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Symptoms Only Sometimes?

DanieGurl

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DanieGurl Rookie
DanieGurl
Posted

Hi guys,

I know some people have really extreme symptoms relating to gluten but is it possible to have mild symptoms all the time and then occasionally, like once a month or couple of months, feel really crappy for a few days or a week?

I find ill feel really bad for about a week but then it goes back to just normal crappy feeling =)

anyone else get this?

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ravenwoodglass Mentor
ravenwoodglass
Posted

I did for years before the D became a daily and then a day and night occurance. I don't think it is unusual. Since I had kids I thought I was just picking up stomach bugs or had a sensitive stomach. Doctors just figured I had IBS and lactose intolerance. I was told for years to just get more fiber and avoid milk. After it became a daily happening doctors just said to take immodium before I left the house...daily :angry: and handed me scripts for antidepressants.

hsmomof6 Rookie
hsmomof6
Posted

I am wondering about this, too. I have been having GI issues off and on for 9 months. I have had a period of 4 to 6 weeks during that time when I felt great and I was eating gluten. Then, after a stressful event, I started with D, gas, and bloating again. My GI tested me for Celiac, but said I didn't have it. My tests were all negative, except the anti gliadin antibody IgA. Everything I read says this can still be Celiac or non-Celiac gluten sensitivity. I am just having a hard time accepting that I could feel perfectly fine for a period of time while ingesting gluten, if I really have Celiac or gluten sensitivity.

josh052980 Enthusiast
josh052980
Posted

I've had symptoms on and off for 3 or 4 years now. They seem to come back the worst when I'm stressed out. I haven't been to the doctor yet (I need less stress, not more). But I'm in process of cutting gluten out entirely and feel dramatically better. Even when I have symptoms now, they seem to not last as long. I used to get messed for days, but I think that was cause I wasn't cutting the gluten out.

I think it just comes down to your body. If you don't have full blown Celiac and are just intolerant, like it seems I am, I think your body just kind of "personalizes" it's reaction, but I don't think you're experiencing anything out of the "norm".

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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