Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5 Weeks In And Struggling...


Juliette

Recommended Posts

Juliette Rookie

Hi everyone,

I'm from England. I've been reading posts on this forum for a while now and it seems to be the best one I can find for advice and support so today I thought I'd join.

I'm twenty-one years old and I've been gluten-free for five weeks now. I had two slip-ups in the first two weeks but since then I have not had the symptoms which I relate to ingesting gluten- my body feels suddenly weak and shaky, my stomach quickly becomes very unsettled about half an hour-hour of eating it. I am very careful with utensils etc..

However, things are not going so well. In the last two weeks I've developed diarrhoea, specifically in the mornings, and over the past week my stools have been green (sorry for the detail but it's starting to worry me!) I know green stools mean that food is passing through the body too quickly and my doctor told me that until my intestines heal, that will often be the case. But what I was wondering was why the diarrhoea has developed while on the gluten-free diet, because I never had it before and my intestines have been damaged for longer than the last two weeks. It's confusing me.

I take iron and calcium supplements, have cut out dairy and am eating only natural foods at the moment: vegetables, fruit, rice, potato, meat and fish. I think what's most frustrating is that I'm eating better than I have in my whole life, and I feel worse. I know there could be other things I'm allergic too, but my doctor says that because it's so early on, my symptoms are normal or at least, not unexpected. I get other symptoms, such a shaking hands, tiredness, shivers, weakness, headaches, but I hope these will improve as I get further in on the diet. My doctor prescribed me antispasmodics but they don't seem to help.

I'm sorry for having a bit of a rant, but I'm feeling really frustrated by it all. I have my final exams for university in a week and I know the stress is just making it worse.

I was just wondering if anyone else has had a similar experience? Is getting worse before you get better a common experience?

Any advice or stories about your experiences would be so grateful!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heatherjane Contributor

How long have you been taking the iron? That will also cause green stools. If you are relatively new to a diet of whole/unprocessed foods, I'm sure that would be having an effect as well, since your body is detoxing. I would also make sure you've ruled out sources of contamination...toasters, shared condiments, lip products, medications... gluten can sneak in anywhere.

Hang in there... I was one of those who felt worse before it got better. It's different for everyone.

ravenwoodglass Mentor

I was going to ask the same question about the iron. If your very low perhaps your GP could give you injections for a bit instead. It does take a while to heal. Make sure that you are taking all the precautions we need to take in our homes to prevent cross contamination, replacing scratched pans, toaster and wooden utensils, not sharing butter, nut butters etc and do check any supplements and meds to be sure they are gluten free.

Welcome to the board and ask any questions you need to. I hope your feeling better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,944
    • Most Online (within 30 mins)
      7,748

    Lori Beller
    Newest Member
    Lori Beller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.