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How Long Till I Heal?

chili

By chili
in Coping with Celiac Disease

Recommended Posts

chili Apprentice
chili
Posted

I was diagnosed 2 months ago. The majority of my symptoms have gone away. I still do get the occasional symptom. tingling in the hands and feet, or even heart palpitations. even bowl movements are still not normal..alot better than before? how long does it take for everything to back to normal?

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eatmeat4good Enthusiast
eatmeat4good
Posted

They say children heal the fastest and adults can take 6 months to 2 years to fully heal.

It takes a while.

Brigit Apprentice
Brigit
Posted

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

chili Apprentice
chili
Posted
  • Author

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

Thank you very much!! sometimes I feel that gluten is creeping into my diet!! I try very hard to be gluten free, although I have small children, and I handle bread on a regular basis. I try to sanitize but sometimes I feel it is not enough,

gailc Newbie
gailc
Posted

I hope you get resultsd quickly.

I guess I am lucky, or maybe it is not celiac disease. I had experienced 6 different kinds of pains in my intestines and nausea. They went away immediately. I was shocked. I expected maybe two weeks or 2-3 years as I read somewhere for complete healing.

I had food sensitivities before, beef and eggs, and after the waiting period of a week or so the only change was the 1 1/2 years of diahreah quit cold turkey. I noticed no other changes.

Eliminating wheat has changed a lot of things, dry eye-very painful is almost gone and nose stopped running. Also rice does not bother me now, it was a problem before.

I hope this is not celiac, would be nice to have a piece of wedding cake or something good in a restaurant.

gailc

gfreecarboholic Rookie
gfreecarboholic
Posted

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

mushroom Proficient
mushroom
Posted

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

At this point it is hard to know if you have been glutened. It IS normal to have ups and downs, our good days and bad days, when we first start the diet. Or you could have gotten some cross-contamination somewhere, which is easy to do - especially if you haven't had much experience at avoiding gluten :) Hope you are feeling better soon.

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chili Apprentice
chili
Posted
  • Author

Maybe you got some cross contamination...I am feeling pretty crappy for the last couple of days, all my symptoms are back..I got sick from taking a multivitamin that claimed it was gluten free..I have been paying for it...when I get glutened it takes me a good week to recover. Is that normal? does anyone else take that long...I feel like I have no energy to move. I have 3 small children and find that I am dragging my butt around... I just want to feel better!!

gfreecarboholic Rookie
gfreecarboholic
Posted

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

TSA Rookie
TSA
Posted

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

gfreecarboholic,

I'm new to this forum too! I found out that I was celiac back in Nov 2010, at first it was difficult but now its getting easier. They say it takes awhile to heal. I was sick for a year before I found out, so I'm wondering if it will take another year to be back to normal, if theres such a thing anymore. I wish I would've joined sooner. Good luck and I hope you find your answers!

Tammy

Marilyn R Community Regular
Marilyn R
Posted

I'm almost at the one year gluten-free point. I feel so much better than before, but not up to the level I used to be.

I've been to multiple specialists and they've all run oodles of blood tests. Based on what I'd read on this forum, I recently requested that my endocrinoligist check my Vitamin D level. It's really low, even though I live in the sub-tropics and don't use sunscreen. (I also asked for a B-12 and Iron, those were normal, but other forum members have had results below the normal range.)

The specialist copped an attitude with me about asking for blood tests but I was insistent. She told me being soy intolerant could just be in my mind. When I told my boyfriend about that, he said, "Don't you wish you could just wiggle your finger at her to give her diarreah? You could ask her if that was in her mind or in her PANTS?"

I guess I'm keeping the dear Irish BF, thinking about ditching the doctor. (Her office hasn't called me about my blood tests, I only learned about them because I picked up a copy of them up myself today. They were drawn on 3/15/11.

My advice is to read (especially from this forum), search symptoms, and become a pitt bull in your doctor's office visits. Hope that helps, and hope you feel better soon!

chili Apprentice
chili
Posted
  • Author

Thanks for all the advice, 4th day of my CC and I am starting to feel better!! Have to really watch what I am intaking....

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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