that terrible anxiety, doubt, ocd, negativity, irritability, etc. again.

Is it too soon to be expecting a gluten free diet to have resolved my problems? Does anyone out there think that I should keep up the diet...that it still may be the answer to all these issues, especially the anxiety?

I'm sorry this is so long, but I'm just needing a little hope please.

Thank you!

Alicia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

One of the most important things you need to know is that if you are going to get any testing done for celiac you should get back on gluten until that testing is done.

While it can take a long time for relief from symptoms some of us do have quick resolution of our issues. It is possible that you are someone who would get quick relief.

After you have testing done, if you are choosing to have it, then do go on a dietary trial strictly. If you are still taking meds do make sure to check with the maker to be sure they are gluten free and keep your doctor in the loop because if you have celiac your dosages for meds may need to be adjusted when you have healed.

EdwardL Newbie

One of the most important things you need to know is that if you are going to get any testing done for celiac you should get back on gluten until that testing is done.

While it can take a long time for relief from symptoms some of us do have quick resolution of our issues. It is possible that you are someone who would get quick relief.

After you have testing done, if you are choosing to have it, then do go on a dietary trial strictly. If you are still taking meds do make sure to check with the maker to be sure they are gluten free and keep your doctor in the loop because if you have celiac your dosages for meds may need to be adjusted when you have healed.

I'm not sure if my last post made it through. I must of hit a wrong button and caused it to exit. Anyway, isn't there a recommended sequence of tests to go through to find out which and how many food sensitivities are causing problems? Just going gluten free may not solve anything if there are cross sensitivities like casein, which can cause similar problems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.