Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Symptom Or Not?


rmmadden

Recommended Posts

rmmadden Contributor

I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

I can definitely relate. I had pain in my neck and shoulder area for years. A physical therapist said they felt like "grape clusters" only harder. No one could explain why I had them, an MD called them muscle spasms and I took a lot of muscle relaxants which helped. When I went gluten-free they went away and so far haven't returned (YAY)! :D

kvogt Rookie

Sounds like fibromyalgia.

dmullen Newbie

I totally agree with your feelings. When I have a a problem the first thing that bothers me after the intestinal bloating and constipation is pains all through my neck and jowels. If I keep to a very strict diet is seems to go away after a couple days; but if I keep bothering it, it ends up with severe pains and swelling.

It's never forgiving of a bit of a slip-up.

mangogirl Newbie
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

drjmarkusic Newbie

<{POST_SNAPBACK}>

It doesn't sound like fibromyalgia as that disease is significantly more pervasive toward the muscles in the back and around the ribs. Celiac Disease has many different symptoms and myalgia is not one of them; however, if you are on a cholesterol medication it can cause myalgia and would check that if those meds are administered. People who have celiac disease are people who become stressed with negative stressors. I don't know if this is what has caused celiac disease to surface or it is a part of the disease. People experience stress in many ways and one of those which is most common is a tightening in the shoulders, neck and jowels. However, what I have found is that there is stress reduction while gluten-free. I find it important to remain gluten-free with no cheating.

malka Newbie
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



malka Newbie

:rolleyes: HELLO, YES I DO, BUT DID NO REALISE THIS WAS CAUSED BY GLUTEN, THOUGHT IT WAS FROM SITTING TOO LONG AT THE COMPUTOR. THE ONLY THING I COULD PUT IT DOWN TO OTHER THAN SITTING, IS I HAVE RYE BREAD 100% FROM TIME TO TIME, AND SOMETIMES GET A HEADACHE, WOULD YOU KNOW HOW MUCH GLUTEN CONTENT THERE IS IN RYE FLOUR?

HAVE A GREAT DAY,

MALKA

I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.