Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Odds I'm Pre-Diabetic?


Fire Fairy

Recommended Posts

Fire Fairy Enthusiast

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.

Fire Fairy Enthusiast

Thank you for responding Yolo. If I just need a standard blood sugar test I have several family members who have the blood sugar test machines. Everytime I've tested it I've been normal.

Dandylion root tea sounds lovely. :)

IrishHeart Veteran

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

YoloGx Rookie

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

Hi Irish heart. Nice to know I gave some good advice.

Meanwhile I would like to ask you about your experience with your thyroid. My friend Graeme right now is "crashing'. He's taking levothyroxin and still can't sleep, is subject to the cold, has constipation, exhaustion but can't sleep, brain fog etc. though he is quite thin. I figure he's having trouble with his adrenals. We had him take a bunch of tests for his thyroid recently which he should get results of next week.

He has celiac too which makes me wonder about the whole thing, if maybe this crash is in part due to his not needing to be on so much thyroxin. However I also think the low adrenals are getting in the way of converting T-4 to T-3 and thus creating a toxic condition.

What seemed to set it off was both the cold weather and his being on a severe anti candida diet. He stopped eating all grains and squash except for zucchinis. I convinced him this was bad for his health. He is doing a little better now that he is eating some rice each day and now has added lentils to his diet. However he still is in a crisis.

Any insights as to what to do meanwhile? Am wondering if he should go see a functional medicine doc. instead of the county doc he usually sees... This has been going on for far too long.

IrishHeart Veteran

Gosh, I do not know what to say about your friend. What does his endocrinologist think of all this?? It does not seem right hat he has so many symptoms while on meds. I think those severe candida diets often cause nutritional deficiencies (JMHO) when someone remains on them too long.

My experience was BEFORE I went gluten-free, when I was very tired and ill and overweight. My TSH was 5.3 and the doctor put me on synthroid. I zoomed to .8. I felt jittery and wired and had a whole bunch of symptoms (we now know were from the celiac) and the endo said snarkily "It's not your thyroid giving you all those symptoms! Your numbers are fine" FINE? I felt awful!!

I started dropping weight and losing my hair rapidly and had MAJOR gastro and sleep problems.

So, I went to a NP who specializes in hormone balancing and she put me on Armour and tested my adrenal function via saliva testing. My cortisol was high in the morning and I was working with an ND, so I tried every homeopathic remedy and supplement to "restore my adrenals" and nothing changed my raciness, anxiety, gastro symptoms, fatigue. I went on an "adrenal fatigue diet", including MORE whole WHEAT, etc. FOR 9 MONTHS..and got more and more ill..!!!!.little did we know...I had celiac and so, I lost nearly two years listening to all kinds of medical practitioners---mainstream and alternative---and things just got worse.

A functional med MD listened to my story, how I felt my thyroid was trying to work on its own and that I was really jumping out of my skin. He ran tests and decided that because my thyroid antibodies were so low, I asked him did he think I needed to be on ANY medication and he said NO. I agreed with him and stopped taking it and within a month, I felt a bit better (well, I still had some bad symptoms because of the gluten but at least I wasn't racing in my brain and unable to sit still) and my numbers, TSH, T3, T4 are all normal now. My latest cortisol readings were within normal range. I believe the gluten affected the thyroid and adrenals and that they are functioning almost normally now as my body gets rid of the gluten.

Going gluten-free has helped me with the other issues of brain fog, rapid weight loss, anxiety, jitteryness...but I think the medicine made me HYPER because I did not even need medicine at all, rather I needed to be OFF gluten!!

So, I think, that in MY case, My thyroid numbers were off --just slightly hypo, for most of my life and the celiac was the real reason. Now that I am gluten-free, I think my thyroid is functioning normally. I'll see next month when I go back for blood work.

Wish I could offer more thoughts regarding your friend.

sorry.

Fire Fairy Enthusiast

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.

He is getting better thankfully--as I hope you are too.

I have him taking dandelion/chicory root tea to help detox--similar to what I suggested for you.

He's also now on natural things to help his adrenals--like ashwaganda, more co-enzyme B vitamins, 5HTP to help him sleep, more frequent meals. He'll be seeing an endocrinologist soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.