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Hi, New To All Of This


Hawthorn

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Hawthorn Rookie

Hey all

Ooooh where to start :blink:

I've suffered depression/anxiety issues all of my adult life, to the point of hospitalisation on numerous occasions.

I've also had 'issues' with food, shall we say, for most of my young teen/adult life.

Things got really bad in March of 2010 though, when my grandmother passed away and I had a bout of shingles at the same time.

I've always had cravings and stomach problems, since I can remember. My mum said I had them even as a child. Over the years I rationalised it as comfort eating I guess.

Last march though was a whole different ball game. I'd been feeling drained of energy for a while... I put this down to the depression issues, and the indigestion was due to anxiety and stress or so I thought.

Crunch time came when I got so achey, my skin started flaring up worse with eczema patches (some of which had been there since a teen) and I felt so weak that I remember just sitting on the floor and crying because I felt unable to get back to bed after a nighttime bathroom trip.

The doctor put this down to post viral fatigue after the shingles, and said it could take some time to pass. Blood count came back normal etc. Feeling so bad though, I decided to do a little research of my own. One thing that had a lot of similarities to what I was feeling was Coeliacs. At the time I thought, ok I'll cut out gluten and see how it goes.

It took a while but I began to feel better. Not brilliant, but nowhere near as bad as I had previously.

I have a family, all of whom still eat gluten, so I think that cc may be an issue for me.

So, I decided to go and get tested for coeliacs. After a year of being off the gluten, in so far as a novice like myself can, I went back to eating normal bread, pasta etc. Two weeks the doctor said, long enough to get the antibodies going if I did have coeliacs (it was my request that I be tested for it)

Well, they were the longest, most horrible two weeks of my life. I looked like I was due to give birth, felt sick, exhausted, constipated, and so horribly depressed I felt suicidal. Much much worse than anything that had happened previously. For the first two days I had awful diarrhoea, and then it went to the opposite, so much so I ended up taking laxatives to solve the problem.

My skin got really sensitive, I itched like crazy, I developed a wheeze, runny nose, sore eyes etc.

Aaaand.....the blood tests came back negative.

It's not rocket science here, gluten obviously does not agree with me for whatever reason, and I should eliminate it completely, and cut out any chance of cc that I can. I know this, but I crave chinese food so badly it's not funny. Bread I can live without......I don't have a sweet tooth either, but the thought of spring rolls or sweet and sour is enough to send me into a spin.

Over the last few days it's really hit me how difficult this is going to be. I'm on a small budget, with a family to feed, and from what I've read on various websites it's really difficult to keep everything gluten free if there are family members that do not require a gluten free diet.

My first step was to get rid of the flour. I figured when I bake with that stuff, it ends up in the air and dust settles over surfaces etc. After baking a pie for the family a few days ago i noticed the gurgling tummy, the gas, bloated feeling, and sure enough cravings for the gluten loaded stuff creeping back in again. I'm also feeling not so good emotionally, and I'm really wondering how on earth I can do this. It all just looks so huuuge at the moment.

Despite what the blood tests came back as, I am convinced there is some issue there with gluten. My question is how to eradicate it, when I have a family that love my baking, and I can't afford all of these fancy gluten free foods.

I thought about using the freezer and batch cooking for myself as a starting point, but as I said it's just really hit home these last couple of weeks about how my physical/mental health is when I have gluten, and how to completely switch it about so I don't get any at all.

I have never felt completely right since the major symptoms started......better, but not fit and well totally. I am 99% sure this is because I am still taking in gluten, even in minute amounts. Just because I'm not eating bread and blowing up like a balloon, doesn't mean it doesn't affect me I suppose. Smaller amounts seem to equal smaller effects, but I have noticed that the reaction seems to get more severe as time goes on.

So yeah, feeling totally overwhelmed and wondering what on earth to do now at the moment. Well, not what to do now I guess, but how to do it would be more appropriate.

I looked into gluten free ready meals as a short time option, but boy are they ever expensive :(

So can anyone recommend starting points for me about how to de-glutenise (is that even a word?) my home, without depriving my family of the things they enjoy.

How to get past the cravings? After reading a few posts here, it seems that it's something that I need to go through in order to get to the other, healthier side, but daaang it's difficult.

All of this probably sounds really negative, and I'm sorry for that, it's just a little overwhelming at the moment.

I do feel quite positive in the sense that finally after years of medication and living like a zombie there might just be some light at the end of a tunnel and I don't have to live with this constant brain fog and depression, and neverending medication to keep my mood stable. I think if I can nail this, I might be well enough to work again and that's a huge positive for me too. I just need a little help in getting there. Suggestions with how to keep myself gluten-free without making it a chore for my family too, positive words, anything is appreciated.

As for diagnosis, I cannot and will not put myself (or my family bless 'em) through eating gluten daily again so I guess that is out of the question. Diagnosis isn't as important to me as end results and a normal life.

So, these are the things I have come up with so far, any further suggestions much appreciated.

Wooden spoons - bin.

buy a glass cutting board or seperates for myself and the family.

Is cutlery important to keep seperate? not sure how stainless steel items hold gluten, if at all.

Same question for pans.

I have set aside a cupboard for storing gluten free foods in, and my plates/cups/glasses etc.

Kids have been warned not to drink out of the milk carton :P

I keep some foods seperate (my own butter etc) but due to tight budget it's not always possible to buy two of everything, and keeping forever hungry teens from raiding things that are set aside is proving kind of difficult :rolleyes:

It's also a minefield with labels on produce. On some things it's labelled may contain wheat etc, on others gluten free, and on others still nothing at all.

It's mind boggling.

So enough of my rambling on, and questions........help? :P


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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