Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Test---How Long Until We Test Again?

Staceyshoe

Recommended Posts

Staceyshoe Apprentice
Staceyshoe
Posted

My 6y.o. son's celiac test was negative. He is not symptomatic, so I do trust the result. He is positive with THE genetic subtype most likely to result in celiac, and he is IGA deficient (which I understand also increases the risk that he may develop celiac). I've heard of too many people without classic symptoms who have celiac and don't want to overlook it. At this point, I'm thinking that I may have him tested again around age 16--so there is time to adjust to a new diet before he leaves home if it's positive. Does this sound like a reasonable plan? How often would you test on someone without symptoms but who is higher-than-typical risk for developing it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

In countries that routinely screen for celiac they test around age 4 and again at puberty. Of course if he develops any issues, even with learning and mood not just GI related he should also be tested then.

Staceyshoe Apprentice
Staceyshoe
Posted
  • Author

Thank you! That really helps with decision-making for the future.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,122
    • Most Online (within 30 mins)
      7,748
    jenr8er
    Newest Member
    jenr8er
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Sorry, I think I got you mixed up with another poster.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      GI DX celiac despite neg serology and no biopsy

      By RMJ · Posted

      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.