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Would Like Second Opinion On Test Results

nuttmegs17

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nuttmegs17 Apprentice
nuttmegs17
Posted

Component ResultsComponent IgA Total 197 Transglutaminase IgA Autoabs < 4.0

I tested positive for Hashimitotos and was GLF for a few weeks to so not sure if this is accurate. I am going to see the celiac GI doc monday and perhaps he will run again.

But everything looks ok right? Just curious if I can safely rule our celiac -thank you!

Just curious if now I can just focus on hashis and not worry about gluten..

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you were gluten free or gluten light then that would make the tests a false negative. Even on a full gluten diet people can still show false negatives on blood tests. The only way to really fully rule out whether gluten is an issue is to take it strictly out of our diets for a couple of months. If you have been gluten free or gluten light make sure you let the GI doctor know this as before they will be able to test you need to back on a regular gluten filled diet for at least 2 months.

nuttmegs17 Apprentice
nuttmegs17
Posted
  • Author

Yes i was on a gluten-free diet for about 3 weeks less than a month ago (getting fuzzy here, I've been lightheaded for several days now so forgive me). I was thinking it would come back negative (as I've heard people here mention that false negatives are common) I will be happy if i do not have it, but of course, if I do, i want to treat my body right...I want an accurate diagnosis. i found an adult celiac center at rush and they had a cancellation and will see me next week. hopefully he'll test for the full panel and I will let him know about the gluten-free period I had recently.

In any case, since i am now showing hashimotos , i will - even if i end up being negative for celiac - continue to demand testing yearly for celiac to keep an eye on it as it seems they go -hand in hand many times

also based on this board and other sites, it seems going gluten-free in general - or as much as possible (if i am not celiac), would perhaps help my hashimotos so i'm learning a lot from this.

Thank you!

mushroom Proficient
mushroom
Posted

Why don't you do things the other way around? i.e., try the gluten free diet strictly for three months, and then challenge it for a week with a full gluten diet. If you do not feel bad after that week then gluten is probably not a problem for you and you wouldn't have to be worried, although you could still have an occasional celiac panel just to check. Since your tests were invalid and you have Hashimoto's disease, I think I would be inclined to be a little more proactive than passive about it.

nuttmegs17 Apprentice
nuttmegs17
Posted
  • Author

I agree and in general i would be inclined to do that (diet and not procedure) but the new GI guy I saw (whom i really like), was highly suspicious of cleliac (he's an md at an adult celiac center at rush) but with my symptons is doing an endo where he is also going to look at other options (if it's not celiac).....i would like to definitly ruled in or out at this point, but am not dropping the hashi's thing. i have found what i hope is a good integrated health MD who will treat my hashis and thus, hopefully, get my symptons down. I actually am more inclined to think my gi symptons are related to hashi's than i am for celiac so am being a bit more proactive about that one, but not dropping celiac until i know for sure (basically i do not want to accidentily leave one untreated, as untreated - either can wreak havoc on your body and trigger other autoimmune problems - just another reason that if anyone is celiac and thinks about cheating they should consider the fact, that they may end up with more problems than another celiac episodes: they could trigger hashi's or graves!)

At the end of the day: hashis/graves/celiacs are something you should be on the look out for if you suffer from any of them. If they rule out celiac now, i will still request the yearly bloodtest to keep an eye one it. I will aslo run yearly tests for hashi's, graves to make sure one isn't about to swing out of wack.

I'm thankful for this board b/c i wouldnt have even known how to test to see if i had hashis! and bam: i finally have something to go on!

Immuniology is so complicated! my biggest time killer has been researching and seeking out docs who dont waste my time....After over a year, I am finally getting somewhere

ravenwoodglass Mentor
ravenwoodglass
Posted

Please keep in mind that there can be false negatives with celiac testing even if we are still eating gluten. Do give the diet a good strict try for a couple of months after you are done with testing.

MsCurious Enthusiast
MsCurious
Posted

I agree and in general i would be inclined to do that (diet and not procedure) but the new GI guy I saw (whom i really like), was highly suspicious of cleliac (he's an md at an adult celiac center at rush) but with my symptons is doing an endo where he is also going to look at other options (if it's not celiac).....i would like to definitly ruled in or out at this point, but am not dropping the hashi's thing. i have found what i hope is a good integrated health MD who will treat my hashis and thus, hopefully, get my symptons down. I actually am more inclined to think my gi symptons are related to hashi's than i am for celiac so am being a bit more proactive about that one, but not dropping celiac until i know for sure (basically i do not want to accidentily leave one untreated, as untreated - either can wreak havoc on your body and trigger other autoimmune problems - just another reason that if anyone is celiac and thinks about cheating they should consider the fact, that they may end up with more problems than another celiac episodes: they could trigger hashi's or graves!)

At the end of the day: hashis/graves/celiacs are something you should be on the look out for if you suffer from any of them. If they rule out celiac now, i will still request the yearly bloodtest to keep an eye one it. I will aslo run yearly tests for hashi's, graves to make sure one isn't about to swing out of wack.

I'm thankful for this board b/c i wouldnt have even known how to test to see if i had hashis! and bam: i finally have something to go on!

Immuniology is so complicated! my biggest time killer has been researching and seeking out docs who dont waste my time....After over a year, I am finally getting somewhere

I think you're in very good hands at the celiac center, nuttmegs17. I would trust that they know what they are doing, and as long as you tell them about the 3 weeks gluten-free, they will know how to test and what to have you do to make sure they get a true diagnosis for you. Sounds like you're really on the right track with a good doctor now! :)

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mushroom Proficient
mushroom
Posted

Just still be aware in all of this that you can test negative for celiac on the blood tests and the biopsy and still have gluten intolerance that needs to be treated with a strict gluten free diet.

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