Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawl?


zoogirl

Recommended Posts

zoogirl Rookie

Hi, all! I'm really new to the gluten-free life. Started the diet about 10 days ago. I feel a lot better which is wonderful! :rolleyes: But I'm having a lot of headaches and also feel extremely hungry - 'shaky' even - a lot of the time even though I'm eating a lot better than I used to. :huh: I'm trying to be careful about having enough protien througout the day to keep my blood sugar up (I've had trouble with low blood sugar in the past). Is any of this normal when first going gluten-free? If so, any suggestions for how to get through it?

zoogirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Most people go through a withdrawal from gluten, just like from nicotine. Gluten is like an opioid to the brain and it will take two or three weeks to come down from it. But keep an eye on your blood sugar if you are shaky. The hunger is normal, because once the gluten is withdrawn the body's call for nutrients sends the appetite up.

P.S. Sorry, I forgot my manners; welcome to the board. :D

MichaelJacksons#1Fan Newbie

Hello zoogirl,

Yes, what you are feeling is normal. Before I went gluten free, my body was actually craving carbs for quick energy because I was so fatigued. :blink: Your body is trying to clean itself out, as well as heal itself, so the shakyness and the headaches are the result. Right now, your body is weak, but in a few more weeks you will feel better than you ever have in your life. :D The first few weeks are the hardest. Congratulations on your diagnosis!!

MichaelJacksons#1Fan =D

sandsurfgirl Collaborator

Use the search function on here to search for withdrawals and you'll get lots and lots of threads with info. It helps to know all the weird stuff your body does is normal!

I'm gluten free about a year and 3 months. That's all a distant memory for me, but when it was happening it felt like it would never end. I got better and better all the time, but it was a full 6 months before I had ONE single symptom free day. And another few weeks before the healthy days became the norm.

I had shakes and dizziness for several months and it was due to electrolyte imbalance. The doc suggested that even though my tests for electrolytes were normal that it was still off. There are many electrolyte supplements although at that time all of them made me sick. For me good old Gatorade fixed all of my shakes and dizziness but I had to drink it faithfully every single morning and at times in the afternoon. I also had to really keep up with my water during the day and never let it slip.

Hang in there! Be diligent. Eventually gluten free and healthy will become your norm.

zoogirl Rookie

Thanks, everyone! Glad to know it's mostly normal and will go away. I hadn't thought of Gatorade - that's a good idea. I drink a lot of it in the summer to stay hydrated, but it hadn't occured to me that it could help with electrolytes any time. Mine do get out of whack from time to time.

zoogirl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Doreen Brace
    Newest Member
    Doreen Brace
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.