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Dairy, Soy And Corn

jeslk

By jeslk
in Coping with Celiac Disease

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jeslk Apprentice
jeslk
Posted

It has been recommended to me that I try and determine whether or not I also have allergies to dairy, soy and corn. But it isn't clear HOW to figure it out. One nutritionist suggested cutting them all out for several months and then reintroduce them one at a time. The gastro doc I saw said it isn't necessary at all, my pcp thinks it's a good idea but is concerned that because I don't show symptoms for gluten, I won't know with the other allergens either.

I'm SOOOOOO confused!! :(

Any advice?

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mushroom Proficient
mushroom
Posted

Do you have any symptoms which may potentially be attributed to dairy, soy or corn?

jeslk Apprentice
jeslk
Posted
  • Author

Do you have any symptoms which may potentially be attributed to dairy, soy or corn?

As far as I know, I don't have any symptoms at all. But I do have celiac, even without the symptoms. And my oh-so-bad health history (see below) leaves me not wanting to take chances. But gluten-free is a big adjustment in and of itself, so I don't want to force myself to cut anything else out unnecessarily.

mushroom Proficient
mushroom
Posted

I would suggest that the only way to do this is to do the Enterolab stool testing which can be ordered online, or are there tests your physician can order which would be covered by your insurance. Obviously, measuring dietary response would be an exercise in futility. :unsure:

jeslk Apprentice
jeslk
Posted
  • Author

I would suggest that the only way to do this is to do the Enterolab stool testing which can be ordered online, or are there tests your physician can order which would be covered by your insurance. Obviously, measuring dietary response would be an exercise in futility. :unsure:

Thanks - never heard of that. Will ask doctor about it tomorrow.

eatmeat4good Enthusiast
eatmeat4good
Posted

The Dr. probably won't know about it. They are online though. And a lot of people here have used them for food sensitivities and gluten intolerance. They can test for several things. Good luck

jeslk Apprentice
jeslk
Posted
  • Author

The Dr. probably won't know about it. They are online though. And a lot of people here have used them for food sensitivities and gluten intolerance. They can test for several things. Good luck

Actually, he did know about it. He's a great integrative physician and is the one who discovered the celiac even though I wasn't complaining of symptoms. He suggested waiting, though - said that until my blood tests for the celiac get to negative, it will be hard to tell what's causing what. So the plan is to revisit the idea in about 6-9 months.

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eatmeat4good Enthusiast
eatmeat4good
Posted

Oh my God! You have got one very smart Dr.!! Why can't I ever find one of those? I'm very impressed that he diagnosed you! And knew about Enterolab! Wow!

cahill Collaborator
cahill
Posted

Oh my God! You have got one very smart Dr.!! Why can't I ever find one of those? I'm very impressed that he diagnosed you! And knew about Enterolab! Wow!

I 2nd that,,,, wish I could find one of those!!

jeslk Apprentice
jeslk
Posted
  • Author

I 2nd that,,,, wish I could find one of those!!

He's one of the best things that has ever happened to me. In fact, I trust him with my celiac issues more than the GI . . . they aren't always easy to find, but if you can find an integrative and/or "functional" medicine doctor - DO IT.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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