Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3Rd Time's The Charm?


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

So, had a random crying spell this morning, depression and fatigue and headache even though I felt really good when I woke up (slept 9 hours, woke up naturally). I want to punch through a window or just sob. No reason. School is going well and I'm getting the hang of this celiac thing. But I just want to cry and cry.

Looked at the Maranatha almond butter that I had with breakfast today because I needed the protein. "May contain traces of soy......"

GAERHRHGAEHEATGEAFL

I had it on gluten-free SF chips for dinner last night too, so there'll be a little buildup. Besides this I have been very diligent about cutting out soy (ALL forms) for about a week. Since I cut out soy I haven't had these random sleep and depression attacks.

So I guess this means I definitely have a very serious soy intolerance? This is the 3rd depression "attack" that I can link to soy or soy lecithin.

I have no reason to be depressed except for that this is another food item I spent more money than usual on (costs more than PB) that I will have to throw or give away, which is frustrating. When I am using the reasoning part of my brain I feel pretty good. I laugh at jokes in class and enjoy people's company. But I am holding back the randomest tears and the front and back of my head hurts and sometimes my vision is a little off, like it's sliding around (if that makes sense to any of you).

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!

It doesn't really end, you know? If you're intolerant to multiple foods, you're always on the look-out. I have this problem, too.

The good news is that you'll find your go-to foods and you can eat these without worry. If you want to add something new, that's when you have to worry all over again. Also, when you go out to eat or eat at someone's house. That's a worry, too. But once you find your go-to foods, you'll start to feel better. Make sure you find some go-to foods that are fast and tasty. Also, make sure some of them are snack foods that you can carry with you.

I'm a "no gluten, dairy, nuts, or corn" girl, so I know what you mean about feeling bad. I felt bad for a LONG time! But you'll figure it out. Unfortunately, it might take a while. I don't want to sugar-coat it. Eat fruits and veggies and protein. Nuts if you can. Those will be safe-bets. Then add processed foods slowly.

Good luck! Congrats on graduating!

Strawberry-Jam Enthusiast

I was just wondering... does anyone else react to soy like this...?

eatmeat4good Enthusiast

I am sorry you are feeling so bad, but I am so pleased with you that you post what you are experiencing. I am wondering the same things and experimenting like you.

Yesterday I got weak and used Hazelnut Coffeemate which has a may contain soy statement. Other than that I have successfully aboided soy for a few weeks. After I drank the coffee with coffee mate I started getting a low grade headache in the back of my head that kept getting worse. Like you describe. I didn't connect it. The headache lasted all evening and I had to use migraine medicine.

Today when I read your post, I thought Aha! It might be the soy.

I had no idea we could be that sensitive to soy...it is maddening. I hope your reaction passes soon, but thank you so much for your posts because I never would have connected the soy with headaches and depression. I will be watching my reactions more carefully...and my food. Hope you feel better soon girl! Thank you for all the information.

Strawberry-Jam Enthusiast

I've definitely linked the soy to out-of-the-blue depression, even traces... I can't think of anything else it could be. food diary to the rescue.

but I'm still having waves of fatigue especially in the afternoon/evening and I'm still having headaches (some of which are tension headaches I know because my neck hurts too from bad posture recently, but not all of them are from that). It's weird because I'll feel GREAT in the morning often but then have a wave of fatigue by end of day. I'm going to chalk it up to healing/getting over accidents for now and see if that's the answer.

...so yeah, depression attacks linked to soy, along with mondo headache, but sleep/fatigue attacks not sure about yet. that but maybe something else too. or maybe healing. we'll see.

annegirl Explorer

Hey, I totally know the suck that you're going through. :( I don't know if this goes for you, but I try and keep in mind that I already feel so much better!

Soy messes me up pretty bad. Last time I had some I had to take a day off from work, and really should have taken another. The only way to describe how I feel is I feel like I'm engulfed in a toxic cloud and I have a horrible "chemical" headache. It's pretty sneaky, but at least it's required to be listed as an allergen so you're a little safer!

If you're still feeling bad you might take a look at corn. I had no idea how bad it was messing me up until I took everything else out and really noticed the symptoms. I just discovered today that rice gives me the same reactions so you might think on that as well. Be aware that corn is in more things than gluten or soy, there is also the downside that it is not considered an allergen so it is not listed in ingredient labels as such.

Looks like you're right about a month behind me on "losing foods." I know it can be really depressing, and I'm really sorry. Again, I've really tried to focus on the positives. I'm eating waaaay better, feel way better even with the other food issues popping up and I've lost 20 pounds in 2 months so there is a lot for me to be thankful for (and yes, I have to repeat this over and over to myself);)

Hang in there, and congratulations on nearing graduation! That in itself could be the reason for your fatigue. :) School is tough work!

Strawberry-Jam Enthusiast

People keep telling me to give up corn, but I think that part of what I need is patience. The neurological issues are the last to clear up, so they say. My headaches and fatigue will take more than four weeks to dissappear (or one week if you count from my going off of soy).

I don't eat corn every day either... Mostly rice etc. I'm off almost all processed foods. Some of these headaches and fatigue waves come from nowhere, and some are sleep deprivation-related, as I'm still experiencing disturbed sleep (less than before, but it's still there). So I have to keep reminding myself that time is key here.

And AVOIDING SOY ARGGGH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Debbie B in MD Explorer

Oh no!!!! There is soy in chocolate???? Soy lecithin. Oh no!!!!!!! Thanks for making me realize this and now why I have back slid a good bit. Thank you so much. I had avoided soy and thought I had been diligent. Now I can heal even more.Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.