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Questioning Diagnosis

ILOVEOMC

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ILOVEOMC Enthusiast
ILOVEOMC
Posted

:D Hi,

This is my first post after lurking here for several months. I am impressed by the people here and have learned alot. My guestion is about my child . After stomach hurting for several months the Dr. did a scope and biopsy and diagnosed Celiac based on the findings. The only problem I have is that the week before the scope and biopsy he had the stomach flu with fever and I wonder if that could have made the findings look like Celiac. They did blood work following this and the only elevation was the anti gliadin IGa . Only up a little. 5.4 from the acceptable 5.0. Hope you all can shed some light on this and help us out. Thanks!

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KaitiUSA Enthusiast
KaitiUSA
Posted

That would not cause a biopsy to come positive for celiac if it was not. Your child does have celiac. A positive biopsy does not lie...there is clearly indication of damage which says the gluten is destroying his intestines. A stomach flu would not cause damage like that.

ILOVEOMC Enthusiast
ILOVEOMC
Posted
  • Author

:D Thanks Kaiti,

I wonder why his blood tests didn't show more elevations then only that one. Do you have any idea? He has been on th e gluten-free diet for several months now and the tummy aches have gotten a lot better. Now my daughter is complaining of her tummy all the time so I think....here we go again. I love this board though and look forward to being a member.

KaitiUSA Enthusiast
KaitiUSA
Posted

Some tests are more accurate then others, some labs are better. There can be a lot of factors to why the blood tests did not show extremely elevated levels. The fact that he has damage though gives it away that he has celiac. I am glad he has been feeling better. Welcome to the board

swittenauer Enthusiast
swittenauer
Posted

My husband was just told by looking at his blood tests that he has celiac but they are giving him a biopsy & colonoscopy next week. They said they are checking for Crohn's disease. Is that normally associated with celiac? I feel totally in the dark on this topic.

KaitiUSA Enthusiast
KaitiUSA
Posted
My husband was just told by looking at his blood tests that he has celiac but they are giving him a biopsy & colonoscopy next week.  They said they are checking for Crohn's disease.  Is that normally associated with celiac?  I feel totally in the dark on this topic.

<{POST_SNAPBACK}>

Crohns can be associated with it. They are probably just checking to rule it out. I was also checked for that. Do you know what blood tests he had? some blood tests are very accurate. A biopsy can be good for ruling in celiac but it can't rule celiac out. If there is little or no damage yet it will come back negative so be prepared for that.

Merika Contributor
Merika
Posted

A little over the #s is over the numbers. Mine was over the adult limit by maybe 2 or 3, my mom's was over by about 30. It all means positive. I felt sicker than she did, and have been having major celiac problems for longer than her.

Welcome to the board :)

Merika

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ILOVEOMC Enthusiast
ILOVEOMC
Posted
  • Author

Thank you Merika for sharing your numbers and advice. There are still times I wonder if he really has celiac disease but they think he was just starting it and we caught it early and maybe that is why the numbers were only slightly elevated. It helps to have you "experts" keep us on the straight and healthy narrow. :D

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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