Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

These Seem Gluten Free- Why Are They Bothering Me?


HS7474

Recommended Posts

HS7474 Apprentice

I love these 4C Totally Light to Go water flavoring packets. However, I'm pretty sure that they upset my stomach and give me "gluteny" symptoms. I can't figure out what the offending ingredient might be. There is also a variety that are energy ones, and those ones are even worse and cause nausea. Could anyone help me try to determine if there is anything specific that may be bothering me? I'd love to know so I could try to pinpoint and avoid it in other foods. I'm getting super sick of my seemingly daily symptoms, water packets or not.

Flavoring Packet flavors and ingredients:

Wildberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Natural & Artificial Pomegranate and Wild (Mixed) Berry Flavors, Potassium & Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 20 mg of Antioxidants), Sucralose, Magnesium Oxide (Prevents Caking), Cellulose Gum, Xanthan Gum, FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1.

Cranberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Artificial Cranberry Flavor, Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 25 mg of Antioxidants), Natural and Artificial Pomegranate Flavor, Sucralose, Gum Arabic, Magnesium Oxide (Prevents Caking), FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1.

Fruit Punch: Citric Acid, Natural and Artificial Flavors, Ascorbic Acid (Vitamin C), Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Artificial Color FD&C Red 40, Sucralose, Gum Arabic, Magnesium Oxide & Tricalcium Phosphate (Prevent Caking), Titanium Dioxide, Artificial Color FD&C Blue 1.

Lemonade: Citric Acid, Natural Lemon Flavor, Sodium and Calcium Citrate (Control Acidity), Ascorbic Acid (Vitamin C), Cellulose Gum, Acesulfame Potassium, Partially Hydrogenated Soybean Oil, Natural Lemon Juice Solids, Sucralose, Magnesium Oxide (Prevents Caking), Artificial Color FD&C Yellow 5.

Energy Flavoring Packets:

Berry Ingredients: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Acesulfame Potassium, Natural (Mixed) Berry Flavors, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Red 40 & Blue 1, Folic Acid (B9), Cyanocobalamine (B12).

Citrus: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Natural Citrus Flavors, Acesulfame Potassium, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Yellow 5, Folic Acid (B9), Cyanocobalamin (B12).

Orange: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Natural Orange Flavor, Caffeine, Acesulfame Potassium Sucralose (Splenda Brand), Niacinamide (B3), Silicon Dioxide, Calcium Pantothenate (B5), FD&C Yellow 5, Pyridoxine HCl (B6), FD&C Red 40, Folic Acid (B9), Cyanocobalamine (B12).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

Sucralose, maybe?

Magnesium can also affect GI function...

You could also get some juice or something to dilute in water.

Looking for answers Contributor

They seem to be full of chemicals and additives. I think my stomach would be upset too...I know the gums in it would make my stomach hurt.

cassP Contributor

it might be the cheaper quality vitamins... i know if i take vitamins from the grocery store- i get incredibly nauseus.. also, zinc makes me nauseas. and ascorbic acid gives me gerd. or it could be the corn byproducts ??? caramel color sometimes makes me nauseaus and i think it's from corn ??

T.H. Community Regular

Might not be the ingredients, either. It could simply be that it's contaminated somehow. They say they are gluten free - did you ask if they tested for gluten? Do they test every batch, or periodically? If they test, what is their gluten ppm detection cutoff?

If they say they don't test because it 'has no gluten ingredients so it's gluten free,' then they're, well, very ignorant. Because if that was all it took, then we could all go to restaurants and there'd never be an issue with cc, ya know?

shauna

mushroom Proficient

And then again, there are all those dyes :huh:

GFinDC Veteran

I am pretty sure those water thingies are what turned the Toxic Avenger. Looks like a chemical factory product list not a food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HS7474 Apprentice

Ok, ok, I know they aren't healthy but they are delicious!

Thanks for all of the replies :) I'll, obviously, stay away from them now.

I don't seem to have a problem with corn but I'll keep an eye out for the gums, vitamins, and caramel color.

The gums and vitamins hadn't occurred to me before.

I have sucralose regularly in one of my hot chocolates and don't seem to have an issue with that so I'm pretty sure that's not the issue.

I'll see if I can find the contact info for the company. They themselves didn't actually declare it gluten free, it was just me going by the igedients :ph34r:

Thank you again!

  • 1 month later...
momof2peanutz Newbie

Citric acid!

It's found in most diet drinks and it gives me a major reaction too. It's in diet Snapple and was in my diet cherry soda and diet root beer.

Also, this site was helpful to me re: additives. Open Original Shared Link

This one looked very good, too: https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

momof2peanutz Newbie

This safe list looks really good too:https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

Actually sodium lauryl sulfate is on the "good list" and I know a lot of people can't use soaps with this in it if they're celiac, so .. I don't know if this list is great or not..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.