Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Oz: Enemy Of Gluten Free Efforts


jessicaljensen

Recommended Posts

Juliebove Rising Star

What a bunch of hooey! My friend's dad is not only a celiac but a diabetic. So he has to watch his carb intake as well. One is certainly able to eat a gluten free diet and not take in excess calories.

I know plenty of diabetics who eat low carb to really low carb diets. They eat things like meat, fish, eggs, cheese and low carb vegetables. Their diet is pretty much gluten free simply by the nature of what they are eating. No way would they eat grains of any kind!

I don't know a lot about Dr. Oz. I don't think I want to know. What I do know doesn't impress me in the least.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

... indicating that flattened villi are the LAST symptom. It's much like diagnosing cancer in stage 3 or 4.

That is a great analogy for this sucker. I think I may have to borrow this in talking with my mother-in-law about our son and why we keep him gluten free. :)

chasbari Apprentice

(My comments. You can click on the "contact us" at the bottom of the page to e-mail the show directly.)

Dr Oz,

I was somewhat horrified by your recent coverage of celiac disease/gluten sensitivity/gluten intolerance. While I realize it is a complex and understudied subject, there were blatant errors.

First, as any medical professional should know, celiac disease is AUTOIMMUNE. It's not an allergy. Even your average PCP knows this, as do many other health professionals.

Second, processed gluten-free products do often have lower levels of fiber and/or higher levels of refined flours and sugar. This is an issue that many companies are addressing and it is now possible to buy bakery products made primarily from whole grains like buckwheat, brown rice, and even sorghum. Other products may feature added sources of nutrients like ground flaxseeds, or gluten free oats. Van's, for example, makes a buckwheat waffle which is quite respectable nutritionally (for a frozen waffle, which is the issue). A truly healthy alternative would be my typical breakfast, hot cooked whole grain cereal with fruit, nuts, and sometimes maple syrup and soymilk.

Addressing the issue that processed gluten-free foods are not necessarily "healthier" was a good idea. However, by pushing whole wheat and gluten-containing foods on everyone who is not diagnosed with celiac disease, you neglected to include sufficient information on alternative whole grains and unprocessed gluten-free foods. It is entirely possible to eat gluten-free whole grains in the place of wheat, barley, rye, and oats. Cultures ranging from the Andes to East Africa and Asia have do so for millennia. Even areas of Europe were historically dependent on alternative grains like buckwheat or vegetables like potatoes.

A gluten free diet is, like any diet, as healthy as you choose to make it. It is quite easy to prepare your own food and eat generous amounts of fruits and vegetables with whole grains, beans, fish, nuts, eggs, and small amounts of meat and dairy (eaten). I do so most days, but I also like to eat black bean brownies once in a while, munch on the occasional bag of tortilla chips, and even snag some good dark chocolate. As long as these remain in the "treat" category, there is no reason to not consume them.

The statement that people with "gluten intolerance" can eat some wheat is especailly problematic. The most current research shows that there is a substantial "iceberg" of gluten-based disorders beneath the small number of biopsy-diagnosed patients with celiac disease. The broader category includes patients in many situation. For example, some of us have positive bloodwork for the antibodies but negative biopsies (me) and would likely go on to develop it in the future given further exposure to gluten. There was a paper out of Italy recently looking at a range of metabolic biomarkers in biopsy negative, biopsy positive, and controls. The patients with (-) biopsy but (+) antibodies matched of most of the biomarkers shown in the celiac patients, indicating that flattened villi are the LAST symptom. It's much like diagnosing cancer in stage 3 or 4.

In another recent paper, there appears to be a separate immune reaction to gluten outside of the celiac path. In this case, patients have different metabolic profiles and no villi damage but a clear set of symptoms and some positive biomarkers like antigliadins. There is no evidence to support the fact that they can or should eat small amounts of gluten.

Finally, being diagnosed for celiac disease can be very difficult in the US. My father, for example, should have been tested as a first-degree relative given my somewhat confusing but nonetheless significant diagnosis. However, his MD refused, based on a lack of classic celiac symptoms. This is one example among many. Sending a confusing message to your wide audience that eating gluten-free is a trend only, and that even those with gluten sensitivity can eat small amounts of gluten only makes it more challenging for those of us who must eat a gluten free diet to safely eat away from home. Personally, I spent six full months convincing my grandmother that I cannot eat ANY flour. She cannot flour the cake pan; I cannot eat butter that has had toast crumbs in it. Undermining the efforts of those with true gluten-based disorders is quite depressing for us.

