Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does Your Reaction Last?

Jenn624

By Jenn624
in Coping with Celiac Disease

Recommended Posts

Jenn624 Rookie
Jenn624
Posted

I had posted in another post that I got glutened on some chicken salad on Thursday. Here it is Sunday and I am still having diarrhea. I made sure to be super careful Friday, Saturday, and today to avoid all gluten and made my meals from scratch to be sure. Yet I still have symptoms. I know it can still be from the chicken salad, and my last reaction lasted about as long. Just wondering if with each exposure, the length of the reaction is longer?

Thanks,

Jenn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Loey Rising Star
Loey
Posted

I had posted in another post that I got glutened on some chicken salad on Thursday. Here it is Sunday and I am still having diarrhea. I made sure to be super careful Friday, Saturday, and today to avoid all gluten and made my meals from scratch to be sure. Yet I still have symptoms. I know it can still be from the chicken salad, and my last reaction lasted about as long. Just wondering if with each exposure, the length of the reaction is longer?

Thanks,

Jenn

Hi Jenn,

I'd say it depends what was in the chicken salad. My episodes with the big D last at least 3-4 days. I think it differs on an individual basis. Just hang in there and drink plenty of water so you don't get dehydrated. Feel free to PM me if you want to vent one-o-one.

Loey

Marilyn R Community Regular
Marilyn R
Posted

When I get glutened, my symptoms last a solid three days. Since I'm underweight, I always try to avoid "D".

If you're a coffee drinker, try a caffeine free tea in the morning vs. coffee. If you really need caffeine, green tea is the way to go. Coffee is too harsh for your system when you've been glutened, at least in mho.

Since chicken salad is the source of your problem, I'd avoid chicken as a protein source for a couple of days. (But that could just be me.)

Homemade soup with rice and vegetables will give you nutrients and sustenance.

A hot soak in the bath with epsom salts and baking soda can help relieve the stress.

Any fruit with a rich source of pectin is good when you have "d", like blueberries or apples or star fruit, and is good for your autoimmune system because of the antioxidants. I used to avoid fruit when I had loose stools but it's good to consume fruit, either raw or in a compote. Kaopectate (common Anti-diahhreal medication) is derived from fruit pectin.

Pepto Bismal is gluten-free too. Hope you feel better soon.

Jenn624 Rookie
Jenn624
Posted
  • Author

Thanks so much! I am starting to feel better, thankfully!

:) Jenn

chili Apprentice
chili
Posted

when I get glutenend it lasts for like a week!! this really sucks...the diarreah stopped now it is the fatigue..shortness of breath, tingling in my hands and legs...

Marilyn R Community Regular
Marilyn R
Posted

when I get glutenend it lasts for like a week!! this really sucks...the diarreah stopped now it is the fatigue..shortness of breath, tingling in my hands and legs...

I know your pain chili ... There was a really good article about Gluten Ataxia in "Living Without" Magazine that you might be interested in reading. It appeared in last month's issue, not the current issue.

Good luck and good health,

:)

Alika Nash Rookie
Alika Nash
Posted

I certainly know your pain! I am 38 years old and have had the "D" all my life, without ever being properly diagnosed, until a week ago!

I have high hopes for my recent diagnosis of celiacs, and pray to god I will be well soon with great efforts.

Someone told me tumeric helps "D" does anyone know if this is true?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

I certainly know your pain! I am 38 years old and have had the "D" all my life, without ever being properly diagnosed, until a week ago!

I have high hopes for my recent diagnosis of celiacs, and pray to god I will be well soon with great efforts.

Someone told me tumeric helps "D" does anyone know if this is true?

Good luck! :)

Tumeric is a great spice, but anti-D isn't one of the things it is known for. It really is a great spice, a natural anti-biotic, antioxidant, and more. The National Instute of Health had some interesting studies about tumeric. Do a search for "health benefits of tumeric" and you may want to start implementing tumeric in your diet. I LOVE Indian foods, so I use tumeric quite often while cooking.

Black seed cumin is more known for an anti-diarrea agent. Make a tea out of 1 tsp cumin seed and 1 cup of almost boiling water. Cumin seed is a good source of iron and delicious when cooked in gluten-free flatbreads or curries, or with potatoes. It's a good source of iron and has been used for ages for digestive problems.

I bought one Indian Cookbook when going gluten-free and received two more as gifts. You have to skip some of the recipes but easily 3/4 of them are gluten-free and absolutely scrumptious.

I pray to God you will feel better soon too. You are so young and have so much life to live, I know things will get better for you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    2. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    5. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748
    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.