Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitive Rash

casnco

By casnco
in Dermatitis Herpetiformis

Recommended Posts

casnco Enthusiast
casnco
Posted

This is a very "sensitive" topic. Has anyone confused DH with hemmeroids? I know this is weird and that hemmeroids come with constipation and diareha ( sorry my spelling stinks) that follows celiac disease/DH. But this is just lingering longer than expected and NOTHING is helping. Some days I feel like I will loose my mind for all of the itching. And it is not like itching makes it any better. And you sure cant do that in public!

I am really embarrased to ask this but I really need to know if what I am experienceing is normal. Anyones kind reply will be helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frenchiemama Collaborator
frenchiemama
Posted

I can't say that I have experienced this, but if I were you I would go see your doctor. I know it's embarassing and all, but you might be suffering needlessly. My mother in law had terrible hemerroid problems and ended up needing surgery to correct them, but now she is no longer troubled.

Do you have DH elsewhere?

casnco Enthusiast
casnco
Posted
  • Author

I do have DH on elbows and stomach right now. Accidental gluten at wedding shower in May and have had small break out ever since. Thats why I was wondering about the other. I have thought about the surgury. I just dont want to jump the gun and then find out it is DH. Thanks for the input. It is invaluable to be able to ask questions here before I get to the doctor.

Actually it was a situation much like the one I am in that led to the diagnosis of DH. I went to my GP for severe itching in that area. She did not know what was wrong, sent me to a specialist. He didn't know what was wrong. After quite a bit of suffering my elbows broke out and a Dermitologist diagnosed DH. With a gluten-free diet none of these symptoms have beeen a problem. It is the accidental glutening that has brought this question to the front of my mind.

frenchiemama Collaborator
frenchiemama
Posted

Well it could be, no two people are the same. I have gotten it on my bum, but not quite in that specific area (close though). Good luck, I really hope that gets better.

Corrine Rookie
Corrine
Posted
This is a very "sensitive" topic.  Has anyone confused DH with hemmeroids?  I know this is weird and that hemmeroids come with constipation and diareha ( sorry my spelling stinks) that follows celiac disease/DH.  But this is just lingering longer than expected and NOTHING is helping.  Some days I feel like I will loose my mind for all of the itching.  And it is not like itching makes it any better.  And you sure cant do that in public!

I am really embarrased to ask this but I really need to know if what I am experienceing is normal.  Anyones kind reply will be helpful.

<{POST_SNAPBACK}>

I have found through trial and error that I cannot eat anything that contains citric acid and chocolate. I have the same problem. Even eating very cheap chocolate will do it. I use a cortizone based cream that my husband got from the doctor for his DH. Give it a try and go off these things for a while and see what happens. You may have sensitivites to other things.

casnco Enthusiast
casnco
Posted
  • Author
I have found through trial and error that I cannot eat anything that contains citric acid and chocolate.  I have the same problem.  Even eating very cheap chocolate will do it.  I use a cortizone based cream that my husband got from the doctor for his DH.  Give it a try and go off these things for a while and see what happens.  You may have sensitivites to other things.

<{POST_SNAPBACK}>

OMG! Give up chocolate and citric acid. This is the pits. I guess I will lose a little weight. I know I shouldn's complain at least their might be a non invasive way to get rid of this awful problem! Thanks for the pointer. I will give it a try.

Matilda Enthusiast
Matilda
Posted

..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdford Contributor
cdford
Posted

Yes, the DH/celiac disease can cause anal itching. Yes, hemorrhoids are a possibility.

There is also a far more "normal person" possibility that is pretty common in the south. If you have children who play outside or if you do much gardening, you might have pinworms. These get into your system and come out to lay their eggs just outside the anal opening. The way to check this possibility is to wait until it is dark at night and then take a flashlight and mirror to check the area. Alternatively, you can use the sticky side of some tape and get a sample from the area and place it against a dark piece of paper. If there are small (1/4") white "threads" or tiny roundish white spots, you may have worms. No need to panic or run to the doctor. A quick trip to the pharmacist for a bottle of meds and you can get rid of them. It is OTC. Just be sure you also wash your sheets in hot water daily for several days and vacuum your house and furniture well.

casnco Enthusiast
casnco
Posted
  • Author

Matilda:

Thanks for the link!!! Man, I thought I was going nuts. Not that I am glad anyone else has this problem, however, since people do I am really thankful they are wiling to talk about it!

I just finished looking at the link and reading the postings. Not that I have an answer for the cause, but I know I am in "good company".

casnco Enthusiast
casnco
Posted
  • Author

cdford:

Thanks I forgot about that possibility. Yuck! Isn't this so much fun?

  • 2 weeks later...
Guest maur
Guest maur
Posted
I have found through trial and error that I cannot eat anything that contains citric acid and chocolate.  I have the same problem.  Even eating very cheap chocolate will do it.  I use a cortizone based cream that my husband got from the doctor for his DH.  Give it a try and go off these things for a while and see what happens.  You may have sensitivites to other things.

<{POST_SNAPBACK}>

I am new to this group. I have the same problem and I eat chocolate everyday! It is pretty much my one luxury. That is going to be hard to give up, but if it makes a difference, it is worth a try!

frenchiemama Collaborator
frenchiemama
Posted

I was looking up something else and I came across this, thought you might be interested:

Open Original Shared Link

Guest maur
Guest maur
Posted
I was looking up something else and I came across this, thought you might be interested:

Open Original Shared Link

<{POST_SNAPBACK}>

Thanks for the info! I started thinking some more after I made my post, and I actually think my H problem might be related to caffienated coffee.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.