Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Biopsy Be Positive If Visual Inspection Looks Fine?

mary77

Recommended Posts

mary77 Newbie
mary77
Posted

Well...I'm back from my EGD. The paper they gave me at the end says that my intestinal mucosa look normal. Does that mean that the biopsy will likely be negative as well? Have any of you had positive biopsies after "looking" fine through the scope?

Thanks.

Mary

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MsCurious Enthusiast
MsCurious
Posted

Well...I'm back from my EGD. The paper they gave me at the end says that my intestinal mucosa look normal. Does that mean that the biopsy will likely be negative as well? Have any of you had positive biopsies after "looking" fine through the scope?

Thanks.

Mary

Hi Mary,

Wish I could give you an answer, but I have more questions than answers, at this point. How was the endo? Does it take long, does it hurt, or is it uncomfortable? Any after effects? Did they tell you how long until you will get the official report from the lab? I'm also curious to see what other people have experienced, so hopefully you'll get some good responses here. People are so wonderful about sharing their experiences. Hope you feel better real soon!

psawyer Proficient
psawyer
Posted

Absolutely yes, it is possible for the biopsy to be postive without visible damage to the villi. Only in seriously advanced cases can the damage to the villi be seen with the eye.

mary77 Newbie
mary77
Posted
  • Author

The endo wasn't bad. I think I fought them a little because I remember a nurse stroking my face and telling me to take a deep breath. No pain though. It's really true that the anticipation is the worst part of the whole thing. I woke up feeling groggy, but fine. I do have a bit of a sore throat today, but it's not bad, and I suspect it's because I moved around during the test. I looked at the back of my throat and I can see a couple of little red marks. No worse than a mild cold sore throat though. Tylenol helped.

They told me that the biopsy results will be available on Monday. I had it done yesterday at 1pm. I also had bloodwork, which they said will be back mid week next week.

shopgirl Contributor
shopgirl
Posted

Hi Mary,

Wish I could give you an answer, but I have more questions than answers, at this point. How was the endo? Does it take long, does it hurt, or is it uncomfortable? Any after effects? Did they tell you how long until you will get the official report from the lab? I'm also curious to see what other people have experienced, so hopefully you'll get some good responses here. People are so wonderful about sharing their experiences. Hope you feel better real soon!

Sorry for butting in. :)

The endoscopy takes about 15 minutes, it's absolutely painless and you won't feel or remember anything afterward

Cara in Boston Enthusiast
Cara in Boston
Posted

I don't remember a single thing from my procedure. Barely remember my husband picking me up and taking me home. I was done at noon and don't really remember much until after about 3:00 PM (I think I'm very sensitive to the seditive). My doctor called with the results one week later. Glad my husband took the day off because I would not have remembered to get the kids from the bus stop.

Cara

mary77 Newbie
mary77
Posted
  • Author

Thanks for the information Peter. I'm anxiously awaiting my results. In the meantime, I'm making my first gluten-free grocery list. Gonna try this diet and see if I can start feeling better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.