Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Advice


nadinec

Recommended Posts

nadinec Newbie

Hi Guys

I have been gluten-free for 3 weeks and I am still daily having symptons. I no longer have D but have found that certain foods give me a fussy head, sore stomach, bloating and lots of gas.

I am also lactose intolerant and keeping away from sugar and strachy foods to allow my intestine to heal. I am 100% sure that I am gluten-free but why I am still getting what seems to be food reactions???

I am going to get allergy tested next week for other foods, but I am concerned that I am accidently ingesting gluten wihtout knowing. But how am I suppossed to know if i don't know how my body will react if I do have gluten (I have no measuring stick). I jsut don't know what is going on, I feel really out of control and I am really sick of tyring to figure this out.

Doctors don't know, dieticians are clueless - how am I suppossed to know???

I just want it all to go away.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Don't expect your symptoms to go away so soon. It took me 8 months to feel normal again and all that damage doesn't suddenly disappear. Give your body time here. Any improvement that soon should make you feel happy.

rmmadden Contributor

It's a long, slow process to heal your intestine's. I didn't start to feel better until after 5-months and I still have bad days after being gluten-free for 8-months. I hear that depending upon how much damage one has it could take up to 2-years to heal.

Some theories talk about Gluten withdrawal after going gluten-free. You might have that or other allergies....who knows? Try not to judge too much on the day-to-day prognosis at this point as it's really hard to see much improvement. Look at it from a bigger picture and you will be able to look back and see how you have improved.

Hang In There & Best Of Luck!

Cleveland Bob B)

Suezboss Apprentice

Is there anyting that can be taken to hlep the sore stomach?

swittenauer Enthusiast

What happens if you have some gluten? Do you have to be 100% gluten free for a period of time before you get any better or what happens if you slip up?

KaitiUSA Enthusiast

If you have some gluten then it gives your intestines damage and takes longer to heal. When I get the smallest amount of gluten I am sick for 2 weeks. There is not much you can do during a reaction except wait it out. The time frame for feeling better after going gluten free varies. With me it took me 3 months to feel alot better and 8 months to get back to normal.

Merika Contributor

Sore stomach....peppermint, as in candies and tea. There was a thread here a while back on everyone's favorite form of peppermint :) Also, ginger tea (cut up about 3 quarter-size (as in coin) pieces and steep in hot/boiling water for 10 minutes, don't cook it).

Hth,

Merika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



perfect010 Newbie

When you are first on the diet it is hard to figure it all out. You need to pay attention to what your body is telling you. 3 weeks is not very long but you are on yourway. You are new to the diet and it is very likely that you are eating something you shouldn't be. Read and educate yourself as much as possible. Go to celiac.com for starters, this site will give you ample info. Make sure you drink a LOT of water, this is great for flushing and replenishing your intestines to help them heal. Look for a product called colostrum, this is usually found in health food stores or on line. colostrum is what is found in a mother's breast milk and it is very good for replenishing and helping heal the intestines. It helps the lining be healthy and work properly. Read about colostrum and determine for yourself, but all I can say is it helped my son, and myself both. Even though we have been gluten free for three years we still use this as a supplement to keep our intestines in good shape. I can't stress enough about drinking water, there is a book called "Your bodies many cries for water" it is excellent and so true. Also since you are just starting this diet, make sure you have rid your home of anything with gluten, to prevent contamination, and try eating meat, vegetables, fruit, rice, and potatoes. Nothing pre made get fresh and cook it yourself. Be patient you will start feeling better. It just kind of hits you one day "hey I am feeling ok"! A big thing right now is to stay away from foods that are real fatty and also milk porducts. These can irritate the bowel when it is trying to heal. Having food allergy testing might not actually give you a true picture at this point. your body sure is going through a lot right now. Try process of elimination--Also don't eat the same foods several times in a row. Mix up your menu. Like you may have eggs for breakfast, tuna for lunch and chicken for dinner, then the next day have gluten free toast for breakfast (make sure only gluten-free products have been used in your toaster, your should have bought a new toaster when you were diagnosed) fresh fruit or salad for lunch and pork chops for dinner, ect. You don't want chicken salad for lunch, chicken for dinner and then leftover chicken for lunch the next day. Mix things up and it will make it easier for you to eliminate if something is bothering you and it gives your body a chance to tell you the problem. Don't look for the change to be immediate, your body has to overcome the years of abuse and it has to adjust to the newness of what is good for it. It will be working hard to heal and replenish and that will take a lot out of you at first, but you will become stronger, more alert, with more energy. Vitamins are a great help also, bu make sure they are all natural and not man made, look on the interent if you don't have a health food store. Let us know how you make out or if you have any more questions.

nadinec Newbie

When you are first on the diet it is hard to figure it all out. You need to pay attention to what your body is telling you. 3 weeks is not very long but you are on yourway. You are new to the diet and it is very likely that you are eating something you shouldn't be. Read and educate yourself as much as possible. Go to celiac.com for starters, this site will give you ample info. Make sure you drink a LOT of water, this is great for flushing and replenishing your intestines to help them heal. Look for a product called colostrum, this is usually found in health food stores or on line. colostrum is what is found in a mother's breast milk and it is very good for replenishing and helping heal the intestines. It helps the lining be healthy and work properly. Read about colostrum and determine for yourself, but all I can say is it helped my son, and myself both. Even though we have been gluten free for three years we still use this as a supplement to keep our intestines in good shape. I can't stress enough about drinking water, there is a book called "Your bodies many cries for water" it is excellent and so true. Also since you are just starting this diet, make sure you have rid your home of anything with gluten, to prevent contamination, and try eating meat, vegetables, fruit, rice, and potatoes. Nothing pre made get fresh and cook it yourself. Be patient you will start feeling better. It just kind of hits you one day "hey I am feeling ok"! A big thing right now is to stay away from foods that are real fatty and also milk porducts. These can irritate the bowel when it is trying to heal. Having food allergy testing might not actually give you a true picture at this point. your body sure is going through a lot right now. Try process of elimination--Also don't eat the same foods several times in a row. Mix up your menu. Like you may have eggs for breakfast, tuna for lunch and chicken for dinner, then the next day have gluten free toast for breakfast (make sure only gluten-free products have been used in your toaster, your should have bought a new toaster when you were diagnosed) fresh fruit or salad for lunch and pork chops for dinner, ect. You don't want chicken salad for lunch, chicken for dinner and then leftover chicken for lunch the next day. Mix things up and it will make it easier for you to eliminate if something is bothering you and it gives your body a chance to tell you the problem. Don't look for the change to be immediate, your body has to overcome the years of abuse and it has to adjust to the newness of what is good for it. It will be working hard to heal and replenish and that will take a lot out of you at first, but you will become stronger, more alert, with more energy. Vitamins are a great help also, bu make sure they are all natural and not man made, look on the interent if you don't have a health food store. Let us know how you make out or if you have any more questions.

<{POST_SNAPBACK}>

nadinec Newbie

HI Guys

Thanks for all your replies. I know that I need to be more patient - it is just so frustrating (as you all know). I have had D all weekend so now am really thrown, but I guess I just need to strip my foods back and keep to the basics for a while.

It is really hard to beleive that this is now my life...

This site is great and I will keep asking questions along theway.

Thanks

Nadine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

    2. - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,318
    • Most Online (within 30 mins)
      7,748

    acurn18
    Newest Member
    acurn18
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.