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Confused By Biopsy

JenF.

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JenF. Newbie
JenF.
Posted

This April I had a biopsy to test for celiac disease.

In january I had the blood test done and it came back highly positive.

When my doctor got the biopsy results she called me and read them to me "Suggestive of possible early celiac disease".

Suggestive of possible early celiac????? Is this just how some specialists talk? Those terms do not sound very definitive to me. Should I get a second opinion?

I feel like they have told me " you maybe probably have it but we wont say yes for sure" and I am very frustrated.

I have been gluten free for a week now and my stomach issues have improved tremendously.

Has anyone else had a similar experience?

Thanks

Jen

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mushroom Proficient
mushroom
Posted

Hello, Jen, and welcome.

Actually, I think you do have your answer. Your blood results were highly positive. Your biopsy says it looks like celiac but we caught it early. You respond positively to the gluten free diet. I would think that should be good enough to convince you. What leaves any doubt in your mind?? :)

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with Mushroom. Consider yourself diagnosed and be glad they caught it early if that is what they did and not just that they biopsied an area that was less damaged because damage can be spotty. You had positive bloods, are improving on the diet and the biopsy confirmed it. Don't worry about the specialists wording just continue on the diet and continue healing.

Mizzo Enthusiast
Mizzo
Posted

I agree as well, suggestive of early Celiac sounds exactly like confirmed and caught early. Blood work was the clincher.

But if you are somehow stuck on the wording simply ask the Dr. to confirm it with you verbally.

JenF. Newbie
JenF.
Posted
  • Author

Hello, Jen, and welcome.

Actually, I think you do have your answer. Your blood results were highly positive. Your biopsy says it looks like celiac but we caught it early. You respond positively to the gluten free diet. I would think that should be good enough to convince you. What leaves any doubt in your mind?? :)

Hi!

Thanks for responding.

I guess the hesitation was because I wanted to be really sure that I have celiac, because I am sure you know, going gluten free can be very challenging and expensive at first.

I didn't want to bother making all of those changes if perhaps It was something else causing my stomach ailments and not gluten.

The specialists wording threw me off a bit, but now that it has been over 1 week gluten free and my stomach issues have cleared up about 90 percent..I guess it is pretty obvious! So I will stick with the diet. I am enjoying feeling good on a regular basis!:)

Roda Rising Star
Roda
Posted

He is just wording it weird. You have celiac and the proof is in the pudding, or I should say the blood test and biopsy. :P A lot of people never get a positive diagnosis, making it all the more confusing.

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