Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Did You See In Your Little One?


goodnews

Recommended Posts

goodnews Apprentice

Hello everyone! I am in the process of testing for celiac and the more I think about my daughter, the more I wonder about her symptoms. I wanted to know some of the symptoms that you noted in your children that lead you to think of possible celiac. My daughter is 3 1/2. She LOVES carbs....noodles and crackers are her favorite things ever. I have to tell her no often and give her other things. She has been constipated since she started eating solids (not sure if it was when I introduced gluten or not...it seems so long ago, lol). A new symptom is she has had diarrhea (just once a day mostly) for about 8 days this month. Also, her bowel mvmts are at times very pale in color and sometimes have fatty acids floating in on top. She has never had a big appetite, but it has decreased and she just looks tired a lot and doesn't have as much energy. She is very petite. She is sleeping a little more than usual too. And she sometimes says her tummy doesn't feel good. she can have some very irritable moments, but those haven't been too bad lately. So...those are my concerns. I was kind of wanting to wait until my genetic testing comes back in a week or so before I brought it up with her doctor. They already saw some questionable things in a biopsy I had that suggested celiac, but my blood test was negative so this is the route they are going with me.

So what symptoms did your kids have?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



divamomma Enthusiast

My daughter was chronically constipated, irritable, short attention span, constantly hungry, constantly tired, exhaustion, dark cirlces/bags under eyes. She was never underweight nor short. HTH.

goodnews Apprentice

My daughter was chronically constipated, irritable, short attention span, constantly hungry, constantly tired, exhaustion, dark cirlces/bags under eyes. She was never underweight nor short. HTH.

Thanks, that is helpful. It is interesting how different everyone can be. My daughter generally often hungry for snacks...just eats frequently and smaller amounts. But this past week hasn't really been as hungry much.

Roda Rising Star

My youngest son started complaining of random daily tummy aches and "puke burps" last June. Sometimes he would just lay around on the couch and other times he would go off and play. I also noticed on a few occasions fat floating in the toilet. He also developed an irrational obsession with his velcro and strings on his shoes. Every day was a battle if they were not "so so" and even then he would throw major temper tantums over it. He was 5 1/2 at the time and it went far beyond a normal kid fixation. He had his positive ttg in Nov. last year and thats when I put him gluten free (he had negative testing after I was diagnosed). At is 6 yr check up in Feb. the new NP noted that he gained quite a bit of weight (he is still skinny minny). At age 5 he was at the 10th percentile on weight and 50th in height. At 6 she stated he had come up to the 50th in weight too. Hmm... He had bad reflux as a baby and could not tolerate eating, or me eating, any dairy, oats, rice, or tree nuts. He also had issues with chronic rhinosinusitis starting at 2 months old. Eliminating so many foods from my diet, in hindsight, is what eventually lead me to find out I had celiac. So I wonder if he has always had a gluten sensitivity since a baby and it took until he was 5 1/2 to show up on blood work. He rarely if ever complains of tummy aches or reflux any more and the irrational fixation with the velcro straps and shoe strings has ceased to exist, YEAH! He will still have an occasional temper tantrum, but I can directly relate those when he has had a bad case of strep and not gluten.

mommida Enthusiast

My daughter was diagnosed "probable" celiac at 17 months. She exclusively breast fed and her BMs would sometimes have a green cast of the more liquid part and stringy blobs of more of the "fatty" part. This was explained as the description of "over milk production" of the feeding mother. Her first attempt at rice cereal mixed into Breast milk caused severe constipation. Doctors weren"t concerned. Told me to switch to barley cereal that the rice was too binding. Gave her some of the barley cereal and her belly bloated instantly. Brought her into the office and tried to explain how radically her belly distended. They told me babies have bellies. She started vomitting and having severe explosive "D". Honestly I did the research and had to ask to have her tested. Experimented with the gluten-free diet because the wait was so long to be reffered to ped. gastro. She had a major improvement. She was put on a gluten challenge, and ended up being hospitalized for dehydration from the "D" and vommiting. She was too sick to have the scope, blood test results came in elevated, and then she genetic tested (positive for DQ2 and DQ8).

At 17 months the gluten free diet was started and things were great until she was 5.

She starting having symptoms like she was getting gluten from somewhere. Now she was old enough to talk. "D", vommiting, headaches,tired, dark circles under her eyes, and she was complaining that "her whole stomach hurt". She would circle from just under her ribs to just above her hips. The vommiting was getting worse and worse. "Puke burps" and vomitting an entire meal 5 minutes after eating. She went in for the endoscopy with biosy and was diagnosed with Eosinophilic Esophagitus. She has more food "triggers" to avoid but she is doing pretty good and she is 8 now.

Kimmik95 Rookie

My son was just diagnosed a few months ago. His main complaint was joint pain, but he did have occassional belly pains. He also wasn't growing. He'd gone from 75% height and 25% weight to 15% height and 3% weight in about a year and had gained no weight in about a year. We are pretty sure his celiac disease was triggered last year during Kindergarten because he was severely bullied. Chris did also have floaty bm, but wasn't ever really constipated or loose.

Since you are being tested, I would go ahead and have your daughter tested. It won't hurt and then you'd know.

Hello everyone! I am in the process of testing for celiac and the more I think about my daughter, the more I wonder about her symptoms. I wanted to know some of the symptoms that you noted in your children that lead you to think of possible celiac. My daughter is 3 1/2. She LOVES carbs....noodles and crackers are her favorite things ever. I have to tell her no often and give her other things. She has been constipated since she started eating solids (not sure if it was when I introduced gluten or not...it seems so long ago, lol). A new symptom is she has had diarrhea (just once a day mostly) for about 8 days this month. Also, her bowel mvmts are at times very pale in color and sometimes have fatty acids floating in on top. She has never had a big appetite, but it has decreased and she just looks tired a lot and doesn't have as much energy. She is very petite. She is sleeping a little more than usual too. And she sometimes says her tummy doesn't feel good. she can have some very irritable moments, but those haven't been too bad lately. So...those are my concerns. I was kind of wanting to wait until my genetic testing comes back in a week or so before I brought it up with her doctor. They already saw some questionable things in a biopsy I had that suggested celiac, but my blood test was negative so this is the route they are going with me.

So what symptoms did your kids have?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748

    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.