Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Charcot-Leyden Crystals?

melgag21

Recommended Posts

melgag21 Newbie
melgag21
Posted

Has anyone ever had a stool test show Charcot-Leyden crystals? Ova and parasites were negative. I haven't received results from my celiac workup yet, only the stool results. I had a biopsy and it showed inflammatory cells and intraepithelial lymphocytes and rare villi. This diagnosing process is taking longer than I like, in the meantime I'm in pain and misery! I have no idea if I am celiac or not, and neither do the doctors. The GI office I go to is not very helpful. Thanks for any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Hi melgag21.

I searched Charcot-Leyden crystals and found this:

Open Original Shared Link Charcot-Leyden crystals are formed from the breakdown of eosinophils and may be seen in the stool or sputum of patients with parasitic diseases. The crystals are slender and pointed and stain purplish-red in the trichrome stain, as shown in this image. These crystals can appear in a variety of sizes and only indicate an immune response, but the cause may or may not be a parasitic infection.

ravenwoodglass Mentor
ravenwoodglass
Posted

What did they mean by 'rare villi'? If that means that most villi were blunted or absent that is consistent with celiac as are the other findings on the scope. Since you have had the scope if you have already had blood tests go ahead and give the diet a good strict try.

melgag21 Newbie
melgag21
Posted
  • Author

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

I am still waiting on the celiac bloodwork.

My stool sample was negative for ova and parasites but says there are Charcot-Leyden crystals in it.

My doctors office is....less than helpful.

I'm at a loss. Has anyone had results like these? Could it be celiac disease? My symptoms include- weight loss, diarrhea, whole body aches, fatigue, irritability, stomach pains...

Thanks so much!

melgag21 Newbie
melgag21
Posted
  • Author

I have no idea what they mean by rare villi. I am so confused! I just posted another thread with the exact terms they used. I hate waiting and not knowing.

Dixiebell- I found that same site. I teseted negative for parasites. I am just so confused and frustrated.

Thanks everyone!

:)

ravenwoodglass Mentor
ravenwoodglass
Posted

Your issues could definately be celiac related. No matter what the test results are you should do a good strict trial of the diet after you are done testing. The changes you have that were found in the biopsy are consistent with celiac that has not yet progressed to full villi destruction.

melgag21 Newbie
melgag21
Posted
  • Author

I got a paper in the mail today from the GI. It said my celiac workup was negative. The doctor had said she would be shocked if it was negative. I don't go back until June! Should I go gluten free until then? Or no, in case they redo the tests? Should I try Enterolab? I had an abnormal small bowel biopsy and stool sample so I have no idea where to go now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

The way I understand the report is that you have inflammatory changes/increased inflammatory cells in the lamina propria

and they found some intraepithelial lymphocytes (white blood cells) in the following two places: 1. crypts 2. villi (rare being just a few?)

Sounds like you have early changes consistant with celiac without the villi damage. If this is the case then consider yourself lucky to find out before the villi were destroyed. Give gluten free a try until your next appointment (you said you had blood work already) and see if it improves your symptoms.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    2. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    3. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well. Thanks again (newbie here 😀)
    5. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748
    rolland mcclay
    Newest Member
    rolland mcclay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.