I do become ill after exposures-- for example, last fall I ate two bites of fudge that actually had wheat flour it in and had severe steatorrhea for three days and lost 5 pounds (I only weight 110, so that was significant). I was diagnosed with non-celiac gluten sensitivity after mounting classic celiac disease symptoms combined with bloodwork and later genetic testing (anemia, weight loss, diahrrea, pain, fatigue, joint pain, vitamin D deficiency/low vitamin D with supplementation, fingernail abnormalities, bone density loss, and even unexplained bruising, nosebleeds, and fainting). It is very important that I maintain a gluten-free diet, and given the severity of my symptoms combined with bloodwork and genetics, I honestly believe that I was well on my way to developing full-blown celiac disease.

Please do not undermine the important and validity of the gluten-free diet for those who follow the diet for health issues. The celiac community and others who follow a gluten free diet to resolve serious health conditions would appreciate a follow-up show that clarifies these issues.

Thank you,

name, MS

e-mail

blog address

p.s. My apologies for not including lit citations, but I'm not on my home computer. I'd be happy to send them if you or your staff would like them.

This is so well written. Many good analogies. I think more than Dr. Oz should be reading this!

CS

  • 1 year later...
ENF Enthusiast

Dr. Oz is having a show about gluten on Thursday, Sept. 27. His website uses the term "gluten allergy", which is not very encouraging.

Open Original Shared Link

archaeo in FL Apprentice

Shauna,

Thank you for your post. I think Dr. Oz (and his guests, and their ignorance and poor choice of words) have obviously hit a nerve, but I think he was trying, however unsuccessfully, to encourage people (1) not to choose a gluten-free diet to think it's going to help them lose weight (thanks to a lot of other misinformation out there) and (2) to let people know that processed foods - whether gluten-free or not - will likely make you gain weight, and that the better option is whole foods (including safe grains for us).

Simply replacing "regular" processed foods with "gluten-free" processed foods is likely a poor health choice, for anyone. gluten-free processed foods do tend to be higher in calories and fat, and tend not to be supplemented the way that many wheat-based products are. And, let's be honest - how many Americans regularly track how many calories are in their breakfast? (I, too, make breakfast smoothies with whole foods, and pay a lot of attention to what I eat and how much of it I do, but I think it's beyond safe to say that most Americans don't. And though many, if not most, of the folks on this forum do, remember that we also represent a small number of folks with Celiac, so while this reading audience might say "hey, wait, I know what I eat in a day" remember that this popular TV show was not designed for you - it was designed for a much more generic American audience. Like other commenters, I also sometimes choose gluten-free foods with empty calories just because I feel I need the calories and wouldn't mind gaining a pound or two, but I believe, at least, that reaching for those gluten-free chocolate chip cookies shouldn't become a habit.)

I also share your frustration with the gluten-free food industry. Until my antibody levels are down, I will be avoiding oats, but many foods with oats are labelled gluten-free (though I do read packages anyway). There is no reason we shouldn't also have foods that are supplemented (as are wheat-based breads and other processed foods) and higher in fiber.

And I think in some ways Dr. Oz was calling out the gluten-free food industry and highlighting ways it can improve. And isn't that better for us?

Don't get me wrong - I think the language and presentation and some of the information is potentially damaging, and a continued effort to get him to correct the misinformation is great. But it's good to temper criticism with acknowledging positives, too.

shadowicewolf Proficient

Pssssh, just watched it.

He encourages people to go see their diet and start a gluten free diet before getting any other testing done O.o

ENF Enthusiast

The Dr. Oz show had a guest today that was demonstrating some gluten free recipes, which included oats in two out of three of the dishes, and no mention was made that the oats must be certified gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

I didn't watch the show, but here's an amusing write-up: Open Original Shared Link

Funny how they claim that gluten is "increasingly" appearing in beer and cookies...like it wasn't there before. :rolleyes:

And this:

"Dr Barnard guessed that up to 10% of the population, or 20 million adults, could be Gluten Sensitive or have Celiac Disease, most without even knowing they

kittty Contributor

The Dr. Oz show had a guest today that was demonstrating some gluten free recipes, which included oats in two out of three of the dishes, and no mention was made that the oats must be certified gluten free.

And the other dish was full of powdered sugar and chocolate chips...in the same episode where he accuses gluten-free convenience foods as being loaded with sugar and empty calories. So much for "losing weight with gluten free if you do it the right way". :D

Invictus Newbie

Dr. Oz is a fool!

Any MD will tell you this.

He is merely a marketing puppet for HUGE corporations. His network is there for the ratings and he is there for the exorbitant amounts of $.

cmoore Apprentice

What his observations overlooked is how for many going gluten free balances out their metabolism, quiets cravings, and regulates them to such a degree that weight management becomes MUCH easier to do. Sure it takes time to get there but still.......

I saw this show and felt that the main problem with his approach to it was that he did not have the time to go more into gluten free diets in detail. Shows like this are under great time constraints.

Id bet money they will get enough feedback on this that they will need to do a fallow up to it.

An episode with Elisabeth Hasselbeck would be a good call....... and one or two of these folks:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748

    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.