Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disneyland


beatthewheat

Recommended Posts

beatthewheat Newbie

My best friend invited me to go with her and her family on an RV trip to Disneyland for her sixteenth birthday... Her family believes that being gluten free is a fad and doesn't recognize that it is serious.. My mom doesn't want to let me go because she is worried about how im going to eat.. I have only been gluten free for 5 months and i don't want my intolerance keeping me from going places and having fun especially missing out on my best friend's 16th birthday!! Can anyone share their experiences with Disneyland or give me any tips? I would have to pack a weeks worth of food... also any advice about dealing with her parents disbelief? thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

At Disneyland, it is easy to eat gluten-free. They do a very good job with that.

If this family you are going with will not take your illness seriously, you should not go. You and your mom could talk with them. Offer some solutions like bringing your own food and pans. & then making your own stuff to eat. Money for food at Disney. Even if they take the gluten-free thing seriously, you can't expect them to understand or not forget.

If they still think it's silly, you have to realize that this isn't a safe place for you or me. If you had an allergy to peanuts but they wouldn't give up on having PB in the RV, you couldn't go.

I am hoping if your mom talks to them, they will take it seriously. But you have to realize that there are a lot of people in the world who only worry about themselves.

GlutenFreeManna Rising Star

My best friend invited me to go with her and her family on an RV trip to Disneyland for her sixteenth birthday... Her family believes that being gluten free is a fad and doesn't recognize that it is serious.. My mom doesn't want to let me go because she is worried about how im going to eat.. I have only been gluten free for 5 months and i don't want my intolerance keeping me from going places and having fun especially missing out on my best friend's 16th birthday!! Can anyone share their experiences with Disneyland or give me any tips? I would have to pack a weeks worth of food... also any advice about dealing with her parents disbelief? thanks!

I don't have any experience there, but there are many threads here about eating gltuen free at Disney. Disney does great with gluten-free, but I think you do need to call ahead to get the gluten-free options. The problem will be your friend's parents. Can your mom talk to them and explain that this is a serious medical condition? Or perhaps you could get a drs note explaining your need to be gluten-free? Would they be paying for your food on this trip or would you be buying your own meals? What would you do if they took you someplace to eat where there is nothing safe? Are you outspoken enough to ask for safe food in places and speak up when somethign is not right (like if the salad you order comes out with coupons or something?) Because it sounds like these adults will not support you if you do. Will you have your own cell phone to call your parents or someone else to ask for help if something major happens (like all your gluten-free food is ruined/lost/not enough)? What is your emergency plan if these people sabotage your food (seriously it has happened to people here by other that thought this was all in their heads) or just refuse to take you to the Disney restaurants that have gluten-free options? Your mom has good reasons to be concerned about these people not taking your diet seriously. I think you will need to convince her that you can stand up for yourself and you have a back-up plan if things go wrong.

Looking for answers Contributor

I have an annual pass and visit/eat there regularly. They are very accomodating and knowledgable - I've never had a problem. No need to call ahead, you just need to pick up the gluten free list from City Hall on your way in.

Coleslawcat Contributor

We went last month and it was a breeze to eat gluten-free there. Just pick up the gluten-free listing of foods at City Hall when you get there. It gives you a list for all of Disneyland and California Adventure, including the carts. I went into the pizza restaurants in Tomorrowland (sorry can't remember the name) with my list in my hand. The employee saw it and told me to go to the front of the restaurant and the chef came out and talked to me about what I wanted. He assured me it would be made safely. I felt like I was in very good hands there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.